anyone else have a child with diabetes?

Humphrey10

Sam-Barr wrote: »

doc says there is a 3 year waiting list.

Three years! The diabetic nurse here was terribly apologetic that I would have to wait 5 months.

Try another hospital like chewynut says.

Sam-Barr

Hey thanks!
This was recommended by diabetic specialist nurse at diabetic clinic, not sure how to go about going to another place to try?

travelgran

Just for info. DAFNE stands for 'Dose adjustment for normal eating'. So instead of having a set amount of insulin to inject and then having to make sure you ate enough carbohydrate to balance, it's the reverse. Choose your carbohydrate then inject as much/ or as little as you need to cover it. Because you also have a daily background dose you don't need to eat at specific times and can even miss a meal.

nais

my mum has just done the dafne course after being a diabetic for nearly 30 years and wishes she had known about it years ago. Interestingly she only had to wait a few weeks after moving into a new area as the nurse said lots of people are unable to go due to being unable to take time off work in the present economic climate. So it might be worth seeing if there is a cencellation list you could go on if you could get there with little notice.

bulchy

x-stitch wrote: »

I think, having seen both happen, in some ways, the older they are at diagnosis (up to a point) the better they cope because they are in control from day one. It didn't come easy (and he would almost certainly disagree!) but I tried not to take charge of his diabetes.* Have only ever injected him once - and that was because I had to before they would discharge him when first diagnosed. Our niece OTOH is now a similar age to your son but still gets babied by her mother; until recently Mum still did injections for her. Perhaps doesn't help that she is an only child. She has had far more issues through her teenage years though - missing injections, etc.

I don't think my son blood tests very much these days, but, nor does my brother - both feel they should 'know'. So far, so good!! The 4/day injection regime is far more controllable though - DS started on 2/day mixed insulin; bro on one/day.
(As a total aside - I still have one of my brother's original syringes and boy, does it look barbaric compared to the modern pens/needles.)

* Doesn't mean I didn't/don't nag though!!

You sound very much like me. I have only ever given my son the one injection, and that was the one in the hospital, he has done every other one himself. He was 13 when diagnosed, and managed very well from the start, of course we've had our ups and downs, he has got very angry about it at times, especially the fact that he couldnt just decide to do things on the spur of the moment like his friends could, meals, snacks , injections and bloodtesting did get in the way at times but he got by, i also think having a good group of friends has helped him enormously.On the first day he came home from hospital I had a chat with his friends about his diabetes, they have been brilliant, and kept an eye on him, i would go so far as to say one has even saved his life, getting him help at school when his blood went down to 2.1, I'll never forget this. I do nag occaisonally, but see this as just an extra thing to nag him for along with tidying his room etc:rotfl:
On the other hand, I know of a few adults with type 1 that dont look after themselves half as well as my lad, both diagnosed as adults and one in particular that is very much in denial about her condition, and am so grateful my son has the atitude he has about diabetes and the importance of looking after himself.
Sue

Miss_Cinnabon

Hi my son is now 13, diagnosed at age 2 and we are facing probs now, my son has been having sugary snacks while at school which was unknown to us, this all came out after his whole left side was tingling, esp his hands and feet, maybe unrelated to his diabetes but we had a big chat about things and hopefully now on track to better management for him, he has always been good with his care so this was a shock to us all

My advice is to keep an extra watch on his blood sugars and be open about diabetes, there is lots of support out there so your not alone on this, some links i find helpful:

http://www.childrenwithdiabetesuk.org/

http://www.diabetesandparenting.org.uk/

http://www.childrenwithdiabetes.com/activities/uk2012/ (sold out but you can go onto waiting list, we have been to this and its fantastic, kids get to know each other and is a great support network)

i have some links to diabetes web pages on my blog, just click on my username and go to homepage to access it

chewynut

To me, that sounds like Ketones, or if it happened when he woke up, that he bounced up, bounced straight back down overnight and had a mini-stroke. I had one before and woke up in the morning with my whole left side tingling. The diabetic nurse wasn't sure but she said it sounded like I'd slept through a bad hypo.

I hated Diabetic events when I was a kid. I hated being surrounded by Diabetics who all seemed to be better at handling it than me. I had a small hot chocolate after we'd been out on a two-hour horse ride once and to this day I can still remember the shocked tidal wave of whispers that went around the room.

*Twinkle*

my daughter is 5 now and was diagnosed type one when she was 3, horrible, horrible condition

split_second

my fiancee was diagnosed as type 1 in 1998, at easter, as a 13 year old which to be fair is probably the worst time to be diagnosed. her oldest sister was already diagnosed years earlier and her mum had it when she was alive, so it wasnt a totally alien concept to the family but still a rough thing. one of her other older sisters was suspected of having a sort of pregnancy only diabetes because of when it was discovered. nearly 14 years later its still not ideal for her but its life and she is a resilient little thing

Firefly

http://www.diabetes.co.uk/diabetes-directory/london-medical-diabetes-health-clinic.html

Sam I'm sure the link above will point you in the right direction.

http://www.dafne.uk.com/ Carb counting isn't that complicated and you can probably teach yourself.

http://www.bdec-e-learning.com/ There are online versions.

We went on a course and within 2hrs were confident enough to put it all into practice. Once you've done it there's no looking back.

Re Chewynuts post, please note that you never inject insulin into veins. All injections are intramuscular and go into subcutaneous tissue.