Autism

peainapod

Thank you for all this useful information guys, its been quite a bad since I found out but starting to try and get my head round it all, and this information has been a great help. Fingers crossed everything goes smoothly !

tessie_bear

get some help with the dla form if u can...its hard work to fill in but worth it in the end...good luck

alfiesmum

peainapod wrote: »

Thank you for all this useful information guys, its been quite a bad since I found out but starting to try and get my head round it all, and this information has been a great help. Fingers crossed everything goes smoothly !

Have you read Welcome to Holland? I read it in the late 80's, and it's still as powerful today. Just a short passage, here it is:
http://www.childrenfirst.nhs.uk/families/features/illnesses/welcome_to_holland.html

peainapod

alfiesmum wrote: »

Have you read Welcome to Holland? I read it in the late 80's, and it's still as powerful today. Just a short passage, here it is:
http://www.childrenfirst.nhs.uk/families/features/illnesses/welcome_to_holland.html

That was really nice, thanks for posting

Hammyman

peainapod wrote: »

I am a single mother of 2 and my youngest daughter has just been diagnosed with severe learning disabilities and autism. Could anyone let me know what I would be entitled to ?
I already get income support and housing/council tax benefit, child tax credit and benefit, just wondering what she would be entitled to which we could then use for any adjustments I would need to make at home and also transport costs to her special school if that's where she'll go, I'm not too sure yet.
Thanks

Get yourself on to the National Autistic Society forums. We have max care and mobility for our son but it was one hell of a fight. The help from NAS was invaluable.

If she is statemented, it helps a great deal. In your application send off absolutely everything you were given from the statement process - we sent off a wad of reports from child behaviour, pediatrics, social services etc that was a good inch thick.

peainapod

What does statemented mean ?

alfiesmum

It refers to a statement of special needs.
http://www.direct.gov.uk/en/Parents/Schoolslearninganddevelopment/SpecialEducationalNeeds/DG_4000870
This is the direct gov website explanation.

SuziQ

Here is info on statementing: http://www.direct.gov.uk/en/Parents/Schoolslearninganddevelopment/SpecialEducationalNeeds/DG_4000870

My 9 year old has been getting DLA for about 3 years now, although he isn't statemented. He was also awarded DLA when he was around 2 but we let it lapse when it came to reapplying as we had a very good income back then, and could afford whatever he needed. The biggest help for me in explaining what is needed to complete the forms was the CEREBRA site-it really does break down how you need to answer the questions.

http://www.cerebra.org.uk/English/getinformation/publications/Pages/DLAGuide.aspx

I keep a diary now, it makes it so much easier to fill out the forms when you get them. Also-keep copies of EVERYTHING you send, as they can easily go missing- you may also need to refer to a previous application when filling in a subsequent renewal and they may not be able to send you copies. I did mine online last time-it made it so much easier, and I was able to keep a copy on a media stick.

Aginoth

Peainapod you should also go here Asperger and ASD UK Online Forum

You'll be able to get more directed advice on SEN Statementing and benefits there from those of us with Autistic/Aspergers and ASD chldren.

peainapod

Thank you all so much for the help, step by step i'll get there