Dr Chris Steele MBE - ITV This Morning

foreign_correspondent

Very little money comparatively is spent on research into MS, especially considering it is the most common disabling neurological condition affecting young adults.

I think the MS Society should be campaigning and lobbying for more research, but I see little evidence of this. Sadly, there seems to be no specific research charity either (a neuro parallel to Cancer Research may be good!)

I think this is a broader issue, and not just about LDN, (which may or may not be proved effective if it is ever trialled), but about further research into the condition and many potential treatments.

Garnet_LDN

Mult Scler. 2008 Sep;14(8):1076-83. Links
A pilot trial of low-dose naltrexone in primary progressive multiple sclerosis.

Gironi M, Martinelli-Boneschi F, Sacerdote P, Solaro C, Zaffaroni M, Cavarretta R, Moiola L, Bucello S, Radaelli M, Pilato V, Rodegher M, Cursi M, Franchi S, Martinelli V, Nemni R, Comi G, Martino G.
Institute of Experimental Neurology (INSPE) and Department of Neurology, San Raffaele Scientific Institute, Via Olgettina 58, Milan, Italy.
A sixth month phase II multicenter-pilot trial with a low dose of the opiate antagonist Naltrexone (LDN) has been carried out in 40 patients with primary progressive multiple sclerosis (PPMS). The primary end points were safety and tolerability. Secondary outcomes were efficacy on spasticity, pain, fatigue, depression, and quality of life. Clinical and biochemical evaluations were serially performed. Protein concentration of beta-endorphins (BE) and mRNA levels and allelic variants of the mu-opiod receptor gene (OPRM1) were analyzed. Five dropouts and two major adverse events occurred. The remaining adverse events did not interfere with daily living. Neurological disability progressed in only one patient. A significant reduction of spasticity was measured at the end of the trial. BE concentration increased during the trial, but no association was found between OPRM1 variants and improvement of spasticity. Our data clearly indicate that LDN is safe and well tolerated in patients with PPM

Lucy_Lastic

Is there anyone out there taking LDN for cancer?

A friend of mine is about to start taking it for his cancer and most of the testimonials I see are from MS sufferers who have found it effective, not much is published on cancer sufferers and their experience with LDN.

Triker

Lucy_Lastic wrote: »

Is there anyone out there taking LDN for cancer?

A friend of mine is about to start taking it for his cancer and most of the testimonials I see are from MS sufferers who have found it effective, not much is published on cancer sufferers and their experience with LDN.

Found this, hope it's of some use.

I'm taking LDN btw but I'm only on my second week .

verynewmoneysaver

I'm hoping this may help my son with his Crohn's disease. I've signed the petition and also written to my MEP about it, as I think his doctors would be reluctant to prescribe it at present. He's taking immunosuppressants at the moment, and obviously there would be less side-effects with LDN.

Garnet_LDN

Lucy_Lastic wrote: »

Is there anyone out there taking LDN for cancer?

A friend of mine is about to start taking it for his cancer and most of the testimonials I see are from MS sufferers who have found it effective, not much is published on cancer sufferers and their experience with LDN.

Here are some resources on LDN and Cancer (remove spaces)
. Take a close look at Dr Burk Berkson's LDN Conference video and radio interview. Both are very informative. He is getting some amazing results with Alpha Lipoic Acid and LDN.:T::beer::T

http:// ldndatabase .com/cancer.html

http:// ldnresearchtrust .org/_ldnresearch/static/ldn_testimonials.asp

http:// groups.yahoo .com/group/ldnforcancer

http:// groups.yahoo .com/group/LDN_4_cancer

Dr Bert Burkson is an integrative MD, PhD. He is in Las Cruces, NM who uses IV Alpha Lipoic Acid and Low Dose Naltrexone for cancer. He also makes dietary and life style suggestions. He has championed the use of the neutriceutical Alpha Lipoic Acid in cancer, liver disease and treatment of other degenerative and autoimmune diseases. ALA is taken orally by many including Hep C patients to drive glutathione production in the liver. Levels
of ALA are high in childhood. It is a free radical scavenger and the rate limiting step in the production of energy from food. It recycles all the other antioxidants including Vit E, Vit C and Glutathione. All processes in organ regeneration after traumatic events such as heart attack. Restores T Cell function and modifies gene expression
in cancer. Also a heavy metal chelator, particularly combined with DMSA (Andrew Cutler's oral protocol).

This Blog Talk Radio Interview is very informative on his background and treatment protocol.
http:// www.
blogtalkradio .com/Mary-Boyle-Bradley/2009/07/31/The-Mary-Bradley-Show

Here is one of his video presentations from an LDN Conference with before and after CAT scans of end stage cancer patients he has treated.
http:// glasgowldn2009 .com/2009/04/ldn-conference-video3/

And a catalog of LDN videos from various conferences:
http:// www. youtube .com/user/TropicalDawg

Outdoorlass

Hi

I have signed the petition, I al slos sending it to everyone I know and have cross-posted it on other forums I use.

Thank you, I have a sibling with MS and a daughter with ME I am also in limboland atm with either a neurological illness or a muscle disease.

Lucy_Lastic

Triker,

Thanks for the info. I would be interested in knowling how you get on - would you be happy to PM me?

Garnet,

Thanks for the info, I will have a look at that today.

Triker

Hi Lucy, I'm taking LDN for an M.E. Chronic Fatigue Lymes Disease type conditon.

It was prescribed to me by a specialist whom I had a consultation with.

I'm on week 3 and whilst there are improvements, it's early days and the antibiotics I'm on tend to knock me about a bit.

The first night I took it along with my antibiotic I woke up the next day feeling 'normal', it was wonderful and that day I was able to do more than I had for months. My situation is a bacterial infection which has rendered my body in an exhausted state as it is a chronic infection. I believe in my case, the LDN and antibiotic gave my immune system some relief from fighting the infection and thus released 'energy' for me, if that makes sense.

I have some friends with cancer and have suggested that they look into LDN as there is a lot of evidence to show positive results with usage.

I also told my Dad about it as he has MS.

zztopgirl

Lucy_Lastic wrote: »

Is there anyone out there taking LDN for cancer?

A friend of mine is about to start taking it for his cancer and most of the testimonials I see are from MS sufferers who have found it effective, not much is published on cancer sufferers and their experience with LDN.

I actually found out about LDN from a lady with secondary cancer who was taking it, it was really helping her, she felt quite well and able to live a normal-ish life, drink alcohol, etc. It was also keeping the tumours stable which was absolutely brilliant. Obviously she was spreading the word to anyone who would listen, but its just a shame that its a taboo subject with some people, I spoke to a man whose wife had just died and he wished he had known about it, if only to extend her life a bit longer. I havent spoken to this lady for a long time so dont know how things are going.

My oh is going to the doctor next week to ask about LDN, have everything crossed and am praying and hoping and everything that the gp will agree to prescribe it, he has severe FMS and heart disease. If its doing wonders for my dad, then hopefully the gp cant refuse him, anything is worth a try and its better to have tried it and see if it does work or not, than never to try at all.