DLA with OCD?

Darlyd

OP look up the linden method . IT teaches you similar to CBT But it does not talk about your actual illness. When ever someone mentions my illness It freaks me out, So I am with you on that one.

CFC

Caela, you are not the only person in the world with a sleep disorder, I know these are difficult things for most people to understand but you are not alone. There are sleep disorder clinics that you can ask your GP to refer you to, assuming you have tried already all the (limited) assistance your GP can give. It doesn't sound to me as if you have been to a specialist clinic yet. If you have already been through a clinic then hopefully your consultant will be able to support you in your appeal.

You haven't given enough info about your mobility problems to understand where you are with that.

At the end of the day it's not about whether it's 'fair' or not, it's about whether you fit the criteria, I'm sure you understand that as you have claimed DLA previously.

wombles_forever

caela wrote: »

Heya,

Yeah I live with my bf, he kinda helps lots in some ways, none in others lol.

OP, where does your bf fit into all this.

caela_2

bestpud wrote: »

It doesn't - the OP works.

OP - if you really cannot get up in the morning, then why try?

If you work in the evening and can conduct your day from pm onwards, then why do otherwise?

I haven't always been able to get up in the morning. You know nothing about my illness - in fact you are making wild assumptions.

You dont want to believe that people can and do recover from serious mental health problems, but they do! You can argue all you like and try and say I can't have had such problems, but fact is, I did, and would have spoken as you are now at times.

Mental illness is not your fault, but I refuse to accept people with mental illneses are helpless. You can improve your life.

You've been refusing help abd stressing over benefits for many years - maybe it's time you tried something else?

Hiya yeah sorry about my earlier rant but what I mean is I'm not functional getting up late and only being up for a few hours a day, I can't get anything done. Nothing is open so I can't get to the shops unless it's 24 hours or make the calls I need to make. I can work but the stress really affects me and I have never been able to hold down a full time job for more than 8 months so my options are very limited. I am trying something else, I wanted to try having a carer to see if that improves things. It's about all I've got left to try right now I can't think of anything else but if it'll work I'll do it. I don't think I'm helpless, I think I can be helped that's why I want the help- I'm just not getting it. I was able to function to a minimal extent by myself but it's getting dangerous now, all I can think of is hurting myself and I have been driving with my eyes closed and driving at things and seeing if I can do it and it's not safe I'm scaring myself. It's never been this bad. I believe people can get better, but I'm not better now I used to have periods where it was OK, but it's not now. That's my point.

I'm glad you got better, may I ask what you had? That's very inspirational. I have managed to get over a lot of things, but now it's something else and it's pretty bad. I just wanna get on with my life cos it's not going to come round twice.

caela_2

sunnyone wrote: »

Is this sleep disorder diagnosed and what treatment has the NHS offered you OP?

Hiya, I have tried many times to get help with it but the NHS refuse to see a problem. So no diagnosis, no help. Unfortunately. Unless I go private which I could never afford.

sunnyone

caela wrote: »

Hiya, I have tried many times to get help with it but the NHS refuse to see a problem. So no diagnosis, no help. Unfortunately. Unless I go private which I could never afford.

I can see why you were refused DLA for this and you alledged MH issues (alledged because you have no medical evidence to back you up) and it's right that you have been refused or anyone could just claim anything and get DLA.

caela_2

sunnyone wrote: »

I can see why you were refused DLA for this and you alledged MH issues (alledged because you have no medical evidence to back you up) and it's right that you have been refused or anyone could just claim anything and get DLA.

I do have medical evidence to back up my OCD and other problems, just not for the sleep disorder however whilst it helps to have this, it is not a necessity. I am trying to get it diagnoses so I can have some evidence but no luck there.

caela_2

CFC wrote: »

Caela, you are not the only person in the world with a sleep disorder, I know these are difficult things for most people to understand but you are not alone. There are sleep disorder clinics that you can ask your GP to refer you to, assuming you have tried already all the (limited) assistance your GP can give. It doesn't sound to me as if you have been to a specialist clinic yet. If you have already been through a clinic then hopefully your consultant will be able to support you in your appeal.

You haven't given enough info about your mobility problems to understand where you are with that.

At the end of the day it's not about whether it's 'fair' or not, it's about whether you fit the criteria, I'm sure you understand that as you have claimed DLA previously.

That is a great idea if I can get the clinic thing going, I am going back to my GP in two weeks so maybe I will mention it to her then. My mobility is limited on a couple of levels, I've got bad knees and a bad back which mean I can't walk everywhere- basically, if I maintained a normal level of activity it would make my knees too bad that I couldn't walk at all, so I have to limit it and that means my walking is ok. So it's weird cos I can walk ok (apart from the occasional slip and sudden pain) but I can't walk frequently if that makes sense.

The other aspect of mobility is with my depression or whatever I am basically always tired and lack any motivation at all. Walking is bare minimal, I literally spend nearly the whole day sitting and walking only a few metres to a different room of the flat and back. I really can't be motivated at all, I can't describe it. I just lie down on the couch or bed all day. I work 3 days a week and there is very limited walking there so it's fine, in fact I like it. It's weird how much of a contrast it is to have me at work and at home I guess. A lot of my problems are massive contradictions in themselves lol so it's very hard to sound believable, I can understand that!

caela_2

darlyd wrote: »

OP look up the linden method . IT teaches you similar to CBT But it does not talk about your actual illness. When ever someone mentions my illness It freaks me out, So I am with you on that one.

Very interesting, I will have a look now. Thanks

Muttleythefrog

caela wrote: »

A lot of my problems are massive contradictions in themselves lol so it's very hard to sound believable, I can understand that!

You're in a similar boat to me. In fact I see exactly where your thinking is in relation to getting help... medical intervention is as good as a dead issue to you because you get nothing but grief from battling to get it so you see DLA as the only realistic option to try... get a carer to intervene in day to day existence. Likewise I've battled with credibility... and for the first time in my life I have people (medical professionals) make some wildly inaccurate judgements about me and feel it perfectly acceptable to just fob me off, lie and deceive. It's hard to comprehend what I have done in life and the respect I have away from these buffoons in the NHS. Add to the mix I have now a diagnosed (though I couldn't prove it since the psychiatrist hasn't put it in black and white as was the whole point of the exercise) personality disorder which will by typical traits make me appear contradictory to people.

The bottom line is if someone from the DWP spent a day or two in your home or attached a camera to your body for a period of time they'd be able to assess exactly the effects of your illnesses on day to day living in a way that would make any form filling and supporting evidence as good as redundant.

People may struggle to understand why you let something like this claim take over all your thinking and life.... but it's because it is the only thing you can cling to as hope. If ever I'd met on my 2 year dealings with the NHS someone who said 'I think we can help you' or 'we'll get you diagnosed and then take it from there' or 'we're so dreadfully inefficient/under-resourced we may never do anything we promise you or that is required for good practice' then maybe I'd feel very differently.