oh no...have I done something silly?

blessings3

DLA doesn't touch the sides of the extra expenses of having a disabled child. I have gone from having a very successful carer paying lots of tax to working part time around my son for the last 12 years. With a NT child I would have been able to continue working as I would have easily been able to afford childcare - specialist child care for children with SN is either so expensive or just not available as to be pie in the sky for most parents of kids with anything other than a mild disability. I get 2 hours respite a week but not even that at the moment as another worker has quit an it takes so long to do the paper work and training for a new one I am at a point of telling them to forget it.

I cant safely use public transport and have to have a 7 seater as my son need a row to himself -we don't get the mobility part as a for children the criteria is set so high but I still have to have a car as my child could not get to school on a bus.

We always have wet sheets so use a tubule dryer allot - there is always something being damaged that need to be replaced - there is always another service being cut and that we then have to pay for privately - £60 for an hour of private SALT anyone?

I could go on but really cant be bothered as people that care, already care and people that think its funny, are brain dead to anything except their own experiences anyway

blessings3

a commode to a child with a behavioural problem is just a toy waiting to be played with:p

blessings3

He's 12. 5 foot and stronger than me -a stair gate would just be ripped out -I know your trying to be helpful but do find the idea of wind chimes quite funny. And if I slept with him he would just talk tome all night, hence sleeping with my daughter. It the fact that I have no''married' life that was the point not which child I sleep with .

blessings3

I should also make the point I'm not the op Ames

Ames

Sorry, I think I got a bit confused, and muddled between you and the OP! It's late and insomnia has kicked in. Hopefully some of my suggestions will make sense to the OP.

blessings3

I hope so Ames - you seam very kind and well meaning. Personally if I were the Op looking for practical advice I would be on a specialist children's disability forum.