I don't understand why I was turned down for DLA and don't know what to do

GlasweJen

I don't know any autistic people who have "just" anxiety that get anything more than low care DLA and they won't have a hope with PIP, I'm also autistic but I'm too busy living to go to groups.

GlasweJen

mynameistallulah wrote: »

When did you become so bitter?

The OP does not "just" have anxiety, they also have difficulties with communicating and dealing with other people. From what they have described I would recommend appealing, with professional help. Whilst I am not sure that they will receive a care award (their difficulties seem to fall in between LRC and MRC), but I would certainly expect an award for LRM.

I'm not bitter, I'm just not as good a communicator as the OP.

I don't get the point of autism support groups, I went to a few and I don't see how sitting in a room for a few hours every week with a bunch of people who I have nothing in common with does anyone any good. "support workers" would breeze on up and pair me off with "jim, he likes science too" then I'd either be sat staring into space while jim waxed lyrical about projectiles or more likely we would be staring t each other trying to work out what to say after the initial introduction. Awkward doesn't start to cover it.

Oliver14

atherlon wrote: »

the government expect you to put down your worst day , not a normal day , which is what most people put on thier forms

Actually no. The form states it should be your average day.

I agree with others you need to appeal and get someone either CAB or other organisation to fill it in with you. If you've never filled one in before they are not easiest things to do.

Oliver14

GlasweJen wrote: »

I'm not bitter, I'm just not as good a communicator as the OP.

I don't get the point of autism support groups, I went to a few and I don't see how sitting in a room for a few hours every week with a bunch of people who I have nothing in common with does anyone any good. "support workers" would breeze on up and pair me off with "jim, he likes science too" then I'd either be sat staring into space while jim waxed lyrical about projectiles or more likely we would be staring t each other trying to work out what to say after the initial introduction. Awkward doesn't start to cover it.

I've had nurses and My Gp try and get me to go to Carer support groups and I imagine them to be exactly as you described. My idea of hell. Your post made me laugh and cheered my wife up to.

Wheekypigs

GlasweJen wrote: »

I don't know any autistic people who have "just" anxiety that get anything more than low care DLA and they won't have a hope with PIP, I'm also autistic but I'm too busy living to go to groups.

I already said that I don't "just" have anxiety, in fact I said I don't have much anxiety at all and my problems with communication are because of lack of understanding things such as body language and tone of voice. I am anxious sometimes because that makes me an easy target.

I found what you said about being "too busy living" to go to support groups quite upsetting and it feels like the only reason you said it was as a slur against me (correct me if I'm wrong). That support group is the only place I can go that is safe and where I can get advice and information that is helpful to me and for you to dismiss it as if it's beneath you is quite offensive to me.

p999j

I am not one to get involved in others disagreements.

But may I suggest something?

Can we all try to be a bit more compassionate and less judgemental?
People deal with difficulties in different ways. We all have our hurdles to overcome.


A couple of quotes to consider:

"Make no judgements where you have no compassion."

-- Anne McCaffrey

"Some people think only intellect counts: knowing how to solve problems, knowing how to get by, knowing how to identify an advantage and seize it. But the functions of intellect are insufficient without courage, love, friendship, compassion and empathy."

-- Dean Koontz

shegirl

Wheekypigs wrote: »

I already said that I don't "just" have anxiety, in fact I said I don't have much anxiety at all and my problems with communication are because of lack of understanding things such as body language and tone of voice. I am anxious sometimes because that makes me an easy target.

I found what you said about being "too busy living" to go to support groups quite upsetting and it feels like the only reason you said it was as a slur against me (correct me if I'm wrong). That support group is the only place I can go that is safe and where I can get advice and information that is helpful to me and for you to dismiss it as if it's beneath you is quite offensive to me.

So anxiety is crossed off the list.

I did ask earlier but what are your actual care needs?Can you give examples?These are the things you need to think about.

Wheekypigs

shegirl wrote: »

So anxiety is crossed off the list.

I did ask earlier but what are your actual care needs?Can you give examples?These are the things you need to think about.

I don't know. I am due to have a community care assessment which I assume will tell me exactly what my needs are but at the moment I don't know what counts as "care needs" or not. I still live with my parents so they help me with most things but that's the way it's always been so I don't know what is counted as a care need or what is just normal.
A few examples of what they help me with is filling in forms, replying to letters, organising money, eating correctly, socialising, having a routine etc. Is that the kind of thing you mean? I'm not really sure.

shegirl

If you don't know what your care needs are what on earth did you put on the DLA forms?

Things you need help with/struggle with/are unable to do.You also need to think about the effect of your problems have,how you deal with them etc.

How do you need help to 'eat correctly'?What do you mean by it and what help do you get/what would happen without the help?

That's an example of the way you need to think about things.

Wheekypigs

shegirl wrote: »

If you don't know what your care needs are what on earth did you put on the DLA forms?

Things you need help with/struggle with/are unable to do.You also need to think about the effect of your problems have,how you deal with them etc.

How do you need help to 'eat correctly'?What do you mean by it and what help do you get/what would happen without the help?

That's an example of the way you need to think about things.

My parents helped me to fill in the form.

By "eat correctly" I mean eat the right amount and the right kinds of food. Without help I would eat the same food over and over again and become ill.