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Self employed/too ill to work what do I do?

Hi all, hoping for advice. I'll summarise the situation and any advice iro my business, home arrangements, job seeking or benefit advice.. id welcome it all.

I've been self employed 24 years following diagnosis of a rare disease. It makes it impossible to do a 9 to 5 job outside of the home. So I sell handmade items via my website &etsy. I've built a good business which ticked over nicely and which I could shut when my illness flared & I was hospitalised. I work throughout the day and night so prioritise orders, then depending which part of my body is playing up I make the parts I need ie if I cant use my hands at all im buggered but if I can use my right I can still sew but cant use my hot glue gun or iron. If my speech isnt working I cant do videos or answer customer calls or have customers at my house for fittings. If im unable to open my eyelids completely then I cant answer emails. If I have a tiny slit open I can sew. I use a wheelchair out of the house but can bumble about in the house. My husband packs all my orders & takes 2 weeks off at our busiest time to help me. I have around £70k in materials and £20k in equipment. I get pip at the highest amount and when I had my assessment the assessor came to my house and I showed him how I can even work whilst laid up in bed unable to move my lower half albeit with assistance. I have never claimed anything else as my profit was always around £12000 for an average 7 months of work. Due to my illness I never know daily if I can sew, talk, walk or move my arms or worse case breathe. So if im poorly during the day I could always work at 2am for example. So its suited us having an online business.

With so many changes to overseas postal rules and 75% of my business being with the USA customers ive been hit badly. My sales are almost non existent and when I do sell , the service clients are expecting is unbelievable.

Family wise my hubby works 40 hours per week for the emergency services, does all the cooking and cleaning and is my unpaid carer. We have 19 cats , and my mum is just about to move in. She cant walk and has severe copd. I honestly dont know how we will look after her.

We had £9000 in savings and have had to change the house structure for her to move in so have £1000 left.

Ive gone over our overdraft limit so now at £2500. We have a mortgage .. £12k left on it now arrears. 1 credit card £13000. No loans etc.

My health has gone downhill and I can barely get to the bathroom alone now.

Is it worth selling my materials and closing. How will i look after my mum and work if I carry on. Can I sign on for sickness benefit or would it be job seekers allowance. Im just flummoxed and I guess cant see the wood for the trees. Any advice would be appreciated and feel free to ask questions.

Thanks

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Comments

  • marcia_
    marcia_ Posts: 4,441
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    edited 25 October at 5:23AM

    you would need to make a joint claim for universal credit with your husband. How much you might get depends on his income and will be reduced because you have savings over £6000

    https://benefits-calculator.turn2us.org.uk

    Have you been paying national insurance?

    19 cats, really, when you are struggling is that wise

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  • Hi Mouser. I hope you are ok. It all sounds very worrying. I would contact CAB to see what you may be entitled to. Your husband's salary would affect what Universal Credit you are entitled to however it used to be that if you are placed into the health support group, you would not be means tested. I don't know if that has changed. You definitely need to take advice. It's also not a quick process claiming UC on ill health grounds. You might be able to claim Carers allowance if you are caring for your mum.

    I'd also speak to your GP and any local carers organisation you can find (the GP may be able to put you in touch with them) about how you will cope when your mum moves in. Perhaps ask your GP for a referral to Social Care if your mum needs care you can't provide.

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  • Grumpy_chap
    Grumpy_chap Posts: 21,927
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    I read that the OP only has £1k savings remaining.

    As you mentioned, a joint UC claim with the husband. OP's health related benefits may be outside of means testing.

    I would certainly suggest not getting any more cats.

    What is the mother contributing to household costs when she moves in? Does mother have income or, if not, is she eligible for benefits in her own right?

    It might be helpful to the OP to prepare a full budget - perhaps use the SoA template available in the DfW area of these forums.

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  • FlorayG
    FlorayG Posts: 2,410
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    I understand about your cats, I really do. Currently I only have 3 but that's only because of natural wastage and not taking on any more.

    Can your mother get carers visits? Can she claim anything?

    As to selling off your business only you know the details of the worth of it, it's so sad how the state of the USA has affected so many small businesses in other countries

    Sorry I can't offer any practical advice, just wanted to offer sympathy

  • KxMx
    KxMx Posts: 11,576
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    edited 25 October at 9:20AM

    Given what you've posted, you can't look after your Mum. It sounds like you are currently in a very bad place health wise. Speaking from experience, you'll try caring for her anyway and ruin your own health even further.

    Your husband already works ft, cares for you, the animals and all the domestic tasks. He doesn't have capacity for another person in need of care either.

    External arrangements for carers coming in for Mum, or a change of plans so she doesn't after all move in.

    There will be a wait but I'd suggest you & hubby explore what support there is from local authority for the two of you. Plus an assessment for Mum, whatever the living arrangements end up as.

    https://www.nhs.uk/social-care-and-support/help-from-social-services-and-charities/getting-a-needs-assessment/

    https://www.nhs.uk/social-care-and-support/support-and-benefits-for-carers/carer-assessments/

  • huckster
    huckster Posts: 5,716
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    edited 25 October at 9:20AM

    Agree sell some of the materials and use money to pay off debts. If you are not going to use them, then selling them would be sensible.

    In regard to benefits, use an online benefits website like Entitledto or Turn2us to check on possible entitlement. Universal Credit would have to be joint with husband, so his employment earnings may affect entitlement. If you have paid class 2 National Insurance as self employed, you may be able to claim New Style ESA, if you get a Doctors fit note saying work capability is affected by health. ESA does allow claimants to continue limited work without it affecting the benefit. This is known as permitted work, where someone is working less than 16 hours per week and earnings £203.50 or less per week net income.

    You need independent financial advice about debts. Lenders have a responsibility towards vulnerable customers, so if the Bank or Mortgage company are not aware of your circumstances, you should inform them.

    The comments I post are personal opinion. Always refer to official information sources before relying on internet forums. If you have a problem with any organisation, enter into their official complaints process at the earliest opportunity, as sometimes complaints have to be started within a certain time frame.
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