DLA sleep disorders

magicstrawberry

You really didn't read what i said but never mind :rolleyes:

Really hope you get these issues sorted and no im not related nor do i know the other posters and i could go into the immatureness regarding this but really dont want to due to the pain im in atm.

One thing is apparent is it seems to me we all suffer with bad health problems and through this were only trying to give you some advice and not to dictate

Really hope again along with JFKs that your condition isnt serve and can be sorted

Jojo_the_Tightfisted

Could we stop now please?



Point 1. You may be able to claim for DLA on the basis of needing supervision. That will help you fund your search for successful treatment. I personally feel that you are being misled by snake oil salesmen, but if you feel that these things are of assistance to you, then fair enough.

Point 2. Similarly, I would suggest that, for the cost of these medications, you could afford a private referral to someone who is motivated enough to also do NHS work.

Point 3. If you have fallen asleep whilst cooking or had to pull over due to fatigue, it doesn't matter what the doctors say. You have the obligation to notify the DVLA that you may have a condition that they would want to know about. They will conduct investigations and reach a decision. It's up to them to decide, it's up to you to notify them. If someone hit your car, even if it wasn't your fault, and the police realised that you were sleeping/pulled over because you were tired, you could be facing prosecution. Being on benefit (bad though it is) is still a better option that having to live with the guilt of killing someone in an accident or lugging around a criminal record (and having no license)

Point 4. As I am sure you have found, people telling you 'just do this, and you'll be fine' are far too common once you have a medical condition. Unfortunately, whilst allergen elimination may be helping you (but obviously not enough to cure you), it doesn't help everyone. If it doesn't work for them, you may as well tell a diabetic that it's their fault your hayfever tablets don't cure their endocrine malfunction. And people get upset.

Point 5. Refusing to kow tow (I'm personally uncomfortable about the coarse aggression in the phrase you use, but I trust you know exactly what I mean) to others doesn't mean it isn't possible to try and moderate responses. I have upset people before as they have taken my disagreement as being a personal attack, so I'm not suggesting for one minute that I'm entirely innocent here, but I do try to type and then reread before hitting send, just in case I have overstepped the mark. I do feel that you are angry, and I'm not convinced that this is totally due to the content of these posts.

Point 6. Have you considered whether you would benefit from some help to deal with the emotional side of your illness, as to be that tired, under pressure to work/manage at home and still keep going must be hard. Either your GP could assist or maybe a Tai Chi class? Meditation itself may be harder to do without falling asleep, but if you were interested, I am sure you could find something, as you sound as if you are a proactive person.

I hope that you fill in the DLA application and that it is successful, and that your condition can be effectively treated, as it sounds most distressing.

magicstrawberry

Ok STOP THIS RIGHT NOW!

This not fair, you are being just down right horride to everyone who was merly trying to help you and now its not even about the Dla anymore but how much you can get back at everyone and have a go at them? you called me immature but look at your post!

And regarding the "different alias" and "multiply cyber personalities" that just crazy and inrational! for one if you look at the joining times and the posts there all different... and ive posted on completely different things! My condition is completly different and JFKs too!

Jks is there heart and mine is severe arthritis

So just get help please and i suggest to everyone hit the ignore button as this is just down right horrific.

GlasweJen

OP, melatonin is a prescription only medicine in UK pharmacies, the stuff you're buying online is unregulated and probably isn't melatonin at all. Melatonin should only be taken under the supervision of a health care professional due to side effects and knock on effects of other medication.

jennihen

bambammy wrote: »

I have tried. After disputing my B12 injection, malabsorption and other such likes. I was advised to refrain from all supplements for 3 months, and they retested.


~I also approached the private specialist for a test to confirm. Who used the http://www.biolab.co.uk/ The NHS won't supply this treatment because of the policies and political debates regarding the need for treatment relating to symptoms. Where there's rep of the same medication, it's to offer a choice of what one to buy.

