DLA and M.E/CFS

chickmug

mardatha wrote: »

I'm ok in the house & garden but very rarely go out anywhere. I have never been referred to anybody ande my GP just keeps saying there is no cure or treatment and I just have to live round it. Which I'm doing.

I tried a long time ago to heed the advice of my doctor which was to accommodate the illness (ME) in my life. Took a long time to perfect the art of doing so because the rebellious part of me sometimes trys to fight it but as you know itis impossible to fight. Good luck!

TOBRUK

chickmug wrote: »

I tried a long time ago to heed the advice of my doctor which was to accommodate the illness (ME) in my life. Took a long time to perfect the art of doing so because the rebellious part of me sometimes trys to fight it but as you know itis impossible to fight. Good luck!

You are right, and if you try to fight it and go into 'denial' mode, it results in relapse with me! I am still after over 11 years trying to control and live with it but it is impossible. The GP has tried different medication and the past year I have been given some medication which helps a great deal with the all over pain - this really helps to enable me to get a few hours sleep at night before waking up with the pain.

Madartha, seeing a specialist in this field did help, if only getting support in writing a report to the DLA. There are times I am unable to live around it as I go to complete shut down and unable to function at all. The DLA forms are daunting and hard work when you are so unwell, but stay with it and I found that just doing a couple of pages a day helps to get through it

If you have a GP who is supportive and is helpful with your illness (I see my GP every 6-8 weeks as she likes to review my condition) it really does help.

Good luck to you, and try to live in hope.