Raising money for the Cystic Fibrosis trust by doing bike ride in July 2008

Sue-UU

Let_Robinson_Sing wrote: »

'Average life expectancy is around 31 years, although improvements in treatments mean a baby born today could expect to live for longer.' http://www.cftrust.org.uk/aboutcf/whatiscf/

Some more information about Alex
"But I suspect we'll be seeing more of Alex: he's since been offered a choral scholarship to King's, Cambridge and a place at the Royal Academy of Music. It's hard to conceive of someone having so much potentially ahead of them, alongside the very real possibility of having absolutely nothing at all" http://observer.guardian.co.uk/review/story/0,,2247366,00.html

Hi Alex and thanks so much for the above about Alex S, he's certainly deserved to get there and I truly hope he can go further with his amazing gift, but mostly with his life!

I was so sorry to hear of the death of Sarah's friends who are obviously so very young. We've made great leaps with this terrible disease, but a lot more needs to be done in order to stop so many youngsters having their lives so tragically cut short due to it. I've been looking around the CF web site and have been amazed at all I've read so far.

You're more than welcome Alex, Sarah also, though I think I shall be back in a while.

All the best, Sue x

ahai1

The same from me as well.

Let_Robinson_Sing

if you guys are on facebook here is the group i created.

http://www.facebook.com/group.php?gid=14172590717

Let_Robinson_Sing

:T :T :T Woo up to £94.00 now :j :j :j

Thank you to those who have donated

LadyInBlack

Hi Alex,

Just to let you know that i'll be donating when I get paid next.

I lost my sister to cf 10 years ago - she was 24. In fact, it's her birthday today...

I hope that a cure is found for this horrible illness soon because it is truly dreadful what cf sufferers have to endure.

My sister loved life and lived it to the full...she certainly inspired me to be a better person and she will always be my hero.

Wishing you the best of luck for the bike ride and best wishes to Sarah too.

Sue-UU

Let_Robinson_Sing wrote: »

:T :T :T Woo up to £94.00 now :j :j :j

Thank you to those who have donated

GREAT news Alex!!!:T

That was quite quick, so let's hope it'll rise even further. Please keep letting us know as it keeps the thread to people's notice too.

All the best to you both, especially to Sarah for her health to be the best possible. I wonder just how many people were running for the sake of CF in the marathon - LOADS I hope!

Sue.

DebbieMids72

Well done Alex, you're doing a big thing here. I couldn't do it, lol. Well, I'm not fit enough to be honest.

And more importantly, it's for a good cause. I lost my cousin Ian to CF about 25 years ago and he was only 15 years old. I think it's great what you're doing, and I hope that they will improve with their research and find a cure.

TIGs

Don't know if its ok to post petitions so if not can someone please remove it.

My Neice has Cystic Fibrosis she was 9 a couple of weeks ago. We didn't know she had it till she was 4 due to the Doctors not passing on the results from her heel !!!!! when she was 10 days old :mad: :mad: luckily she is very well and has checks ever 3 months to keep a check on her condition.

My sister and her husband didn't even know they were both CF carriers and guess what so am i but i was lucky for my husband not to be a carrier. Lots of you on here could just as easily be a carrier too, so please sign the petition, i think people should know the risk of having a child with Cystic Fibrosis before they start a family.

http://petitions.pm.gov.uk/CFcarriertest/

Thanks

TIGs

Whoops forgot to say best of luck Alex, :j :j

me and my 2 kids and my sister and her 2 kids are doing the CF great strides walk in June (bit like race for life but for CF instead)

Anyone interseted in giving it a go can look here for more information

http://www.cftrust.org.uk/help/nationalcampaigns/greatstrides/

Let_Robinson_Sing

Hey guys,

Sorry i've not posted for a while. I've not had a computer for a few weeks. Thanks to all donations i've raised £120 so far.

LadyInBlack wrote: »

Hi Alex,

Just to let you know that i'll be donating when I get paid next.

I lost my sister to cf 10 years ago - she was 24. In fact, it's her birthday today...

I hope that a cure is found for this horrible illness soon because it is truly dreadful what cf sufferers have to endure.

My sister loved life and lived it to the full...she certainly inspired me to be a better person and she will always be my hero.

Wishing you the best of luck for the bike ride and best wishes to Sarah too.

Sorry to hear about your sister LiB, Hopefully there will be a cure found soon. If they can put people into space and build bombs with a destructive force then surely they can cure CF.


Next part is not relevant to my cycle ride but for a good cause

As some of you may know I am student and also a carer for my fiance Sarah but the government dont provide Carers Allowance for students who are carers.

An e-petition was created by Kate Thomas who is another student carer but has been in the media recently. She forwarded me on the link http://petitions.pm.gov.uk/Value-Carers/

If you can sign it and forward it on to everyone you know that would be great.



Thank you all