Working and Fibromyalgia - do I qualify for benefit?

shays_mum

ash4becks wrote: »

girls i have a appointment with a physio that knows his stuff about hms/eds etc he deals with people with it all the time up newcastle way do you want me to ask when iam up there but dont no when that will be see what he says

That would be great thanks!

ash4becks

shays_mum wrote: »

That would be great thanks!

promise i will then , but really think you should get a folding stick for now thats my plan for today there only £7 x

shays_mum

I did try ash4becks, it made my hip go out of alignment!, if i need to use an adaption, i think i would need to get it seen by someone, as my upper body strength at the mo esp my wrists, hands etc are really weak .

ash4becks

shays_mum wrote: »

I did try ash4becks, it made my hip go out of alignment!, if i need to use an adaption, i think i would need to get it seen by someone, as my upper body strength at the mo esp my wrists, hands etc are really weak .

ok at least you tryed take it easy, you can get the crutches that take some of your weight on your elbow might be more sutible for you

iam the best i have been in i forget how long but for my breathing, bit of pain and racing heart that will do me for now but my dog needed to go to the vets and iam over the moon i took her myslef via taxi and metro home big step for me felt so good taking her, i did struggle stoping quite a bit but ella was a angel and everyone was loving her as ever so little detour to the petshop, felt so good i wanted to do more maybe tommorow thought think i have done to much today but never mind soon find out

jc2703

Just reading this thread with some personal interest. I have *something* - could be FM could be RA but the Jury is still out! I take co-codamol, Ibruprofen and have recently been presecribed amytriptoline (SP?) which is helping (and I realised how much when i didnt take it one day last week!)

I have had my DLA form since May and after a particularly painful few days last weekend filled the forms in but I haven't posted them yet.

I know this probably sounds silly but I'm embarrassed. I feel by submitting the forms I;m somehow admitting that this 'thing' (whatever it turns out to be) is defeating me and while half the population here (Northern Ireland) seems to be on DLA I'm 'old school' - I work and have done since I left school - taking short breaks when I've had my children and gettin back into asap.

This pain is ruling my life and most days all I manage to do is work and due to the tiredness it's affecting that too. I've also have something called Labrynthitis a couple of times since the onset of pain in June last year which means I've had to be off work and my Boss has no empathy for sickenss!

I would like to qualify for some help if only to help pay for a car parking space at work as currently I have to park upto 100 yards away from the entrance and the walk kills me. pathetic huh? lol

I pick up equipment to monitor my oxygen levels during sleep next friday so I'm hoping they can get some answers and start elimating some of this pain - I'd rather that than claim!

cagneyfan

where do they test for the pressure points. I have pain in leg joints, thumbs and hands, and lower back and coccyx. I realise some may be due to other problems. Plus extreme weariness.

ash4becks

cagneyfan wrote: »

where do they test for the pressure points. I have pain in leg joints, thumbs and hands, and lower back and coccyx. I realise some may be due to other problems. Plus extreme weariness.

http://en.wikipedia.org/wiki/Fibromyalgia#Signs_and_symptoms

cagneyfan

Thanks,

The computer was about to go off at the library so couldn't get everything down. From what I've read I genuinely think I may have fibromyalgia.

Problem is that I haven't seen a gp in 12 years - various reasons, lack of faith, being fobbed off, made to feel a nuisance despite the fact I only ever went when I had to renew my sick note at the time.

I've recently been trying to pluck up the courage to go about the problems I originally had (back, coccyx and foot problems) because over the years I've got worse. Thinking about it, I thought the worsening problems were to do with the complaints mentioned, and I do think some of them are - but after reading up on FM I'm convinced I may have it. But I get in a right flap and don't know how to approach the doctor. I'm sure they hate self diagnosers. But when I looked up the FM site I was so shocked and felt there should've been a photo of me there! So many symptoms that I wouldn't have put together to suggest one particular thing. The extreme weariness for example. I can't move when it happens. If I'm stood up I have to cling onto something. Jaw pain is another symptom. I had to have a splint made. I thought it was because of the stress of my coccyx pain (as I believe this is what is going to have me swinging from a tree at some point). And it may well be that, but it could also be FM. I have insomnia (4am's early bedtime!) Unable to move in the morning.

I bought a fancy bed - individual pocket springs and a layer of memory foam - unfortunately it appears to have amnesia as I'm in agony in the morning. Fell down stairs twice trying to get to the door for the postman. Sorry I'm waffling on now so I'll shut up

Indie_Kid

cagneyfan wrote: »

but after reading up on FM I'm convinced I may have it. But I get in a right flap and don't know how to approach the doctor.

Don't say "I think I've got fibro due to x y z". I think it's better to just say "I'm having problems with x y z and would like some help please". Explain as best as you can the issues you're having - don't just say "I'm in constant pain" - instead say "I have constant pain in <body part>".

I did this, had to show them how far I could move (or not) and they decided what they do from there.