Anyone else have an undiagnosed illness?

Francesanne

Guapa1 wrote: »

Thanks for replying.
While yesterday I went to the doctors and promptly burst into tears. I could hardly walk, and told him that with no painkillers, nothing has changed. I also had a the award letter I got when I went to tribunal for a benefit.
It said I needed further investigation.
So he has put my name down for an mri and sent for loads of blood tests including the one for AS.

I know this is going to sound really odd, but I'm really hoping they'll find something.
There has to be an explanation, there just has to be!

Can understand what you mean. I've had endless blood tests, ultrasound, CT scan, you name it and I've had but still have unexplained pain for over 3 years. My GP thinks it may be Fibromyalgia. Feel that because all my tests have always been negative that friends and family think all my problems are in my head but I know how much my body hurts and it's certainly not imagined. I hope you find the cause of all your pain. Wishing you well.

susie40

I know exactly how you feel I had surgery for acid reflux in september last year it had to be open surgery (was cut from the breast bone to the belly button) have been in constant pain every since. For some reason since the surgery it also effected my left leg and I now cannot walk very far and am in constant pain. I lost my job and now work from home part-time with the tens machine going full blast and hot water bottles to help with the pain. I have broken down several times because I cannot see a way out of this miserable pain. Am due to see pain specialist at the end of the month so hopefully that might help.

Was just turned down for disability yesterday so will have to contact my cab to appeal now.

Crazy_Jamie

Guapa1 wrote: »

Crazy Jamie
I haven't seen a consultant yet, it's at the end of the month. I was all excited when the solicitor told me, as I thought it would mean an investigation, but he said it's just to write a report.
It happened last January. I'm claiming my loss of earning back from work.
Get blood test results on Wednesday.

It will be to write a report, but it will be a legal report and he will do his best to diagnose you and give a prognosis within it. If he fails to do so for whatever reason he will suggest further steps that need to be taken in order to diagnose you. So don't lose hope entirely with regards to that. It is a positive step.

Guapa1

Aww thank you all for replying. I wish you all didn't understand though, I hate to think of others feeling this way. The blood tests results are today, and I've been worried so haven't slept properly. I really don't know what I'm going to do if they are clear.

I've been reading a little about fibro, but there doesn't seem to be a clear cut way to diagnose?

Guapa1

blood tests are fine.i'm devastated. i know i should be happy, but i want a cure so badly. doc said fibro is a general term? he's put me on the urgent list for mri. my lefft reflexes aren't as responsive as the right. going to try and sleep now. sorry for the awful grammar will edit when feeling a bit better.

black_paw

hi glad the blood tests are fine , even a more worry for you. i have fibro, and mine where fine, it's a great pain not knowing whats wrong to they tell you . i had tests up near harley street london , with a proffersor, who said fibro and also in dorset.yes spelling is terrible aswell snap !

Cheeky_Chicken

I know how you feel - I finally got a diagnosis aged 30 for a condition I'd been born with. My mum says she had me to hospital lots when I was a toddler as I'd wake from a deep sleep screaming with pain, & she was told she was over protective & I was doing it for attention!

When I was finally told I had HMS, I was given a leaflet, & I couldn't stop looking at it. I finally had a name for what was wrong with me! I almost didn't care that there was no cure or quick fix and I wouldn't get better - I was so relieved to finally have an answer when people saw me in a wheelchair and asked what was wrong with me!

black_paw

i agree it's nice know so you can tell people

tiggersue

Sorry to be nosey and daft but what is HMC?:huh:

sunnyone

Do you mean HMS?

If you do it hypermobile syndrome, we are very bendy and our joints dislocate all the time.

sunnyone