Hidden Disabilities Time To Fight Back

jackssupermum

yes im only 27 and i get the "your 2 young to be disabled" label, i am knocked knee'd and my knee caps dislocate on a regular basis, also i have severe arthritis in these joints as this has been happening since i was 7. however my son is also disabled and people say nothing when i park up and proceed to get the wheelchair out. I can walk a pretty normal short distance some days and people dont understand! they dont see the pain people go through at home trying to do normal things and how these disabilitys affect their life. xx

KTjazz

Hello everyone,

I hope you all don't mind me jumping in on this thread. I have just taken the time to read it from start to finish and I am very glad i did. I have been elightened about some hidden disabilities/illnesses I knew nothing about before

First let me state that I have no disabilities. However, I am training (and have been for a very long time) to be a Sign Language interpreter. I have seen first hand the way some of my Deaf friends are treated. It is awful. I am probably more likely to quietly put an ignorant person in their place than my friends are... here is my favourite example

I was on a night out with one of my best friends. She is Deaf, and blind in one eye. we were walking to the pub when two drunk/ignorant blokes started saying things behind us, basically daring each other to come over and ask one of us out (but not very nicely) we hadn't been talking and were in front of them so nothing was obvious. I started to interpret what they were saying and heard "Oh, yeah, pretending you're Deaf now so we'll leave you alone?!" I was furious. I let it go for a moment or two, telling her everything they were saying. they kept on... and on... They then decided that maybe we were both Deaf and started on about stupid deaf people...

so I turned around and shouted something along the lines of "I am neither deaf nor stupid thank you very much. My friend here is also far from stupid which is more than I can say for you pair. She is however Deaf, so if you don't mind I'd like to get back on with discussing how stupid you both are" all of which was signed also. We both burst out laughing at the confused expressions on their faces and went on to have a great night.

It happens all the time though.

another of my close friends has an autistic son and some of the abuse she takes from ignorant people when he is having a bad day.

All in I am very grateful to not have to face these issues every day. I just hope that when I am fully qualified I can make life a little easier for some Deaf BSL users on daily basis.

KTjazz.

peediedj

KTjazz wrote: »

another of my close friends has an autistic son and some of the abuse she takes from ignorant people when he is having a bad day.

iam also amazed how people react(or say they understand when obviously they dont!!!!)around autistic kids,especially our son,and especially my in laws! on christmas day we had been invited over to my sister inlaws for the day,and dinner,we were suppsoed to go on christmas eve but my son went mental when i mentioned it so we said we,d go on christmas day instead,he was ok going in the car,but as soon as i turnd into the road to drive the 15 miles to my sister in laws he went mad,all the way over he was screaming,when we got there i went in myself and left him in the car,i checked on him every 5 mnis asknig if he wanted to come in,no was the reply,eventually i went out and checked on him i saw a dvd box set of bob the builder in the car,and asked if he wanted to watch it,yes he said,i said well we havent got your portable dvd player so you,ll have to come in and watch it,that was fine got him in,but wouldnt join everyone in the lounge so watched dvds in dining room,and was happy to speak to everyone passing thru.
he ate his dinner in the lougne watching tv away from everyone,but was happy,we went hoem after him being there 8 hrs which amazed us as thats lnog for him to be out his routine,anyway on boxing day my father in law came to the house and said we give in to him to easily and should of taken him out the car as soon as we arrived and sat him at the table with the rest of us!!!!!!!!!!!!!!!!!!!!!
i was livid at this comment,he more than anyone shouldknow what hes like,but hes never seen him has a mental turn as he very rarely visits,when he goes mad he bites your arm,headbutts you ,punches you,makes himself sick etc and he knows this ,i knew he would come into the house eventually,so left him,but just proves how ignrorant peopel are,even when they say they understand,unless they live with it for say a mnoth 24/7 then just visiting doesnt give them a insight into REAL LIFE:mad:

mandy.h_2

we stopped visiting relatives a long time ago who thought they knew better just was not worth the hassle, their loss my son has aspergers is 15 but somtimes acts 5 i find some people very rudeto him, but i always wxplain politley they dont know anything about him and untill they do please mind your own business

covlass

peediedj wrote: »

iam also amazed how people react(or say they understand when obviously they dont!!!!)around autistic kids,especially our son,and especially my in laws! on christmas day we had been invited over to my sister inlaws for the day,and dinner,we were suppsoed to go on christmas eve but my son went mental when i mentioned it so we said we,d go on christmas day instead,he was ok going in the car,but as soon as i turnd into the road to drive the 15 miles to my sister in laws he went mad,all the way over he was screaming,when we got there i went in myself and left him in the car,i checked on him every 5 mnis asknig if he wanted to come in,no was the reply,eventually i went out and checked on him i saw a dvd box set of bob the builder in the car,and asked if he wanted to watch it,yes he said,i said well we havent got your portable dvd player so you,ll have to come in and watch it,that was fine got him in,but wouldnt join everyone in the lounge so watched dvds in dining room,and was happy to speak to everyone passing thru.
he ate his dinner in the lougne watching tv away from everyone,but was happy,we went hoem after him being there 8 hrs which amazed us as thats lnog for him to be out his routine,anyway on boxing day my father in law came to the house and said we give in to him to easily and should of taken him out the car as soon as we arrived and sat him at the table with the rest of us!!!!!!!!!!!!!!!!!!!!!
i was livid at this comment,he more than anyone shouldknow what hes like,but hes never seen him has a mental turn as he very rarely visits,when he goes mad he bites your arm,headbutts you ,punches you,makes himself sick etc and he knows this ,i knew he would come into the house eventually,so left him,but just proves how ignrorant peopel are,even when they say they understand,unless they live with it for say a mnoth 24/7 then just visiting doesnt give them a insight into REAL LIFE:mad:

