Does anyone have relapse remmiting MS and get DLA?

kins77

Hi everyone, my ms nurse has kept going on about applying for dla, so I did and just been refused!
If any of you know about this stupid disease then most days I'm ok then others I really struggle.
I have been told to appeal but don't know if it will just cause undew stress!

HB58

I'm sorry your DLA application was refused. It is possible that this was due to lack of info on your form - I know that I didn't put anything like enough info on my first application. It is worth having a chat with CAB to see whether they can help.

Kylieminoag

Hi

My BiL age 60 has the same MS and also was recently denied DLA. He has had MS and severe depression for 15 years and recently moved in with us because he cant manage alone any more. He walks around the house with an elbow crutch and uses a walking frame or wheelchair if we take him out but he is too frightened to go out alone. Just to walk down the hallway tires him out and if we take him out and he walks too far he gets dreadful spasms at night. Too frightened didnt count and the spasms didnt matter- he had to be physically unable to qualify.

Also because he said he can do beans on toast for himself (he forgot that I slice the bread and undo the tin!) that is counted as being able to prepare a main meal!

He has a fear of wetting himself and so wears a pad for a dribble when he goes out. He keeps a bottle by his bed because he wakes up weeing and cant get to the toilet in time. He has been referred for botox for his bladder but was classed as continent by the assessor.

The only benefit he has been given is jobseekers allowance of £135 a fortnight.

We have appealed (the hearing date is estimated for December 2012) and absolutely refuse to let it stress us.... but he is devastated and feels he is being called a waster and a cheat for asking for help. It hasnt helped his depression!

I now wonder if we have done him a diservice taking him in and helping him and whether he would have had more help in a less safe environment that he had to pay for instead of living with us for free!

Dont know if my ramblings and rantings will have helped but just wanted you to take strength from the fact that you are not alone.

spikeripley

ask your ms nurse to help you fill it in or the cab or try the ms society I think they have a guide to claiming.

spikeripley

and if your not working you can put in a claim for esa as well. the ms society has loads of links to the help you may be able to get. good luck

kins77

Kylieminoag wrote: »

Hi

My BiL age 60 has the same MS and also was recently denied DLA. He has had MS and severe depression for 15 years and recently moved in with us because he cant manage alone any more. He walks around the house with an elbow crutch and uses a walking frame or wheelchair if we take him out but he is too frightened to go out alone. Just to walk down the hallway tires him out and if we take him out and he walks too far he gets dreadful spasms at night. Too frightened didnt count and the spasms didnt matter- he had to be physically unable to qualify.

Also because he said he can do beans on toast for himself (he forgot that I slice the bread and undo the tin!) that is counted as being able to prepare a main meal!

He has a fear of wetting himself and so wears a pad for a dribble when he goes out. He keeps a bottle by his bed because he wakes up weeing and cant get to the toilet in time. He has been referred for botox for his bladder but was classed as continent by the assessor.

The only benefit he has been given is jobseekers allowance of £135 a fortnight.

We have appealed (the hearing date is estimated for December 2012) and absolutely refuse to let it stress us.... but he is devastated and feels he is being called a waster and a cheat for asking for help. It hasnt helped his depression!

I now wonder if we have done him a diservice taking him in and helping him and whether he would have had more help in a less safe environment that he had to pay for instead of living with us for free!

Dont know if my ramblings and rantings will have helped but just wanted you to take strength from the fact that you are not alone.

That sounds absolutely outrageous! It really does make me feel like I shouldn't get it anyway I'm no where near that bad! But when a relapse does happen I can't do what they ask and I do need help. It says they don't take into account helping with food shopping or looking after my three boys or housework!
I've adapted my life to help me such as take time with things walk slow having to stop and rest when my legs go like jelly.
They went to my gp for info why not go to my ms nurse or consultant who I see more offen?

mynameistallulah

kins77 wrote: »

They went to my gp for info why not go to my ms nurse or consultant who I see more offen?

It is your responsibility to submit relevant medical evidence.

You can appeal the decision, and you would be best to seek assistance in doing this. You should focus on your care and mobility needs, looking after the children is not relevant to this.

kins77

I put all the relevant information the consultants name and address and the nurse in the extra info! You had to put gp name and address in as it asked!
I can understand where your coming from about looking after the children, it's just a major help taking kids to school and feeding them when I can't move with severe fatigue! that's probably why I put it on the form!

mynameistallulah

kins77 wrote: »

I put all the relevant information the consultants name and address and the nurse in the extra info! You had to put gp name and address in as it asked!
I can understand where your coming from about looking after the children, it's just a major help taking kids to school and feeding them when I can't move with severe fatigue! that's probably why I put it on the form!

You need to supply the reports, not just their contact details - the DWP are under no obligation to seek additional evidence (although where none is given they will often request at least one report).

spikeripley

kins77 wrote: »

That sounds absolutely outrageous! It really does make me feel like I shouldn't get it anyway I'm no where near that bad! But when a relapse does happen I can't do what they ask and I do need help. It says they don't take into account helping with food shopping or looking after my three boys or housework!
I've adapted my life to help me such as take time with things walk slow having to stop and rest when my legs go like jelly.
They went to my gp for info why not go to my ms nurse or consultant who I see more offen?

That's the thing, you learn to 'adjust' your life to your condition and get used to living that way. Appeal the decision and get someone with experience of these things to help you. And go and see your GP tell him you are claiming and update him on the problems you are having if you normally just see your nurse and consultant he probably wont be aware of whats going on.

kins77

I have never been given reports, I just presumed they would ask for them from the consultant. My mistake. Obviously I should get help thanks everyone