ESA confusion

Cyclamen

Hello 
I have ME too so wanted to reply about claiming benefits but cant read everything.

The MS society have (or used to have) an excellent guide to filling in the PIP form, whilst not the same disease it helped me hugely. 
The ME association have free downloads to help complete PIP forms too.

Peoples experiences claiming in the ME community are very different. I have been treated well for PIP and ESA and been given the appropriate award for my health needs.  I have known others have to fight.  What we all seem to experience is the impact of doing the form takes its toll on ME limited energy supplies and post exertional malaise can kick off.  So its worth pacing the form. 

 I type mine up in word on the laptop then attach to the form writing in each question box see attached sheets page number X . The advantage being I can edit when renewals come round. 

I wish you all well, its a hard disease to manage and live with.