Does anyone have relapse remmiting MS and get DLA?

xylophone

http://www.mssociety.org.uk/ms-support/practical-and-financial-help/work-and-money/disability-benefits/disability-living-allow

gingergee

I have SLE (amongst other things) and get HRC HRM DLA. Was accepted first time without a medical. They even wrote on my award letter that they understand my condition involves good days and bad days. How can they let one person with a condition that varies get it, but not another?? Defo appeal!!!!!! Get all doctors/consultants letters, get a support worker, involve as many people you can. I submitted all my prescription slips, a few reports from hospital, my support workers details etc.
Good luck! Keep fighting! xxx

Anubis_2

gingergee wrote: »

I have SLE (amongst other things) and get HRC HRM DLA. Was accepted first time without a medical. They even wrote on my award letter that they understand my condition involves good days and bad days. How can they let one person with a condition that varies get it, but not another?? Defo appeal!!!!!! Get all doctors/consultants letters, get a support worker, involve as many people you can. I submitted all my prescription slips, a few reports from hospital, my support workers details etc.
Good luck! Keep fighting! xxx

Because DLA is based on care and mobility needs. The stumbling block with relapsing remitting MS (if it's the only condition) is that there can be many months, even years without many symptoms. Its is unlikely that someone will be affected 4 days a week, then fine for 3 then affected another 4 the next week and so on.

Remissions can last a long time, relapses can last a relatively short time for a lot of people, and if the doctors report suggests long periods of remission, then DLA is unlikely to be awarded.

However, the new PIP will take more variable conditions into account and current indications show they are considering a 50 percent margin over a year. Therefore if you are likely to need help MORE than 50 percent of the time over a year, you may be entitled to some payment. PIP will come into force next year to replace DLA.

If you have only just been refused DLA, ring and ask for a copy of evidence used in decision making and appeal if you believe you need help more days than not.

gingergee

I didn't know that. My condition means i can 3 good days, do something "normal" ie shopping on day 4, then be ill for the next week!!!
Seems really unfair. PIP will be really good for R & R MS. xx

kins77

Yeah I work mon, tues and wed then spend most of the rest of the week sleeping!

mealone

Im sure gingergee made the DWP aware that she is very severly disabled at least 4 days per week to make her DLA claim valid or she wouldnt be able to claim DLA HRMC/HRCC, people with some forms of RRMS are well for weeks, if not months without problems.

gingergee wrote: »

I have SLE (amongst other things) and get HRC HRM DLA. Was accepted first time without a medical. They even wrote on my award letter that they understand my condition involves good days and bad days. How can they let one person with a condition that varies get it, but not another?? Defo appeal!!!!!! Get all doctors/consultants letters, get a support worker, involve as many people you can. I submitted all my prescription slips, a few reports from hospital, my support workers details etc.
Good luck! Keep fighting! xxx

Anubis wrote: »

Because DLA is based on care and mobility needs. The stumbling block with relapsing remitting MS (if it's the only condition) is that there can be many months, even years without many symptoms. Its is unlikely that someone will be affected 4 days a week, then fine for 3 then affected another 4 the next week and so on.

Remissions can last a long time, relapses can last a relatively short time for a lot of people, and if the doctors report suggests long periods of remission, then DLA is unlikely to be awarded.

However, the new PIP will take more variable conditions into account and current indications show they are considering a 50 percent margin over a year. Therefore if you are likely to need help MORE than 50 percent of the time over a year, you may be entitled to some payment. PIP will come into force next year to replace DLA.

If you have only just been refused DLA, ring and ask for a copy of evidence used in decision making and appeal if you believe you need help more days than not.

lemontart

op I have just been looking at that as currently booked in for tests etc to see if I have ms and have found this which may be if assistance to you - it mentions keeping diary and gives examples

http://www.mssociety.org.uk/sites/default/files/Documents/Essentials/Claiming%20DLA%20%28MS%20Essentials%2013%29%20ES13.1012-%20web.pdf

Bennifred

lemontart wrote: »

op I have just been looking at that as currently booked in for tests etc to see if I have ms and have found this which may be if assistance to you - it mentions keeping diary and gives examples

http://www.mssociety.org.uk/sites/default/files/Documents/Essentials/Claiming%20DLA%20%28MS%20Essentials%2013%29%20ES13.1012-%20web.pdf

Good luck lemontart, it's a worrying time for you.
Having said that, when I was diagnosed with PPMS it was almost a relief to know I wasn't just imagining things!
Let us know how you get on.

lemontart

Bennifred wrote: »

Good luck lemontart, it's a worrying time for you.
Having said that, when I was diagnosed with PPMS it was almost a relief to know I wasn't just imagining things!
Let us know how you get on.

I wrote down all the health probs I have had over past 3 yrs or so that have been getting worse recently when I went to drs and they told me to make double appt to start this process- never even considered it before I just know I have not been right for years and getting worse having to use wheel chair at times, forge ting stuff and lots other bits, whilst not a good thing it will be a relief to know I am not a hypochondriac who is loosing her mind if it transpires that it is MS. then at least I can make changes and plans of sorts.

Got appt on 14th June and will update - I definitely appreciate the support.

Bennifred

Is your appointment with your GP or have you already been referred to a neurologist, lemontart?
I had to fairly insistent with my GP (after several appointments which went nowhere, basically) that I needed to be referred to a neurologist. I was diagnosed very quickly once I'd been seen in the neurology department.