It's STILL tough and not getting better - so how are we coping?

taplady

Slinky wrote: »

If you do get a scooter of your own, could you make it a talking point - decorate it with go-faster stripes, show some of your own personality in the design, try and make it a positive thing rather than a negative thing, that it's giving you back some freedom, but showing that you're still young and with-it?

great idea:T - Mardatha you could Pimp Your Ride;):D

personally I'd use a chair/scooter if it meant I could get out and about rather than be stuck indoors and if it gave me some independence.

Winchelsea

Thank you so much for the poem ceridwen.

It made me cry.

My DH is on his 4th day in the nursing home, and I was THRILLED today to see him flirting with the young care assistants! Only cheeky little smiles and waves, but that was what it was! Recently he's hardly noticed people near him, but I think now he's responding to the high levels of care and attention that he's getting.

Christina_F

Hope this isnt off topic - but does anyone know where I can get cheap muslin for making jams/jellies? I looked in Lakeland yesterday and was shocked at the price - £4.50 for 10 cloths.

mardatha

Taplady, outside my door there is 12 miles of main road one way to the next village - or 15 miles the other way There is also the back road for 20 miles through empty hills to a small town with an (sigh) Ice Cream Shop !.. I think I need a jet engine on the chair !

gailey_2

Christina_F wrote: »

Hope this isnt off topic - but does anyone know where I can get cheap muslin for making jams/jellies? I looked in Lakeland yesterday and was shocked at the price - £4.50 for 10 cloths.

Muslins are for babys boots and mothercare stock them.
Ikea did have some too.
I have tonned but none brand new.
definatly check ebay for muslins im sure you find it much cheaper than 4.50.

if you got boots advantage points could get them in there.
Also im sure larger tescos/asdas or sainsburys stock them too in baby section.

kezlou

parsonswife8 the picture looks so strange, parrots on a cloudy wintry day. So unreal that it could be taken in this country.

Polish people are generally hard working honest people. But they are a certain group where i live who steal from charities which is awful and has a cast a really bad image for the rest of the Polish community who reside here.

Where i live quite close to me are Asian, African, Polish, Chinese as well as large supermarkets. I'm quite lucky as i can generally buy good quality meat for low prices. As well as bulk buy on rice and spices, material if i wish.

Please don't take offence to this comment its just a personal observation. I am in no way considering myself to be disabled not would i ever claim to be.


Okay over the past seven weeks since i've broken my knee i've become very annoyed and withdrawn. People have been tiptoeing around and quite frankly treating me like i'm not there.
For instance two weeks ago i was sat with a few friends with my leg leg in cast and two crutches beside me. All's well with the world, as i was sat in the sun listening to the binds singing in the trees. Dopey sounding i know but i NEEDED to hear nature instead of being laid up in the house to the sounds of cars screeching by. Anyways the waitress looked at me with pity and instead of asking ME what I wanted she asked my friends how i was and what i wanted to eat and drink. Now this may this may sound petty but she was stood right next to me and had to lean across me to speak to them. It really infuriated me.
Another time we went to the beach and i felt like a leper because as soon as i sat down everyone was whispering and looking at me. One person even said she should be indoors not spoiling our day out. Look at the state of her. I was fuming.
I know i'm being over the top but its just awful, people should be less ignorant about others around them.

wigglebeena if your cheeky like me you could always ask them to sliced the reduced bread for you. The staff are generally happy to do it.
slinky had to say to it, what a lovely post you written x
mummysaver have a lovely time in cornwall

WE've been shopping again today, OH took me and my god did he go mad. so were now we've spent fortune :mad:.So were eating out of the freezer again to try and make up for it. Can't really afford to buy anymore food right now .
Took the boys swimming and they loved. Think my OH felt guilty after yesterdays muck about so the boys really enjoyed themselves.Came back to make a full Chinese buffet of spare ribs, chicken, sweet and sour rice and veg. The boys loved cooking it, so were going to make something else tomorrow.

