Autistic daughter, what do I do now?

hundredk

C_Mababejive wrote: »

Well if you can do sums,its a similar ratio to yours..:rotfl::rotfl::rotfl:

I can do that.:D
Same goes for average posts per day...easy to have that figure over a few days as a new user but to not so easy to maintain over a longer period if you are a troll. Come back in a few months with your impressive thanks ratio;)

DX2

C_Mababejive wrote: »

Well if you can do sums,its a similar ratio to yours..:rotfl::rotfl::rotfl:

Were we talking about my posts? or my thanks?

You seem to enjoy making wild inaccurate posts just to get a reaction. :rolleyes:

seven-day-weekend

My son's girlfriend was diagnosed with Aspergers Syndrome at University and she now claims DLA. She also works for 30 hours a week.

My son also is on the spectrum (AS) , but has never been formally diagnosed as AS was not known of when he was younger. He is 29, claims nothing and has learned various coping strategies as he has got older, but still has difficultiers and personality traits that others do not.

If your child needs more care and attention than the average three-year-old, then you should apply for DLA. Ask a Welfare Rights Advisor at the CAB, or another professional, to help with the form.

sad_dog_lady

my sonwas non verbal till 6, he has asd and ocd and learning delay, he is now 18 and young animator of the year 2004 had a poem published in young minds book of poems 2005 and has a painting on display at the royal albert hall after winning a comp against all normal and some special people of the uk, he has done two years of college and gets lots of support, when i think back to him age 3 when his diagnosis came in, and what he is now achieving, i still am amazed, fight for s.e.n education at specialist schools and you will not be sorry, my son is very chatty and people now dont realise that there is much wrong excccept he wears gloves. dont dispair just argue for best provisions possible and aim for the stars. huggs

Indie_Kid

simbalou wrote: »

All questions that I wanted to ask came to me when I got home so now I don't know what to do

I'm sure some people on here could help; or do NAS have any way for you to contact them?

nigdeb2002

School won't help at all as she seems to be coping fine there. The school holidays set her back due to the lack of routine. They only give extra support to badly behaved children it seems. My dd excells in some things (word recognition, numbers etc) and surely this could be encouraged by extra help?

This seems to be the same where i am too. I have been told it from the headteacher from my 8yr olds school as he is being assessed for autism. The school agree he has the 'difficulties' of autism, he needs help to keep on task in most things he does in his home and school life but with him being a bright child keeping up with his work with NO behavioural issues then he wont get a statement!
It is frustrating as he needs the help ... behaviour issues are always adressed .. have had 2 statemented very quickly because of them .. and this young man will get no extra funding for help till he develops behaviour issues which i certainly dont want him to do!!

System

Breast_Cancer_Survivor wrote: »

Hi Simbalou,

My eldest son was diagnosed at 11 despite being described by his teacher as being "socially imature" when he started school at 4.

this is exactly what happened to my daughter and after years of struggling through we finally got closer to a diagnosis today , ive been told she has severe dyspraxia and "some form " of autism . she also has hard to control epilepsy and is being tested for R20 . we are about to get her statmented so she can attend a special school. i must admit i thought it was ludicrous being told my 4 yr old was imature but now at 12 yrs old she is a beautiful kind and compasionate young lady.

Indie_Kid

nigdeb2002 wrote: »

with him being a bright child keeping up with his work with NO behavioural issues then he wont get a statement!

Appeal against this. Being a bright child shouldn't prevent him from getting a statement - a friend managed to get statemented (completely different needs) but is bright.

obsessed by asking same questions

I have a friend who did this a lot and I thought that it was just because he'd forgot what I'd told him - I have the same habit too.:o Did find out several months ago that he is autistic.

Vicky123

My 14 yr old has autism [hf] he does have moderate LD's also but no behaviour problems at all he has had a statement since he was 4yrs old.
Over time though I have seen his problems overlooked whilst all the attention and help is given to children with EBD and learning difficulties which are not the same as my sons learning disabilities.
Vicky

simbalou

Thanks for replies, I always feel alone when I deal with stuff like this. I never feel like anyone else is going through it.

Have had a phonecall from dwp this morning to verify 2 questions on the form, I'm pretty sure I said what I had already written down on the application but I started doubting myself as soon as I put the phone down and was worried they'd think I was a fraud if I didn't answer exactly the same.

Also had a visit from the Health visitor about dd picking her nails and skin off her fingers and she put my mind at rest but she did mention dd school. She also said that any child that is diagnosed ASD will need some sort of extra support at school and was pretty mad that my daughters school seems to be lacking in that department. I would love to swap schools but my son has different difficulties and I know the school is right for him but I don't know how I would logistically manage with my kids at 2 different schools.

DWP said I should hear from them in the next few days regarding a decision, they only wrote to my GP because the consultants report was late in arriving. So, fingers crossed. Thanks again for the replies, I'll post the decision on here so anyone else in my position can see.