Cfs & life!!!

Indie_Kid

seven-day-weekend wrote: »

You have to have had the care and/or mobility needs for six months (I think) to qualify for DLA, and they must be expected to continue for at least another six months.

To qualify, you only need to have had the care/mobility needs for 3 months.

vikki_louise

hello, i have severe ME, like everyone said try not to push yourself, I really think my ME wouldn't of followed the path it took if i had been diagnosed and told to pace/rest early. Are you a member of any support sites? There are lots like brainfog, foggy friends, island of fog to name just a few

Tiddlywinks

magsiebee wrote: »

. It's controllable now...Hurrah! So there is hope and a light at the end of the tunnel.

How is it controllable? My consultant hasn't been able to offer this assurance so I'd really like to know your source to research this method further. Then I can head towards that light at the end of the tunnel (not the heavenly one, I might add ).

Tiddly

mardatha

At least you've got a consultant LOL ! I got referred first to an infectious diseases consultant and then to the physiotherapy unit ! LOL! After a lifetime of hard work then getting ME & being too tired to get off the couch, physio wass just what I needed ...not !
Will the OP please post and tell us who she is getting on ???

willa

mardatha wrote: »

At least you've got a consultant LOL ! I got referred first to an infectious diseases consultant and then to the physiotherapy unit ! LOL! After a lifetime of hard work then getting ME & being too tired to get off the couch, physio wass just what I needed ...not !
Will the OP please post and tell us who she is getting on ???

Yes, even though the med profession don't understand M.E. yet, they have pulled together and decided that it is treatable with excercise - good old GET (graded excercise therapy). In other words the GET off your @.rse attitude. :rolleyes:

TOBRUK

willa wrote: »

Yes, even though the med profession don't understand M.E. yet, they have pulled together and decided that it is treatable with excercise - good old GET (graded excercise therapy). In other words the GET off your @.rse attitude. :rolleyes:

Not all who suffer with ME can benefit from this therapy. I tried this and I'm afraid it made me much worse.

Paparika

willa wrote: »

"you could apply for dla, but wether you will get that or not is not for anyone here to say, (becuase they won't know) you will find some on here tell you that you won't get it (i have it i have fibromyalgia), you will need DIAL or CAB to help with the forms." - Paparika.

"If you were diagnosed by your GP, see a specialist to confirm your diagnosis - this will help you if you apply for DLA. I was turned down for DLA twice but went to tribunal and won." - TOBRUK

The OP is still working and not on incapacity benefit or ESA yet. This is the first thing to find out about (after going sick from work etc), not DLA, at least as far as I can work out. If anyone has been able to go straight onto DLA, bypassing incapacity benefit, feel free to correct.

Edit: Please see seven-day-weekend's advice above.

http://www.cqdx.gov.cn/Faq/Tax/200909/10128.html

Benefit enquiry line:

http://www.direct.gov.uk/en/Dl1/Directories/DG_10011165

No i was diagnosed by the rheumatoid arthritis consultant, as far as i am aware the gp can not make the diagnosis.

Whilst i was on ssp, i applied for dla, i had a set date before i was allowed to apply for esa, I made it clear i was on ssp and would not be returning to that work.

So yes i applyed for dla, before i appled for esa. you do not need to be on esa to claim dla, it's just the way it came up for me, whilst i was off sick, ssp was less that half my pay, i was fortunate to claim HB/CT to help me, then once ssp ran out i appled for the esa, HB/CT then went to full rebate.

TOBRUK

Paparika wrote: »

No i was diagnosed by the rheumatoid arthritis consultant, as far as i am aware the gp can not make the diagnosis.

After months of being ill (in 1997) it was my GP, after extensive tests (she was seeing me every week over a long period) who diagnosed me but she then referred me to an ME specialist who then confirmed the diagnosis. I am not saying that GP's can or cannot make a true diagnosis but it's just my experience. If she hadn't picked/chased it up and then quickly referred me to a specialist I may have not been diagnosed for a very long time.

Paparika

TOBRUK wrote: »

After months of being ill (in 1997) it was my GP, after extensive tests (she was seeing me every week over a long period) who diagnosed me but she then referred me to an ME specialist who then confirmed the diagnosis. I am not saying that GP's can or cannot make a true diagnosis but it's just my experience. If she hadn't picked/chased it up and then quickly referred me to a specialist I may have not been diagnosed for a very long time.

aww what a lovely gp, mine made me wait and refused to refer me, i had to beg my neurologist to make the referral,if i had left it to the gp, i still wouldn't have a diagnosis. Keep hold of that gp

TOBRUK

Paparika, yes I was very lucky, but I moved from the area and had to register at a new practise. However, I have been extremely lucky once again as my now GP is also wonderful and extremely helpful - I see her regularly (at her request - she wants to see me every 6-8 weeks) and she always tries new medication if she thinks it will help.

She also tests for other illnesses if she thinks that I am suffering a separate illness and has no hesitation referring me to the appropriate specialist. As a result of this, recently a cyst was found on my bowel and am to see a consultant this week.

I have seen other doctors at the practice and they also recognises ME and take it very seriously.