Price Enough for
BioCare multivitamins/minerals x 90 capsules (negligible amounts of minerals) @ £18.26 3 months
Igennus VegEPA 60 x 500mg caps (contains fish oil) OR @ £10.93 dose: 8 a day for 3 months
BioCare Essential Fatty Acids caps vegan 120 caps @ £14.38 2 months
BioCare magnesium ascorbate (neutral form of vitamin C) 0.5grams x 180 @ £20.70 45 days
Ascorbic Acid powder (acid form of vitamin C) 500 grams @ £25.00 8 months
(clearly this is far less expensive, but some people do not tolerate the acid form)
Vitamin Research Vitamin D3 1,000i.u 250 caps @ £12.94 4 months
Vitamin D concentrated powder 100g @ £8.97 100 days
Magic Minerals 405gms @ £18.40 approx. 80 days
Solution for Sensitive Stomachs 100g @ £13.80 3 months

Bolt on extras for mitochondrial failure:
D-ribose pure powder – 500gms @ £26.45 approx. 6 weeks
Acetyl- L- Carnitine pure powder – 120gms @ £11.50 approx 2 months
Puritan’s Pride Niacinamide (vit B3) - 500mgs x 100 tablets @ £ 5.75 3 months
Healthy Origins Co Q 10 - 100mgs x 60 gelatin capsules @ £12.08 20-60 days depend on dose
*DIY injected magnesium 50ml, lignocaine 20ml, 100 insulin syringes, sharps bin - @ £46.13 100 days
*DIY injected B12 30 ml, 100 insulin syringes and needles, sharps bin - @ £36.58 2 months
*B12 injection 30ml @ £16.10 2 months
* Magnesium sulphate injection 50ml @ £24.50 100 days
*Lignocaine injection 20ml @ £1.15 approx 100 days
Syringes and needles 0.5ml 10 x 10 @ £18.98
Sharps bin 1 litre @ £1.50
Methocobalamin 1mg/ml 30mls @£36.23 2 months
Methocobalamin 5ml/ml 10mls @£39.33 2 months
Shot-O-B12 sublingual spray @£20.71 80 days
*Magnesium Citrate powder 300grams @ £ 9.20 2 - 3 months
*Magnesium Oxide powder 330grams @ £ 5.75 2 - 3 months
*Magnesium Chloride powder 300grams @ £ 9.20 2 - 3 months
BioCare Magnesium EAP2 Capsules 300mg @ £16.68 1-2 months
*Magnesium Sulphate crystals (for nebulising) 60g @ £11.50 2 months

*Chromium drops x 30ml @ £ 9.20 2 months



Bolt on extras for poor antioxidant status

*Zinc drops x 50ml - @ £11.50 over 6 months
*Copper drops x 30ml - @ £ 9.20 8 months
*Manganese drops x 30ml - @ £ 9.20 8 months
*Selenium drops x 50ml - @ £10.93 over 6 months
*(also B12 injections, co Q 10, A L carnitine)
Puritan’s Pride Glutathione 250mg 60 caps @ £14.95 2 months

Action Against Arthritis (and osteoporosis)
Devil’s Claw 2 gms, Glucosamine 2gms, strontium 250mgs,
boron 20mgs, organic silica 420 mg, vitamin D 5,000iu x 420g @ £27.03approx 80 days
AAA capsules 500mg x 300cap @ £27.60 depends on dose
Osteotrace (Arthrotrace ) 90 caps @ £15.28 30 days




Sleep problems

Melatonin (Puritan’s Pride) 3 mg x 120 caps @ £ 5.75 40 –120 days
Nytol one-a-night caps x 16 @ £ 3.51
Nytol herbal 30 tablets @ £ 4.32
*Valerian x 100 @ £ 6.67depends on dose

Gut problems
Kefir sachet x 1 @ £6.00 a life time!
Hyperventilation

Potassium bicarbonate (Sando K) x 100 - @ £11.50 12–25 daysdep on dose
*Zinc drops as above

Jeez - no wonder you're knackered - are there enough hours in the day to be taking this many supplements?

qwertyuiop12345

JFKS wrote: »

The Hospitals in London are the best in this country for problems, referals can be made by your GP or any other GP you have the right to have treatment wherever you want.

The OP could also consider trying the specialist Sleep Disorders Centre at St. Thomas' Hospital (near Waterloo) - part of Guys and St Thomas' NHS Trust. This is apparently one of the best places for sleep disorder treatment in the world (the National Neurology hospital mentioned by JFKS sometimes refers on to here for sleep disorder cases).

heavensent2_2

bambammy wrote: »

Actually, no. I have downloaded the DVLA application. I have made an appointment to discuss with the doctor advice I have been following from Dr. Sarah Myhill, and I take on board, both positive and negative.

.

