Help with filling out DLA form

harry7075

kingfisherblue wrote: »

I think that the above question is directed at me - if not, I apologise. Yes, I receive high rate care and mobility. In addition to DS, my son was born with a number of rare conditions that required surgery at birth. These have left him with additional needs that are not directly related to DS.

Good I'm glad the young un gets what he so rightly deserves.

kingfisherblue

harry7075 wrote: »

Good I'm glad the young un gets what he so rightly deserves.

Thank you.

FWIW, I help other parents to fill out the DLA forms if they need help. Many people are scared by the amount of information needed, and some do not consider the amount of additional care that a child needs, as it is something that we, as parents, just get on with. I am very involved in the area of children's disability in my area, and believe that parents should support each other. There are many things that I am not good at, but form filling is my forte and if I can help somebody, I will.

harry7075

My niece was severely disabled, unfortunately passed away. She was initially refused DLA. Her parents took it all the way to an appeal panel. Sometimes I'm convinced the DWP and its forebears are ran by badly trained chimps.

kingfisherblue

harry7075 wrote: »

My niece was severely disabled, unfortunately passed away. She was initially refused DLA. Her parents took it all the way to an appeal panel. Sometimes I'm convinced the DWP and its forebears are ran by badly trained chimps.

I'm sorry to hear about your niece. Having DLA refused when it is a genuine case must be really difficult, adding to the stresses of bringing up a disabled child. It's hard enough as it is, without further battles - especially those that shouldn't occur in the first place.

My friend has a son who has complex needs. he requires a great deal of care both day and night, and also has mobility problems !!! well. He went from high rate care and high rate mobility to zero for both. The headteacher at his school had provided an inaccurate report, causing the DLA to cease completely.

She too appealed. It took eight months and she was awarded HRC and HRM with the full amounty backdated. Although her appeal was successful, she should never have been placed in that position in the first place. It caused great strain on her and her family, not only financial, but emotional as well.

I believe that some parents give up as they cannot face another battle. Well done to your relatives for going to appeal. It must have cost them a great deal in terms of energy, stress and emotion, at a time that was already difficult for them. i can't imagine how they must have felt.

As for the DWP - well, I was once asked when my son would be cured of DS!

alison-64

Hi,you should get middle disability for your child,my grandaughter has Downs and my daughter gets that for her,but the mobility part you cant claim till they are 3 x Also use The Family Trust Fund for grants that are non repayable :-)