being ignored by nhs- please help

freebie_junkie

im just phoning them, now.

i wonder if its a skin patch test or similar?

MonkeyGirl

Don't know but if you find out let me know. Thank you

melancholly

I had issues with my diet, and after no help from normal medicine (and a particularly unfriendly GP who told me that other people were worse than me so to feel lucky!) went to see a kinesiologist after a friend recommended it. It's not cheap, but after cutting everything out of my diet (from wheat and gluten to citrus fruit, dairy and most veg!) and taking supplements, then gradually re-introducing things, I can now eat everything. It's not guarenteed to work, but when I was having food poisoning symptoms 3 times a week I couldn't cope with working so had to do something. I can now eat everything in moderation, which is much easier for me and friends/family - it might be worth a look?

I can also kind of understand why the NHS don't pay - there are far too many people (me included!) who have problems to be able to pay for them all..... They just can't afford it....

cougar_3

I know someone that tried cutting things out, reintrodcing them and just about everything, but when they went on holiday, the situation improved. After some 'hypnosis' (not trance just psycological), the problem is completely gone. The doctors said lactose intolerance, but even with no lactose, it was still there. you should try hypnosis if you still have the problem after cutting out other things.

freebie_junkie

my dads a hypnotherapist and some people cant be 'done' im one of them! he tried to stop my nail biting (started on my first day of school at 4) when i was 13, twn years later, still got stumpy nails!

the NHS direct said someone would ring me back from their health information team but they didnt, ill try again tomorrow

suki1964

I may be out of order here, but why do you think the NHS should be giving you free gluten free food just because you have an intolerence of wheat?

Its an intolerence, not life threatening. Im intolerent to many foodstuffs, but Ive never gone asking for prescriptions, I like so many others have learned to live with it and avoid the foods that upset me

freebie_junkie

may i refer you to the post i made regarding how my dieticain explained it to me. continuing to eat wheat and gluten will considerably incread my risk of bowel cancer and colon cancer.

gluten intolerance is a sliding scale, with fully blown coeliac disease at teh end. my dietician told me to think of coeliac disease as number '10' and she put my symptoms at number '7' as before i stopped eating wheat and gfluten i used to have to literally sit on the loo for 3-4 hours a day.the rest of the time i suffered from debilitating cramps and spasms.

plus it made my hygiene OCD 10 times worse, (since my loo problems have stopped my OCD has gotten much much better)

so can i please ask you to explain if teh job of the NHS is to alleviate suffering by helping people who cannot otherwise afford such things that will assist that by providign them reduced or for free why shouldnt i ask for my special foods on scrip (which i get for free)

if your argument is taht you should avoid these replacem,ents why shoudl coeliacs get them if i dont?

coeliac disease isnt liek a peanut allergy when teh face swells up and you might chocke and need adrenalin, its the end of the intoerance line, the damage in teh gut is worse than in mine, but my dietician put me at 7 out of 10 which sounds quite bad to me.

im trying to get my OCD wellenough to return to work if i was still sitting on teh loo fro such a long time i wouldnt be able to ever work full time, which employer would allow a 3 hour loo break?

dont start being all high and mighty with me unless you knwo all of teh facts!

freebie_junkie

p.s. yes you were out of line, i never asked your opinion and i dont want it.

suki1964

freebie_junkie wrote:

p.s. yes you were out of line, i never asked your opinion and i dont want it.

If you dont like what you hear, dont post on a public board.

At the end of the day you havent been diagnosed as coeliac, you have been told you have IBS which is usually due to diet and if what you are missing most from your "wheatfree" diet is pizzas,pastries, pasta bread etc, its probably no wonder.

As for telling you to avoid replacements, I never said that at all, rather that you avoid the things that make you ill, the same as I and many others do.

And the test for coeliac is a biopsy of the lower intestine done by endoscopy

freebie_junkie

suki1964 wrote:

If you dont like what you hear, dont post on a public board.

At the end of the day you havent been diagnosed as coeliac, you have been told you have IBS which is usually due to diet and if what you are missing most from your "wheatfree" diet is pizzas,pastries, pasta bread etc, its probably no wonder.

As for telling you to avoid replacements, I never said that at all, rather that you avoid the things that make you ill, the same as I and many others do.

And the test for coeliac is a biopsy of the lower intestine done by endoscopy

i had a blood test for the coeliac disease was the nurses lying to me and just doing a randomer blood test?

what exactly are you trying to say about my diet! i am a good cook and i can make most things from scratch but ive not yet gotten my head around the differences in the what free flours etc. everyone likes treats, everyone whose normal doesnt mean i ate them all o fthe time does it?!!!

if you actually read it, all the while i was telling them about my symptoms matching my mum's. the gp's advice for IBS was to eat 'wheetabix' which DIDNT HELP in fact ive never been so ill.

the first time ive been able to go the loo and feel like a normal person gut-wise in 3 years is since ive stopped eatign wheat

so if i havent had this camera up my bottom how do you know im not a coeliac, if youre saying tahst teh only way to diagnose it? the diectician only saw my bloods and listened tomy history and my mums and cousins etc..