Back problems/arthritis

pippin49

I would change claim to Incapacity benefit or esa as its now called.

HopeAndDriftWood

Will they allow me to do this with no official diagnosis?

max2009

Inconclusive meaning they found nothing wrong with you via the blood test.I find it very strange nobody will do anything for you.

HopeAndDriftWood

Actually, the tests were inconclusive because the metal in the bottom of my spine distorts results.
Thank you for your earlier advice, but I will go and pester my doctor again, i did not post to be criticized.

McKneff

anniehanlon wrote: »

Do you live with your parents, are they supportive of you.
Do they give you any encouragement about seeing your GP

any response to my earlier post

HopeAndDriftWood

I dont live with my parents, and they are not supportive at all. They used to be, when i was younger.
This is another reason i find it hard to get diagnosed, i am two trains and a bus away from the children's hospital, and they dont seem to really care. They say that if physiotherapy dosent help ill need more blood work, but this never happens.

Hospitals are frustrating at the best of times, they seem to think that because my parents no longer accompany me they can just mess me around. Thank you for your kind response, though.

max2009

I am not criticising but find it crazy they will do nothing for you.

Loopy_Girl

SaucySecrets wrote: »

Hospitals are frustrating at the best of times, they seem to think that because my parents no longer accompany me they can just mess me around. Thank you for your kind response, though.

Then you need to stop them 'messing you around'. You are 18 and therefore should be able to assert yourself particulary where your health is concerned.

Have to say that your posts do confuse me....one minute you are looking for a crisis loan for the 'perfect' flat you have found, back payment of rent for a friend and are due a hostel back rent and then you say you have been staying with your boyfriend since you got thrown out by your parents - why would you be sleeping on the floor in your boyfriends house especially since you were staying over 4 nights a week before you moved in. Don't they have beds?
You also had a big idea for setting you your own business and now you say you can't get out of bed some days....but have previous claimed that you can't afford to live on JSA.

It could be the slightly cynical side of me coming out here but I do get very confused with your posts.

If you are living with your boyfriends parents as you claim then I fail to see what the CCG would be for

HopeAndDriftWood

Ill try and sort this out. I was kicked out on 1st January. My parents have used several excuses since. My boyfriend picked me up, because it was midnight, and i stayed her that night. I went to the council the next day, and was told that i would not get accommodation if i stayed at my boyfriends, so i went into a hostel for two weeks. Then i couldnt afford to stay there anymore. I was supposed to be paying for the hostel via a crisis loan, but the cheque was always 'in the post', and never came. The hostel said i would have to pay them before i could stay any longer, so i had to come back to my boyfriends. The council then recommended i looked into getting a private flat, as i wouldnt get a council one very soon, and i found a pretty perfect one round the corner. Was again told that a CCG and crisis loan would help me afford it, on the basis of being rehoused by social services rather then being taken home, which is the usual practise round here. My friend paid £200 for some of the deposit, and my boyfriend paid £180 for credit checks, etc. Still didnt receive any money, apparantly the social fund is currently 5 weeks behind. Obviously, the agent wouldnt hold the flat for that long.
Had to go back to the hostel after that, because my boyfriends sister had a fight with her flatmates and came home. I had been in her room. The hostel agreed to take me for the night, but no longer without the council confirming i would get housing benefit. The council wouldnt do this, they said it wasnt 'best practise'. Came back to sleep at my boyfriends, like i was before, but his sister has now taken the spare bed, and i cannot claim housing benefit if i stay in my boyfriends bed.
Luckily my business idea is something i can do without moving too much, so i dont think my 'condition' will affect that. At least, i hope it wont.

With regards to the hospital, i know that i should demand more, but i never seem to get anywhere doing it. I tried with the council, and the job center, and got nowhere, and i find it really disheartening. My mum was always the one who caused trouble, and got things done, so i think the hospital are just glad that they dont have to deal with her anymore.

The CCG was apparantly awarded, because i cant stay here long term, and is supposed to be entering my bank account. When, and if, it ever does, i will be able to pay the deposit on a flat with it, or i will give it back, but ill have a meeting with an advisor first.

Id like to thank everyone for trying to help, and Max2009 if you werent criticizing then i am sorry, i am just so fed up of nobody believing me. It took me being in agony in hospital for a week for the staff to even look at me, before that they tried to convince my parents it was 'normal growing pains'. They've admitted that there is something wrong since, but they dont know what, and that was nearly 8 years ago. They still havent officially diagnosed anything, and instead just offer physiotherapy and massage twice a week. Which while sometimes, but rarely, it can help, i want a diagnosis!

Loopy_Girl

Well I know you don't get on well with your parents but you maybe need to start being a wee bit like your Mum!!!! Make your voice heard.

Both my parents have many many health problems and have each been in hospital several several times over the past 4 years (in fact my stepmum is in again very ill) and I think I may be like your Mum - I make sure things get done and make sure I get answers and get kept in the loop.

My Dad sometimes gives me a row for being too gobby but secretly I think he is glad sometimes I am the way I am as I don't put up with fobbing off.

A prime example of this is a couple of years ago I took him up to A&E as he was in the most terrible pains in his leg. A Dr at A&E tried to get me to take him home to 'sleep it off' with some painkillers. I told her in no uncertain terms that there was no way I was taking him home as he was in agony and I wanted something done. Turns out the anti-biotics he was on has reacted with his warfarin and he had a HUGE blood clot in his leg and was in hospital for 3 weeks.

DON'T let them fob you off. You are an adult now living away from home and as such you have to sort your own problems out. If you don't want a diagnosis then don't keep pestering them. If you do then get it sorted out. You don't have to be rude about it - just be polite but very firm and ask for timescales and what will happen next if the course of treatment they are offering doesn't work.