oh no...have I done something silly?

FattyBettyBoo

Great attitude shy-but-need-help!

blessings3

Oh yes instant solutions - lock her in her room - My boy would be through the door or injure himself trying to get out as it would cause a panic reaction or out of the window and run off. And what if there was a fire ??? and never mind the legalities and repercussions from social services. If we lock our kitchen door as suggested by the DLA adviser I am putting the lives of the rest of the family at risk as it it our only fire exit !

The money we get means I can work part time and get some sleep during the day so that I can deal with my son needs at night and still be a functioning human being to deal with my other children and my son.

But hey if you resent the extra £25 or so a week - I'll be happy to give it up, put my son in full time residential care at approximately £4,000 a week , oh yes then there would be the extra £3,000 a week they assessed him to need as they think he needs night waking care .

I had this with the LEA - wouldn't provide 1-2-1 in main stream school until they realised that out of county ''special school''would be £280,000 a year - oh yes and then he would need night waking care !!!


DLA for looking after SN children is a pittance compared to the effort that we put in as parents and yes they are our children but most of us were and are tax payers and are just as entitled to support as someone who has lost their job, an elderly person who needs extra care etc.

Mahatma Gandhi said "You can judge a society by how they treat their weakest members."

relic

This reminds me of the other thread, which in turn reminds me I really should put in a DLA claim for my dog with a bad knee.. be right back.

Darlyd

relic wrote: »

This reminds me of the other thread, which in turn reminds me I really should put in a DLA claim for my dog with a bad knee.. be right back.

Oh come on.

blessings3

@ relic - hope you or your family never really need any sort of help - hope you never get old or ill and if you do that the service provider or the benefits assessor has a better attitude than you.

Mupette

Op I think you need to repost this in Disablity and Dosh

Do you think you need a night time (waking) carer to help you through the night, you have other children and not getting enough sleep yourself.

Can you call DLA and explain that through lack of sleep you have forgotten to tell them everything?

merlin68

In that case the DLA should be used for a night time carer. It is not there for extra tuition and swimming lessons. You could pay someone to watch her over night.

Ames

merlin68 wrote: »

In that case the DLA should be used for a night time carer. It is not there for extra tuition and swimming lessons. You could pay someone to watch her over night.

The extra DLA wouldn't go very far with that - maybe two or three hours a week.

I think the extra tuition is perfectly acceptable, and the swimming lessons might be to try and encourage her with hygiene, give her a sense of worth, or even just tire her out so she sleeps through at night.

relic

blessings3 wrote: »

@ relic - hope you or your family never really need any sort of help - hope you never get old or ill and if you do that the service provider or the benefits assessor has a better attitude than you.

Why, I mean i'm obviously being deadly serious about getting benefits for my dog, right?

Just so you know, you don't have to be down in the dumps and serious your whole life, it can be quite fun!

shy-but-need-help

ohh just tracking back to this on a side note- you mention sneaking downstairs for food at night, we have a stairgate at the top of our stairs which is impossible to open without a loud beeper/alarm going off. We have to have it because DS also sleep walks and can't manage the stairs without the rails on either side (which obviously he's not going to hold onto in his sleep!) anyway, it works well because it does wake us if anyone tries to go downstairs so if we don't wake with his wandering we do if he touches the stairs!

It is a lindham one and still available I think, paid less than £40 for it if I remember correctly.

For the bathroom we resorted to lockers (told you my house looks so bizarre!) like you get at swimming pools, everyone has one to keep their stuff in (shampoo, razors, soap, whatever!) so he can't get into those and create merry-hell, he's not naughty but naturally curious with absolutely no forward thinking to consequences. I actually quite like the lockers, it gives the bathroom a bit of a kooky theme to it. I think my DH got them from an office supply catalogue? I also hope it's going to stop alot of squabbling over deodrants etc as they all get older! DS doesn't have the fine motor dexterity to deal with the locks so them being shut is enough in our house but if your DD does then you just lock them and keep the key on you/whoever has that locker.

I've picked up lots of little tips and ideas over the last few years with DH, often ones I wouldn't have thought of without other people saying they do them.