epilepsy please help

GlasweJen

Dropping a vial of acid on herself? They only use 1% Hydrochloric in schools these days for health and safety reasons anyway so it's not as if she's going to do any real damage with it, she's more likely to burn herself at home making tea.

My main point is that you are excluding this child from 2 classes that she's chosen to do but that's ok because she has epilepsy and we can't be too careful - try reasoning that to a 15 year old.

kazzah60

GlasweJen wrote: »

Dropping a vial of acid on herself? They only use 1% Hydrochloric in schools these days for health and safety reasons anyway so it's not as if she's going to do any real damage with it, she's more likely to burn herself at home making tea.

My main point is that you are excluding this child from 2 classes that she's chosen to do but that's ok because she has epilepsy and we can't be too careful - try reasoning that to a 15 year old.

Whilst I don't necessarily agree with the OP about excluding her daughter from certain classes ( my brother has severe uncontrollable epilepsy as a result of surgery to remove a benign brain tumour) I think people might be forgetting that this is a VERY new diagnosis for the WHOLE FAMILY - not just the daughter - the parents and siblings have all got to come to terms with the diagnosis and work out what the daughter is able to do an unable to do.
Her mother is still in shock probably, and may not fully comprehend that this doesn't necessarily mean that her daughter will never be able to care for herself or carry our certain tasks

as with the diagnosis of ANY illness/condition/syndrome in a "previously healthy child" or seemingly healthy child - there is always a period of almost bereavement for the loss of the healthy child - I think we should all be mindful of this and rather than letting this descend into the usual tirade of what is right and what is wrong
maybe a little understanding of their particular situation would be more useful to the OP.

just my opinion:)

GlasweJen

I think someone has to stick up for the daughter, at 15 she's been told that she now has epilepsy and she's not allowed to do home economics or biology (subjects that she's chosen to do), she'll no doubt realise that she probably wont be able to drive. At some point soon they're going to start medicating her, anti-epileptic drugs have some awful side effects which she will have to deal with - not her family.

Will she be allowed to go out with her friends any more? Will her parents support her if she wants to go to uni far away? What about her exam results, will her parents be willing to fork out for catch up lessons in the subjects she's currently banned from doing?

The reason I went to uni in Edinburgh was because my mum was so bloody over protective I realised that I wouldn't ever have a life unless I got out of there. Recession caused me to move back home when I graduated and my mum was ok at first but the tendancy to apply the bubble wrap has been coming on stronger and stronger now that she's dealing with me constantly injuring myself again so I'm moving out in April into the city centre with a friend. She hates the idea (as she hated the idea of me going to Edinburgh) but she's pushed me away and I think she knows it.

kazzah60

GlasweJen wrote: »

I think someone has to stick up for the daughter, at 15 she's been told that she now has epilepsy and she's not allowed to do home economics or biology (subjects that she's chosen to do), she'll no doubt realise that she probably wont be able to drive. At some point soon they're going to start medicating her, anti-epileptic drugs have some awful side effects which she will have to deal with - not her family.

Will she be allowed to go out with her friends any more? Will her parents support her if she wants to go to uni far away? What about her exam results, will her parents be willing to fork out for catch up lessons in the subjects she's currently banned from doing?

The reason I went to uni in Edinburgh was because my mum was so bloody over protective I realised that I wouldn't ever have a life unless I got out of there. Recession caused me to move back home when I graduated and my mum was ok at first but the tendancy to apply the bubble wrap has been coming on stronger and stronger now that she's dealing with me constantly injuring myself again so I'm moving out in April into the city centre with a friend. She hates the idea (as she hated the idea of me going to Edinburgh) but she's pushed me away and I think she knows it.

With respect after caring for my brother who has been medicated on 19 different epilepsy drungs for 42 years I think I can say that your comment about the daughter having to deal with it and not the family is rather naive - the side effects - which are well known to me and my family - can affect EVERYONE in the household - obviously the person with epilepsy suffers the actual side effects- but there are many effects which reverberate on the whole family

as an aside - at 15 in England this young girl has NOT chosen to take Biology - it is compulsory to study this at GCSE level so it may well be that she is not worried by being excluded from the subject.

Also YOUR experience with a mother who you claim was " so b****y overprotective may NOT be the experience of EVERY persons family
my own mother made sure my brother shared all the household chores and participated as much in life as possible- the only thing he was excluded from taking part in at school was swimming ( and before you go off on one about that I am talking about the 1960's here)

today he lives alone, cooks for himself, cleans for himself and is a far better washer and ironer of his clothes than I am of mine.
Your experience has not been a happy one, clearly - but you obviously have a lot more health problems than simply epilepsy as you stated in one of your previous posts that you had to have a pace maker fitted at the age of 19 - so maybe your Mother was overprotective due to you many and considerable health problems
there is NOTHING in the Op's post to indicate that once her daughters medication has been sorted out that she will be denied a full and happy normal lifestyle:)

[Deleted User]

kazzah60 wrote: »

Whilst I don't necessarily agree with the OP about excluding her daughter from certain classes ( my brother has severe uncontrollable epilepsy as a result of surgery to remove a benign brain tumour) I think people might be forgetting that this is a VERY new diagnosis for the WHOLE FAMILY - not just the daughter - the parents and siblings have all got to come to terms with the diagnosis and work out what the daughter is able to do an unable to do.
Her mother is still in shock probably, and may not fully comprehend that this doesn't necessarily mean that her daughter will never be able to care for herself or carry our certain tasks

as with the diagnosis of ANY illness/condition/syndrome in a "previously healthy child" or seemingly healthy child - there is always a period of almost bereavement for the loss of the healthy child - I think we should all be mindful of this and rather than letting this descend into the usual tirade of what is right and what is wrong
maybe a little understanding of their particular situation would be more useful to the OP.

just my opinion:)

This is why i recommended the OP visited the NSE site,also some hospitals may have a "spahire nurse" who will help.
I dont think arguments about what the DD should and shouldnt be doing are that helpful imho,whats needed at this point is information,sadly there is still alot of ignorance surrounding epilepsy.

kazzah60

woodbine wrote: »

This is why i recommended the OP visited the NSE site,also some hospitals may have a "spahire nurse" who will help.
I dont think arguments about what the DD should and shouldnt be doing are that helpful imho,whats needed at this point is information,sadly there is still alot of ignorance surrounding epilepsy.

as ever John - excellent advice for the OP - hopfully she will benefit from the advice at NSE and also hopefully receive some help and advice from the hospital team ( though I appreciate this may not always be available!)

Joyful

I had absence epilepsy as a child and the only thing I was stopped from doing was swimming. Please op don't be too protective of her and stop her doing normal things like cooking. It may be that as soon as they get the medication right she will have everything under control.

GlasweJen

I don't think it's compulsary to take biology at age 15, a science yes but not specifically biology.

kazzah60

GlasweJen wrote: »

I don't think it's compulsary to take biology at age 15, a science yes but not specifically biology.

not SPECIFICALLY biology - BUT Biology WILL be and IS part of the National Curriculum as a module and as such the daugher will be REQUIRED to take the module whether she wanted to or not.