Well night all xx

ceridwen

Winchelsea wrote: »

Thank you so much for the poem ceridwen.

It made me cry.

My DH is on his 4th day in the nursing home, and I was THRILLED today to see him flirting with the young care assistants! Only cheeky little smiles and waves, but that was what it was! Recently he's hardly noticed people near him, but I think now he's responding to the high levels of care and attention that he's getting.

Thats good to hear..one hears so many worrying things about some nursing homes. I'm glad to hear you've found one where they sound like they're "treating him right" and he's happy.:)

ceridwen

kezlou wrote: »

Please don't take offence to this comment its just a personal observation. I am in no way considering myself to be disabled not would i ever claim to be.


Okay over the past seven weeks since i've broken my knee i've become very annoyed and withdrawn. People have been tiptoeing around and quite frankly treating me like i'm not there.
For instance two weeks ago i was sat with a few friends with my leg leg in cast and two crutches beside me. All's well with the world, as i was sat in the sun listening to the binds singing in the trees. Dopey sounding i know but i NEEDED to hear nature instead of being laid up in the house to the sounds of cars screeching by. Anyways the waitress looked at me with pity and instead of asking ME what I wanted she asked my friends how i was and what i wanted to eat and drink. Now this may this may sound petty but she was stood right next to me and had to lean across me to speak to them. It really infuriated me.
Another time we went to the beach and i felt like a leper because as soon as i sat down everyone was whispering and looking at me. One person even said she should be indoors not spoiling our day out. Look at the state of her. I was fuming.
I know i'm being over the top but its just awful, people should be less ignorant about others around them.

xx

Sorry to hear about your experiences.

I must admit that if I had heard someone say I was "spoiling our day out" because of some physical problem I couldnt help (like illness) - that I would have taken a quick look to see if they had a physical problem they COULD help (theres a good chance of that these days....) and made a comment straight back about that.

If they hadnt left themselves open to "physical" comments back - then I would have retorted with one about "SOME of us have been brought up with manners - and, on the other hand, <glare at person concerned> some other people clearly havent" and smiled straight at her and made a great point of demonstrating that I had manners - if no-one else did...:rotfl:

I have heard a lot of remarks from people about having had "Does she take sugar?" remarks made over their head just because they're in a wheelchair - so make quite sure (when someone is) that I treat them exactly the same as everyone else and just take a surreptitious look to see if they need something taken down from a high shelf for them or a door held open. Thats the only difference in attitude there should be. Guess I must look approachable - as I'm the one that gets asked for any bits of help needed in those ways by anyone nearby in a wheelchair...

Think I feel a bit too "creaky" some days myself to follow the example of someone I saw recently - who made sure that they got down "on the same level - face to face" with a person in a wheelchair the other day by kneeling down on the floor beside them (because there wasnt a chair to hand to sit on) - but I thought it was a nice thought on their part.

So - Kezlou - just tell yourself that "some people are obviously pig-ignorant" and forget about them..

mardatha

Yes, its nice to get down to floor level because people in chairs get tired of constantly tilting their heads to look upwards. But if I tried it nowadays I'd end up being lifted up and sitting on their knee !

BigMummaF

A very dear & close friend has to use a scooter & for crimbo we gave him the obligatory furry dice, huge key ring & comical musical 'bell' for his handle bars He likes his cars & has a tremendous sense of humour, & actually found the accessories were an ice-breaker when he met folk he didn't know.

I really am tempted to get in some stocks but have been threatened with having my purse sewn up if I buy anything other than the absolute essentials Admittedly, with four adults & a dog trying to move around our shoe-box of a home & no chance of squeezing in a shelf or extra cupboard, space for storage is my biggest hurdle. I have to use up the tinned stuff we've got as two of The Offspring are a nightmare with bbe dates etc & would rather starve than chow down :mad: but that will mean I can hide some newer bits in the gaps :shhh: