epilepsy please help

magzy1827

my daughter has been diagnosed with absence seizure epilepsy i have had to tell her not to cook or prepare food incase she hurts herself and she is very forgetfull doctors are still trying to get the right medication for her does anyone know if i can claim any kind of benefit for her due to this would appreciate any advice thx

dmg24

How old is your daughter? How long has she had care needs for?

magzy1827

she 15 and her care needs are just that i wont allow her to cook or use sharp knives just incase she hurts herself she cant take biology or cooking at school either as they think its in her best interst for the same reason she is only having the absences but her general memory is that she is very forgetfull and sometimes is unable to take things in hope this helps

magzy1827

she was diagnosed in june 2010

MrsManda

She may be able to claim low rate Disability Living Allowance for care but only once she's had the problems for three months and is expected to have them for a further 6months.

http://www.direct.gov.uk/en/DisabledPeople/FinancialSupport/DisabilityLivingAllowance/DG_10011731

I hope the doctors find your daughter some relief soon
*hugs*

dmg24

MrsManda wrote: »

She may be able to claim low rate Disability Living Allowance for care but only once she's had the problems for three months and is expected to have them for a further 6months.

http://www.direct.gov.uk/en/DisabledPeople/FinancialSupport/DisabilityLivingAllowance/DG_10011731

I agree, LRC would seem the most suitable award.

OP, it would be worth helping your daughter find coping mechanisms rather than stopping her doing things. In a few years time she may wish to go to uni or leave home, and she is going to be stuck without basic life skills.

magzy1827

thx will have a look

clivejohnson

dmg24 wrote: »

I agree, LRC would seem the most suitable award.

OP, it would be worth helping your daughter find coping mechanisms rather than stopping her doing things. In a few years time she may wish to go to uni or leave home, and she is going to be stuck without basic life skills.

Believe me, n0ot only is this exellent advice, it is fact!

I have been suffering from myoclonic epilepsy since I was 10 years old (im 45 now) And I was wrapped up in cotton wool throughout my childhood. Yes, best intentions and all that, but meet her halfway and let her do these things you mention , but under supervision. Im ceratin she will see that, and like has been mentioned, as she gets older, she will rebel!

GlasweJen

I have unexplained blackouts without warning and completed a science degree, I can't see the rationale behind excluding your daughter from biology when she's having absences?

[Deleted User]

magzy1827 wrote: »

my daughter has been diagnosed with absence seizure epilepsy i have had to tell her not to cook or prepare food incase she hurts herself and she is very forgetfull doctors are still trying to get the right medication for her does anyone know if i can claim any kind of benefit for her due to this would appreciate any advice thx

dla is the obvious benefit,the rate or wether its awarded or not will depend mainly on the care needs she has and this will be dictated by the frequency of the seizures and if she gets any warning of them or not,as absences dont usually last much longer than 20/30 seconds it might be a case of having several a day for dla purposes.
If she does qualify for dla it maybe at lrc or mrc and possibly lrm.
I would suggest a look at the nse site and possibly their free to use forum as well,they can provide great support.
http://www.epilepsysociety.org.uk/Homepage

if they are eventually controlled by medication,or in the case of teenagers they grow out of them then dla would stop.
I would also say with absences that she should be able to lead a "normal"life as long as simple precautions are put in place,in the case of cooking a simple gaurd on the cooker top,and as far as biology goes then supervision should surfice.

as someone with epilepsy(im not an epileptic)i would be happy to give further advice either here or via PM.

[Deleted User]

GlasweJen wrote: »

I have unexplained blackouts without warning and completed a science degree, I can't see the rationale behind excluding your daughter from biology when she's having absences?

Jen it depends on how frequent they are and how long they last,but simple precautions can be taken see above...John