Ankylosing Spondolitis.

mspig

Hi, my mum has it and was diagnosed around 20 years ago, the last couple of years though have been really bad(she also has fibromalagia), she gets constant pain, headaches, can't use her arms properly so struggles with normal tasks such as making a brew etc.
Not sure what tablets she is on but i know she has a cupboard full of different ones she has to take daily.

saffiedale_2

it is a vile thing:mad: . i could cry at what you last 2 have said. i feel like my life as ended.:eek: i dont mean to be a cry baby, honest. i have fused so much that i carnt wipe my own bum .:eek: :eek: :eek: and i carnt stand feeling so ill.:rolleyes: and i too can hardly swim, im out of breath cuz of chest fuse. there is not enough known in this country, americans are realy up on it. that doc of urs is a t. at.:mad: is he a woman, does he have the pain? i know how i feel.:eek:

saffiedale_2

hi all. hope the stiff necks arnt 2 bad?:eek: my joints just apear to be getting more stiff.:mad: and trying to bend his hell. used to love to get to my bed for my bones to stop hurting so much. now its just as bad gois to bed?:mad: :mad: and i cannot get comfortable at all. and when the fibro starts 2 then i hate my husband to be in the bed.:rolleyes: i keep tell the poor devil to shift.try telling a unconcious 16 stone male to move aint easy.:o carnt wait till18th hope to get my enbril just after?:j

stef240377

After seeing Sam last week we had a fone call yest to say swapping funding has not been a problem and it was just down to healthcare at home to contact regarding delivery of enbrel. They rang to day but missed the call so it should be any day soon. I so hope this works for my partner as the curvature in his spine is getting worse and the agony he is in is unreal, i have every sympathy with all you other suffers.

saffiedale_2

hope i get it next week??????????

matelot123

I hope you get it too saffie.it workd really well for me and I was sorry to stop taking it as it made such a difference.right now, my hips back and that bit between the shoulder blades is really painful and tight so typing with difficulty lol.Let us know about your enbrel.I think it comes ready made now.when i was taking it you had to spend a bit of time mixing it all together and gently spinning it round to make sure it got properly mixed together. it was a right kerfuffle so i hope it comes ready mixed now

saffiedale_2

:rolleyes: i just hope it does help? carnt feel much worse.:mad: im sick of waking up most of the night cuz my joints hurt and are soooooooo stiff.:eek: :eek: be awful to feel better and then come off it.:mad: :mad:

saffiedale_2

matelot123 wrote: »

I hope you get it too saffie.it workd really well for me and I was sorry to stop taking it as it made such a difference.right now, my hips back and that bit between the shoulder blades is really painful and tight so typing with difficulty lol.Let us know about your enbrel.I think it comes ready made now.when i was taking it you had to spend a bit of time mixing it all together and gently spinning it round to make sure it got properly mixed together. it was a right kerfuffle so i hope it comes ready mixed now

comes mixed.:j :j

stef240377

After receiving a phone call last week and at least 3 days since trying to get a call back my partner has finally got his delivery of enbrel due on thurs. It is pre-mixed but totally different to the pre-filled Humira so this one will take a lot more getting used to. I hope as MATELOT said it works so well and a relief in pain found (i know it wont be dramatic but anything is an improvement).

saffiedale_2

i dont know if the rest of you guys are like me? awake nearly every hr with stiffness and pain.:mad: i cannot go than more than hr and half without having a wee.:o but serious your hurting and need to move but the pain dont want you out of bed so much.:eek: they recon that i will only have to see dr price tom and that should be it?:eek: neva that easy for me....:rolleyes: