MS anyone here a sufferer?

Cute_'n'_Quirky

Ted_Hutchinson wrote: »

Before I knew about Post Polio fatigue I thought MS was a possible explanation for my symptoms.

Initially correcting my Vitamin d status with 4000iu/daily made me feel a lot better but it wasn't until recently when I started eating low carb. that I lost the brain fog episodes and my energy levels improved.

Brains function much smarter on a low carb diet, see Alzheimer's and Parkinson's Diseases and take what Loren Cordain (link in previous post) says very seriously.

I made the mistake of thinking that the nutritional advice applied only to those with specific autoimmune reactions.

If I'd cottoned on earlier to the idea that a paleo style vitamin d level in paleo diet fed body was how our bodies became fine tuned to exist over 2 million years I may have saved myself an awful lot of unnecessary distress. Reading Dr McCleary's blog and understanding more about brain evolution shows the importance of following a modern shore-based/marine diet including seafood in its most general sense, non-starchy vegetables of all colors, berries, and eggs. Other sources of lean protein containing long-chain omega 3 fatty acids such as free range, grass fed, beef, chicken.

Pay particular attention to what Dr McCleary has to say about the importance of sleep and consider using melatonin. I get mine from Iherb, there is a code for $5 Iherb introductory discount in the referrals board. I used to wake up as tired as when I went to bed but now I wake feeling refreshed and raring to go.

"Doctor" Hutchinson strikes again

Yes another posting about Vit D being the cure-all for all maladies known to mankind

Ted_Hutchinson

zztopgirl wrote: »

I hope this is ok to post but what about those with sarcoidosis

If you have a particular condition that is made worse by excess vitamin D you stop taking vitamin D. The half life of vitamin d (the time it takes for current levels to deplete 50% is about 3 weeks so the problem of excess is naturally resolved with a few days abstinence

or possibly have an excess of vitamin d.

Now in a country where the average person never has more than 50% the amount needed is that a likely scenario?
You have to work seriously hard to get your current vitamin D status raised to optimal.
I take 5000iu EVERY SINGLE DAY.
I sunbathe stark naked at every opportunity weather permits when my shadow is shorter than my height.
Doing this I have reached a maximum level of 147.5nmol/l I still haven't yet reached 60ng.
As Serum 25(OH)D can be expected to rise by about 1 ng/mL (2.5 nmol/L) for every 100 IU of additional vitamin D each day. how much vitamin D do you need to take daily to raise your 25(OH)D level above the 350nmol/l at which adverse events have been recorded.?

This graph shows how long it takes starting from 70nmol/l and taking 10,000iu/daily to reach 200nmol/l. Do you see how the line has flattened out and how it gets harder to raise status. That test was done in Omaha. Omaha is nearer the equator than the UK and they get hotter sunshine and more days each year when they can get vitamin d.
Omaha is in the middle of a continent and we live on a cloudy island. They get more hours sunshine than we do as UVB doesn't get through clouds. therefore they have more hours each day when they can get extra vitamin d from the sun.
They also can buy Vitamin d fortified milk We can't
They can buy effective strength vitamin D supplements we don't have them on sale.
They can buy vitamin d fortified cereals. We can't.
So if with all those advantages can you not see if it's difficult to overdose on Vit d in the USA it's even harder to do so in the UK.

Is the 25(OH)D test a blood test by the way? Excuse my ignorance.

Yes you can either buy a home blood spot test from the USA and they will post you a pricker to collect a drop sample and post to them for a test or you can ask your GP for a 25(OH)D test but be aware that most UK GP's don't understand about Vitamin D at all and it will probably take you several goes to get the right test done.
Even when it is done your GP probably won't know the difference between a normal reading and the natural level your body functions best at.
Similarly if you have a low reading your GP will only be able to prescribe the D2 Ergocalciferol form, this is an expensive synthetic substitute for the much cheaper natural product D3 Cholecalciferol so you are best advised not to take it but get your own D3 from here.

Ted_Hutchinson

Cute_n_Quirky wrote: »

"Doctor" Hutchinson strikes again

Yes another posting about Vit D being the cure-all for all maladies known to mankind

If you actually read my post you would have seen that it is diet that I am suggesting is probably as important as vitamin D for MS sufferers. As I provide links to all the sources of information it is not me that is providing advice but the providers of those other websites.

Why do you have objections to such links being provided?

This is a moneysaving website, so links to free sources of science based medical evidence enable people to understand what is going on with their condition and thus allows them to make informed decisions to deal best with that condition.

