Family Fund

marsupial_mama

Since you have to blend his food and store it, perhaps looking at efficient foor processor and/or smoothie maker (if you need them) would be an idea? Also, a good quality freezer food containers if you need them?

Just my suggestions

cymrubaby

marsupial_mama wrote: »

Since you have to blend his food and store it, perhaps looking at efficient foor processor and/or smoothie maker (if you need them) would be an idea? Also, a good quality freezer food containers if you need them?

Just my suggestions

Very good suggestions which I probably wouldn't have thought of but luckily I have an excellent food processor. However, I will have to invest in plenty more containers for his food.

FF contacted us again to ask if we wanted anything else and in the end we opted for days out. The award came through a few weeks ago and we went to Bristol Zoo and still have a bit of money left over to go a children's petting farm that's not too far away from us .

starchild1972

<H1 class=pagetitle>Family Fund definition of severe disability

To meet the Family Fund definition of severe disability, children and young people must have additional complex needs, or have a serious or life threatening illness.
AND
There must be evidence that the child’s additional needs impact on family’s choices and their opportunity to enjoy ordinary life; and the degree of planning and support required to meet their needs is much greater than that usually required to meet the needs of children and young people.
AND
They must require a high level of support in three or more of the following areas:

• The physical environment
• Education
• Communication
• Access to social activities
• Personal care, supervision and vigilance
• Specialist resources, including Information and Communications Technology, required
• Medical or therapeutic treatment and condition management

AND
The child’s condition must be long term or life limiting. By long term we mean lasting or likely to last 12 months or more.

</H1>
http://www.familyfund.org.uk/page.asp?section=00010001000100050005&sectionTitle=Family+Fund+definition+of+severe+disability

kingfisherblue

Glad you enjoyeed your day out, Cymrubaby. I didn't apply to the Family Fund last year as I was under a lot of stress due to a difficult divorce and it would have meant yet another form to fill in, but this year I applied online. We weren't as lucky as you, though. I requested three items (as advised on the online form) and received only the first item. Mind you, it was very quick - less than a week from filling in the form to receiving a decision!

onetomany

ive had great help from the family fund driving lessons etc, but im the same only applay for what i need i know someone who clamied alot for toys etc holiday etc and kept for her self,

fkelanne

hiya all, my son gets high rate dla, he has hydrocephelas sorry cant spell it.
What can i claim for, he is alot slower then others his age, and i have to get up through the night to change where his head lies. Hes just started to walk hes gone two in jan. I cant see want i cant claim for, some toys that would help with his development would b nice but cant think of anythink else.

sweetcheeks32

I have claimed through the family fund and i am currently awaiting a decision, have been informed it could take up to 4 months because they have alot of claims to deal with at the moment and deal with them in date order.
My son has down syndrome and receives middle rate personal care dla, which he has recently been awarded and its a great help, enjoyed a day at the national space centre last week with his brother whos 8.:D

Broken_hearted

Saddened that someone took extra money just because they could and wasted it on days out. Now someone in need is going without, in the current climate every penny charities have is harder for them to get.

onetomany

fkelanne wrote: »

hiya all, my son gets high rate dla, he has hydrocephelas sorry cant spell it.
What can i claim for, he is alot slower then others his age, and i have to get up through the night to change where his head lies. Hes just started to walk hes gone two in jan. I cant see want i cant claim for, some toys that would help with his development would b nice but cant think of anythink else.

think you should writre down hun what you think will help him, ive had driving lessons frome ff because my son was to heavy to carry, might ask for help towards swiming lessons this year,take care x

onetomany

savemoney wrote: »

Yes I hear about it last year but the ages limited was 16

She only officially got dla last Jan when she was 16

hi just to let you now the age has incressed tp 18 http://www.familyfund.org.uk/ hope this helps