Christmas can be a real struggle for those with autism as its unlike any other day of the year.
My daughter didnt get dressed she washed in the morning and put a fresh pair of christmas Pj's on, as she hates wearing clothes but loves her PJ's. I set her a place at the table and she managed to sit for about 5 mins (whilst pulling the crackers!) & then happily went and ate her dinner alone. I do not class that as "giving in". It's keeping her routine as normal as possible on a day which as I said is unlike any other. If I had forced her to dress or sit at the table she would have caused so much distress that other family members could not of enjoyed their christmas dinner. With people coming and going over a 3day period I made sure she said hello, thankyou & goodbye and kept her routine as much as possible, again not giving in just being a understanding parent of an autistic child.

peediedj

covlass wrote: »

Christmas can be a real struggle for those with autism as its unlike any other day of the year.
My daughter didnt get dressed she washed in the morning and put a fresh pair of christmas Pj's on, as she hates wearing clothes but loves her PJ's. I set her a place at the table and she managed to sit for about 5 mins (whilst pulling the crackers!) & then happily went and ate her dinner alone. I do not class that as "giving in". It's keeping her routine as normal as possible on a day which as I said is unlike any other. If I had forced her to dress or sit at the table she would have caused so much distress that other family members could not of enjoyed their christmas dinner. With people coming and going over a 3day period I made sure she said hello, thankyou & goodbye and kept her routine as much as possible, again not giving in just being a understanding parent of an autistic child.

as i have numerous times to people unless you "walk in our shoes" you dont know whats its like
your spot on with above post!:T
we have all the family coming over for a new year buffet,son should be ok if he,s left alone in his room with his pc and sky tv,1 of his cousins is very good with him,clicking on various websites,he enjoys just surfing websites but someone has to type the address in for him,so hopefully he,ll cope

peediedj

mandy.h wrote: »

we stopped visiting relatives a long time ago who thought they knew better just was not worth the hassle, their loss my son has aspergers is 15 but somtimes acts 5 i find some people very rudeto him, but i always wxplain politley they dont know anything about him and untill they do please mind your own business

:T as i have said before its ignorance live our lives 24/7 for a week or a fortnight,then you,ll maybe start to understand!

peediedj

KTjazz wrote: »

another of my close friends has an autistic son and some of the abuse she takes from ignorant people when he is having a bad day.

my son loves going to the shops in our local city and usually its a scream fest to get him in the car to go home,the other day we took him to the shoppnig mall for a few hrs he was fine,then told him we were gonig to the retail park he said yes but didnt want to go in the car to get there as he associates the car with going home,so went to take him donw in the lift,he was really kicking off screaming etc and lashing out as we waited on the lift,this oldish woman came over to get the lift also and tried to ignore us as if we werent there and stood in front of us,i pushed forward and she tried to say to my son the lifts coming he continued to kick of the lift arrived and i struggled to get him in,so she said i think i,ll take the stairs,i said "yes best idea";) once we came out lift i saw her looknig over,then 3 kids starred at him outside in the car park as we were going to the car the mother ignore her kids ignorance so i asked the starring kids if they thought my son had horns as they were starring at him,the mother ushered them away without a word,god i hate IGNORANT people:mad:

covlass

peediedj wrote: »

as i have numerous times to people unless you "walk in our shoes" you dont know whats its like
your spot on with above post!:T
we have all the family coming over for a new year buffet,son should be ok if he,s left alone in his room with his pc and sky tv,1 of his cousins is very good with him,clicking on various websites,he enjoys just surfing websites but someone has to type the address in for him,so hopefully he,ll cope

I hope all goes well & you enjoy your new year & hope your son also has a good evening which I am sure he will;)

We are not doing anything !!! Just a peaceful night (hopefully) our other daughter is going to a new years party with a few friends and sleeping over so it will be nice for her to celebrate new year and have some time to herself. Bless her se is only 13 and had a keyboard for xmas but hasnt been able to play it much as our other daughter hates the sound of it so when ever she tries to play it we hear "NOOOOOOOOOOO" !!
So Im off to get a set of head phones for her today as the ones of her ipod wont work with it!!

Our daughter also loves being on the net she found itunes the other day :eek: but thats another story lol

Have a great new year

peediedj

covlass wrote: »

Our daughter also loves being on the net she found itunes the other day :eek: but thats another story lol

Have a great new year

my son found e-bay luckily he doesnt know my password,but maybe thats only a matter of time