Why do you want people to suffer unnecessary pain?

What evidence can you provide that shows the links I supply are not relevant?

Why do you never support your claims with links to the scientific medical evidence that counters the information I provide?

foreign_correspondent

Evening Primrose oil has been shown to be effective in slowing the progression in some research. Starflower oil may have similar effects, and eating oily fish is good too. Anyway, these are all good measures for general health so not going to do you any harm, they will not cost a fortune, and may do some good, so on balance probably worth doing.

Paparika

Well that's done it my right arm is useless now, i cant lift any weight on it.

Have rang the neurologist's secretary 2 weeks ago who didn't even know why or when she wrote to me in April, and then 2 days ago to find out what's going on, nothing, no one knows anything.

She said she couldn't make appointments and i should ring appointments who told me i had a uvitis clinic in 4 months but nothing from neurology.

So i'm stuffed no one is taking resposibility, everyone i speak to says they will call me back and they don't, even my GP won't deal with me as he feels that it should be dealt with the consultant.

What am i supposed to do, sit here and suffer? aparently so.

Cute_'n'_Quirky

WARNING!

VITAMIN D OVERDOSE SYMPTOMS -

Excessive calcium absorption
Calcification
Urinary stones
Certain nerve symptoms
Certain muscle symptoms

If you have any concerns about Vit D do speak to your GP/Consultant/Rheumatologist BEFORE overdosing yourself on supplements

Cute_'n'_Quirky

Ted_Hutchinson wrote: »

If you actually read my post you would have seen that it is diet that I am suggesting is probably as important as vitamin D for MS sufferers. As I provide links to all the sources of information it is not me that is providing advice but the providers of those other websites.

Why do you have objections to such links being provided?

This is a moneysaving website, so links to free sources of science based medical evidence enable people to understand what is going on with their condition and thus allows them to make informed decisions to deal best with that condition.

Why do you want people to suffer unnecessary pain?

What evidence can you provide that shows the links I supply are not relevant?

Why do you never support your claims with links to the scientific medical evidence that counters the information I provide?

YOU ARE NOT A DOCTOR

HAVE REPORTED YOU TO MSE FOR CONSTANTLY POSTING DANGEROUS MEDICAL NONSENSE WHEN YOU HAVE NO MEDICAL QUALIFICATIONS

WARNING!

VITAMIN D OVERDOSE SYMPTOMS -

Excessive calcium absorption
Calcification
Urinary stones
Certain nerve symptoms
Certain muscle symptoms

If you have any concerns about Vit D do speak to your GP/Consultant/Rheumatologist BEFORE overdosing yourself on supplements

zztopgirl

Cute_n_Quirky wrote: »

WARNING!

VITAMIN D OVERDOSE SYMPTOMS -

Excessive calcium absorption
Calcification
Urinary stones
Certain nerve symptoms
Certain muscle symptoms

If you have any concerns about Vit D do speak to your GP/Consultant/Rheumatologist BEFORE overdosing yourself on supplements

Medical advice should always be sought before taking any supplements, i hope everyone who reads these boards does so.

zztopgirl

Paparika wrote: »

Well that's done it my right arm is useless now, i cant lift any weight on it.

Have rang the neurologist's secretary 2 weeks ago who didn't even know why or when she wrote to me in April, and then 2 days ago to find out what's going on, nothing, no one knows anything.

She said she couldn't make appointments and i should ring appointments who told me i had a uvitis clinic in 4 months but nothing from neurology.

So i'm stuffed no one is taking resposibility, everyone i speak to says they will call me back and they don't, even my GP won't deal with me as he feels that it should be dealt with the consultant.

What am i supposed to do, sit here and suffer? aparently so.

You must get to the gp asap and demand they do something. Failing that, go to your local pals http://www.pals.nhs.uk/

You have got to get something done about this, pm me if you want to let off steam or need any advice, but harrass them, phone them, dont give up until they start taking you seriously. My dad's neurologist is a bit useless too, he was missed out last year for his check up, but in your case Paprika, you need to be seen urgently.

Sending you get well vibes.

zztopgirl

Ted_Hutchinson wrote: »

I sunbathe stark naked at every opportunity weather permits when my shadow is shorter than my height.

I hope nobody is eating whilst reading this thread.:rolleyes:

As for the advice re my sarcoidosis, it doesnt matter if i have low levels of vit d due to living in a cloudy and mostly unsunny country, i still aint taking no supplements. I keep covered up as much as possible. I would prefer to stay off the steroids than to have a good intake of vit d that could make me more ill.