cerebral palsy Help Please

jaffa30

HI LHB

Ive passed the info on to Alan & Liz

Many thanks for to you and everyone for the suggestions and help

jaffa30

Hi All ,

Quick update.........

We have sorted out a raffle at the local Rangers Supporters club on the 3rd jan ( ie the next old firm match ) , so we should raise a good few pounds towards some boots for her

Also i am awaiting word back off the masonic charties but ive ben told we stand a goo chance of getting some help.

Also i was talking to a chap who put me in the direction of this site http://www.children-today.org.uk/ which Alan & Liz are going to apply to ( so fingers crossed on that one ).

Once again thank you all for your help

TashaC

Hi Jaffa,

You can definably get the boots made on the NHS, I have cerebral palsy and have just had my first pair of shoes made at no charge. I was even able to design the boots which was great being a fashion conscious 24 year old! Explain to her consultant that you are having problems with ill fitting footwear, and he/ she should be able to refer you to the right department! Hope this can be of some help!

jaffa30

Hi Tasha, thank you for your help

She does get boots off the nhs but they are slow and she hardly gets any wear out them due to the fact kids feet grow so quick...

They have been on to the consultant and hopefully it will get sorted a bit quicker in the future for her..

All we are trying to do is make sure she is getting all the help that is out there..

Quackers

jaffa30 wrote: »

Hi Tasha, thank you for you help

She does get boots off the nhs but they are slow and she hardly gets any wear out them due to the fact kids feet grow so quick...

They have been on to the consultant and hopefully it will get sorted a bit quicker in the future for her..

All we are trying to do is make sure she is getting all the help that is out there..

Aww, nothing changes

My daughter was wearing NHS boots for the first 14 years of her life...she's 17 now & these are exactly the same issues we have always encountered...

You get fitted for the boots....they take months to come....and hardly last because of that....and then you phone for an appointment...and wait months again....its a very pathetic and frustrating evil circle...:(

Hope you get as much help as you can Jaffa

onetomany

my sons normally take 2 weeks

jaffa30

Thanks Quackers

Iam sorry to hear your daughter has had to go through the same thing as little Taylor....

jaffa30

onetomany wrote: »

my sons normally take 2 weeks

excellent news for your son :T:T:T:T

I wish Taylors boots came as quick , fingers crossed for the future

jaffa30

A very quick update..................

Taylor has been measured with a second skin for her hand and this is ready
the 5th jan

Ive had a letter off one of the masonic charties and they are bring up the application at there next meeting and seeing what help they can do for her..
So fingers crossed they will help

I will let you know how much we raised at the raffle for her in jan, and once again thank you for all your help / comments

Merry christmas to you all

jaffa30

Good morning all

Well we held a raffle for Taylor at the local Rangers supporters club and considering the time of year we raised £300 for the little lass to help towards the cost of some new slippers ( which they are ordering today ) , and som new shoes when she needs them


John