I don't understand why I was turned down for DLA and don't know what to do

shegirl

Wheekypigs wrote: »

My parents helped me to fill in the form.

By "eat correctly" I mean eat the right amount and the right kinds of food. Without help I would eat the same food over and over again and become ill.

What would you eat,if you don't mind me asking?lol curious (ds is rigid with food)

So,someone telling you to eat certain food then?Do you ever resist?lol Not sure if amounts of food would count,guess it depends.

Are you able to cook?

Do you know what your parents put on the form?

I also have to ask,what did you do when you were away at uni?

Wheekypigs

shegirl wrote: »

What would you eat,if you don't mind me asking?lol curious (ds is rigid with food)

So,someone telling you to eat certain food then?Do you ever resist?lol Not sure if amounts of food would count,guess it depends.

Are you able to cook?

Do you know what your parents put on the form?

I also have to ask,what did you do when you were away at uni?

I would eat crackers and cereal. I can cook food in the oven but sometimes I forget it's in or undercook it. I can't remember what my parents put on the form. They put that I needed encouragement and reminding about a lot of things, I think.

I was only at uni for a few months but they were the worst months of my life. I didn't have an ASD diagnosis at that time so didn't have any support with living. I became isolated and ill and had to leave on medical grounds.

shegirl

Wheekypigs wrote: »

I would eat crackers and cereal. I can cook food in the oven but sometimes I forget it's in or undercook it. I can't remember what my parents put on the form. They put that I needed encouragement and reminding about a lot of things, I think.

I was only at uni for a few months but they were the worst months of my life. I didn't have an ASD diagnosis at that time so didn't have any support with living. I became isolated and ill and had to leave on medical grounds.

Dry cereal by any chance?lol

Can I ask something out of curiosity?If you know you need to eat other things and will do so when told what is it that makes you not do so when on your own?Genuinely curious about that.DS is a severe autistic with ld's and he'll only eat what he'll eat (thankfully it's pretty healthy but highly repetitive),nothing on earth would make him eat anything else (part rigidity part sensory) and he'd not eat at all (same with drink-there seems no real instinct there).I know food can be an issue with many autistics and it would be interesting to hear what makes such a difference for you.

Hoe you don't mind me asking

Wheekypigs

shegirl wrote: »

Dry cereal by any chance?lol

Can I ask something out of curiosity?If you know you need to eat other things and will do so when told what is it that makes you not do so when on your own?Genuinely curious about that.DS is a severe autistic with ld's and he'll only eat what he'll eat (thankfully it's pretty healthy but highly repetitive),nothing on earth would make him eat anything else (part rigidity part sensory) and he'd not eat at all (same with drink-there seems no real instinct there).I know food can be an issue with many autistics and it would be interesting to hear what makes such a difference for you.

Hoe you don't mind me asking

I don't mind you asking.
It isn't so much that I actively choose not to eat other foods, it's more that I don't notice I'm not eating a wide enough variety. I got given some sheets to fill in once, where I had to write what I had eaten at what time and then circle smiley face or sad face for my mood afterwards and by doing that it helped me to understand that even though I like eating cereal, cereal then cereal it makes me feel worse.
I also find it hard to make decisions so it is easier to choose from a handful of "safe" foods.

atherlon

kingfisherblue wrote: »

No, the government expect you to put down an average day. To put down your worst day is benefit fraud.

If your days vary, you put 'On most days this happens, and on worse days, which occur x times per week/month, that happens'

If you only write about your worst day, you are not giving accurate details of how your condition affects you, and the form requires accurate information in order for an award to be assessed correctly.

OP, you could contacct the NAS and ask them if they offer any help with DLA appeals. Otherwise, ask your local council if they have a welfare office that can help. The Citizen's Advice Bureau can soemtimes help, but it does depend on the workload of the branch that you ask at. You will need to ring and make an appointment if your local branch can help.

you are wrong , when i got help first from cab and then from a trained dla advisor , both told me to put down the worst day i have , not normal or best days

HB58

atherlon wrote: »

you are wrong , when i got help first from cab and then from a trained dla advisor , both told me to put down the worst day i have , not normal or best days

I'm afraid that this advice is often given - however, it does leave the claimant wide open to allegations of fraud.

kingfisherblue

atherlon wrote: »

you are wrong , when i got help first from cab and then from a trained dla advisor , both told me to put down the worst day i have , not normal or best days

You were given the wrong advice. You just need to read the front of the DLA form to know that - it says to write about an average day.

Remember that if you are ever investigated for fraud, it is not the CAB volunteers or the DLA advisor that could be prosecuted, it is you.

stephief

Your best bet is to get someone else, who has experience of DLA forms, to help you either refill them in, or help with your appeal. It is all about wording and making sure you really emphasise the problems you have (not exaggerate, but make them clear and very concise) and see if that helps. Most DLA claims are refused at the first application, most people have to appeal.

As for support groups, my husband has recently started to go to one. Its really not as bleak as the poster suggested. My husbands is for people who are mentally ill (my husband is also physically disabled), and he has started to go as he just doesnt get out to socialise enough, and being able to go somewhere where he has support workers means I get a few hours off of having to look after him safe in the knowledge he isnt just out on the loose! My husbands group are going on a day out tomorrow which means I get a few hours of shopping

And many people with mind disabilities dont really know what care help they need, it often is the people who look after them who need to fill in that part of the form rather than the claimant themselves! My husband doesnt realise he has to be told he needs a bath, of course he knows people smell if they dont bathe and that bathing is important and essential, he just doesnt realise when HE needs to bathe! Same with eating, if I dont tell him he needs to eat, and what he needs to eat (he is also diabetic) he wont eat at all, or will eat the wrong foods. It doesnt mean he doesnt know that people need to eat, it just doesnt occur to regularly him like it might do to a non disabled person!