Just wondering about Dr Myhill. From your posts am I right in thinking you have been reading her website but that you have not yet consulted her?

heavensent2_2

bambammy wrote: »

I have tried. After disputing my B12 injection, malabsorption and other such likes. I was advised to refrain from all supplements for 3 months, and they retested.

Price Enough for
BioCare multivitamins/minerals x 90 capsules (negligible amounts of minerals) @ £18.26 3 months
Igennus VegEPA 60 x 500mg caps (contains fish oil) OR @ £10.93 dose: 8 a day for 3 months
BioCare Essential Fatty Acids caps vegan 120 caps @ £14.38 2 months
BioCare magnesium ascorbate (neutral form of vitamin C) 0.5grams x 180 @ £20.70 45 days
Ascorbic Acid powder (acid form of vitamin C) 500 grams @ £25.00 8 months
(clearly this is far less expensive, but some people do not tolerate the acid form)
Vitamin Research Vitamin D3 1,000i.u 250 caps @ £12.94 4 months
Vitamin D concentrated powder 100g @ £8.97 100 days
Magic Minerals 405gms @ £18.40 approx. 80 days
Solution for Sensitive Stomachs 100g @ £13.80 3 months

Bolt on extras for mitochondrial failure:
D-ribose pure powder – 500gms @ £26.45 approx. 6 weeks
Acetyl- L- Carnitine pure powder – 120gms @ £11.50 approx 2 months
Puritan’s Pride Niacinamide (vit B3) - 500mgs x 100 tablets @ £ 5.75 3 months
Healthy Origins Co Q 10 - 100mgs x 60 gelatin capsules @ £12.08 20-60 days depend on dose
*DIY injected magnesium 50ml, lignocaine 20ml, 100 insulin syringes, sharps bin - @ £46.13 100 days
*DIY injected B12 30 ml, 100 insulin syringes and needles, sharps bin - @ £36.58 2 months
*B12 injection 30ml @ £16.10 2 months
* Magnesium sulphate injection 50ml @ £24.50 100 days
*Lignocaine injection 20ml @ £1.15 approx 100 days
Syringes and needles 0.5ml 10 x 10 @ £18.98
Sharps bin 1 litre @ £1.50
Methocobalamin 1mg/ml 30mls @£36.23 2 months
Methocobalamin 5ml/ml 10mls @£39.33 2 months
Shot-O-B12 sublingual spray @£20.71 80 days
*Magnesium Citrate powder 300grams @ £ 9.20 2 - 3 months
*Magnesium Oxide powder 330grams @ £ 5.75 2 - 3 months
*Magnesium Chloride powder 300grams @ £ 9.20 2 - 3 months
BioCare Magnesium EAP2 Capsules 300mg @ £16.68 1-2 months
*Magnesium Sulphate crystals (for nebulising) 60g @ £11.50 2 months

*Chromium drops x 30ml @ £ 9.20 2 months



Bolt on extras for poor antioxidant status

*Zinc drops x 50ml - @ £11.50 over 6 months
*Copper drops x 30ml - @ £ 9.20 8 months
*Manganese drops x 30ml - @ £ 9.20 8 months
*Selenium drops x 50ml - @ £10.93 over 6 months
*(also B12 injections, co Q 10, A L carnitine)
Puritan’s Pride Glutathione 250mg 60 caps @ £14.95 2 months

Action Against Arthritis (and osteoporosis)
Devil’s Claw 2 gms, Glucosamine 2gms, strontium 250mgs,
boron 20mgs, organic silica 420 mg, vitamin D 5,000iu x 420g @ £27.03approx 80 days
AAA capsules 500mg x 300cap @ £27.60 depends on dose
Osteotrace (Arthrotrace ) 90 caps @ £15.28 30 days




Sleep problems

Melatonin (Puritan’s Pride) 3 mg x 120 caps @ £ 5.75 40 –120 days
Nytol one-a-night caps x 16 @ £ 3.51
Nytol herbal 30 tablets @ £ 4.32
*Valerian x 100 @ £ 6.67depends on dose

Gut problems
Kefir sachet x 1 @ £6.00 a life time!
Hyperventilation

Potassium bicarbonate (Sando K) x 100 - @ £11.50 12–25 daysdep on dose
*Zinc drops as above

Hi Bambammy, sorry to hear you're having problems. Has a doctor really advised you to take all of those supplements at once or is this a general price list? From your post, I'm not really sure which it is and there is some duplication there which could possibly be dangerous if you took it all. I guess you know that already,