Daily Chat Wednesday 20th May. Happy Birthday InkyCats!

becky_rtw

Toto - wow thats a really tough one - long term application of antibiotics can be very dangerous and usually the NHS waits until there is a body of evidence before being able to approve treatments via NICE...however, that doesnt seem to stop them rushing through expensive cancer drugs but I guess their thinking is if the patient is going to die anyway then long term risks arent really a problem...

Very difficult - could the person not get a private gps appointment and take the reports along and discuss it with them (not in the practice somewhere else) and see if they will read the trial data and then prescribe??

Although, I've taken stuff to my GP before to read re: new treatments and stuff but obviously they cant prescribe it because its not approved...

I would do it and give to child A on a very trial basis and monitor - but then there's the question of what happens if something goes wrong will the NHS still treat Child A??

Sorry that doesnt help at all does it

scaredy_cat

They could possibly see another GP in their area, Toto? Who might be more inclined to help?

Toto

becky_rtw wrote: »

Toto - wow thats a really tough one - long term application of antibiotics can be very dangerous and usually the NHS waits until there is a body of evidence before being able to approve treatments via NICE...however, that doesnt seem to stop them rushing through expensive cancer drugs but I guess their thinking is if the patient is going to die anyway then long term risks arent really a problem...

Very difficult - could the person not get a private gps appointment and take the reports along and discuss it with them (not in the practice somewhere else) and see if they will read the trial data and then prescribe??

Although, I've taken stuff to my GP before to read re: new treatments and stuff but obviously they cant prescribe it because its not approved...

I would do it and give to child A on a very trial basis and monitor - but then there's the question of what happens if something goes wrong will the NHS still treat Child A??

Sorry that doesnt help at all does it

Actually it is quite helpful (for the family in question )

The funny thing is that this antibiotic is used for acne and skin conditions, if the child developed acne the GP would have no problem with prescribing it. Funny how it all works isn't it. I'm guessing that someone somewhere had this particular disability and developed acne which is how all of the research started in the first place.

(Land_of)_Maz

Does the trial indicate how long until the usage gives results...

I would say that a 3-6 month self medicating trial would be wise. Just that child A should be monitored carefully....

Relocating at a cost of 1/4 million would be a last resort IMHO. Unless relocating was on the cards from other perspectives, work etc.

sammy115

Toto, given that it is prescribed for acne and such I would self medicate....(to my kids of course) whilst keeping an eye on said child..

Horace...my money won't get me far! I mean I only have two weeks of being chained to an office desk 3 times a week....after that I will be chained to my OWN office desk 5 times a week instead of just 2.....meaning I can dictate what I do and when....

becky_rtw

Toto wrote: »

Actually it is quite helpful (for the family in question )

The funny thing is that this antibiotic is used for acne and skin conditions, if the child developed acne the GP would have no problem with prescribing it. Funny how it all works isn't it. I'm guessing that someone somewhere had this particular disability and developed acne which is how all of the research started in the first place.

Re: acne current treatment is usually topical antibiotics (I have it cause I is spotty ), I was thinking mostly in terms of stomach problems with the broad spectrum ones but I agree that a trial and seeing if it helps may be very useful...

Is there anywhere forum for disabilities like child A's and have any other parents there tried it also?? Might be worth an ask or at least the parents could document what happens - diary is a good idea

InkyCats20

Sally / Ellidee / Horace

I got this one: -

http://www.bhs.co.uk/mall/productpage.cfm/bhsstore/831372

but it was LouiseJ who originally posted the link (or a piccie) & I really liked it & was really pleased when I got to BHS it had been reduced to £35

(Land_of)_Maz

InkyCats20 wrote: »

Sally / Ellidee / Horace

I got this one: -

http://www.bhs.co.uk/mall/productpage.cfm/bhsstore/831372

but it was LouiseJ who originally posted the link (or a piccie) & I really liked it & was really pleased when I got to BHS it had been reduced to £35

lovely mac!

but i'd probably look like a flasher in it!

InkyCats20

Ooo - er Maz ! :rotfl:

Lucifa73

We're back! He seemed to quite like it, although he was very tired at the end and started crying. He zonked out pretty much as soon as I put him in his pushchair!