What help can my friend get

Spoonie_Turtle

Emmia said:

Spoonie_Turtle said:

elsien said:

If these are genuine health needs and I’m not entirely convinced by an allergy to smokers) has she looked at a CHC assessment for health funding?

You've not heard of MCAS then?  Particularly plausible since dislocations and fainting are likely to be EDS and POTS.  It can be severe enough* that someone has to mask up and use an air purifier just so their body stays on an even keel, a huge extra burden which wouldn't be necessary if the person's needs are respected in the first place by the organisation assigning the carers. 
(*MCAS reactions run the whole range of severity, including anaphylaxis requiring hospitalisation.)

I think the difficulty is that it can be almost impossible to avoid smokers, …

Absolutely not disputing it'd be difficult for a care agency, I was just addressing the doubt about the allergy being real.

[It can potentially be done if she can find a PA herself who doesn't smoke or is never around smokers, but that's evidently not the route she's currently anticipating.]

Savvy_Sue

Was she paying her previous carer / friend? If so, for how many hours was that? 

Giraffe76

elsien said:

Spoonie_Turtle said:

elsien said:

If these are genuine health needs and I’m not entirely convinced by an allergy to smokers) has she looked at a CHC assessment for health funding?

You've not heard of MCAS then?  Particularly plausible since dislocations and fainting are likely to be EDS and POTS.  It can be severe enough* that someone has to mask up and use an air purifier just so their body stays on an even keel, a huge extra burden which wouldn't be necessary if the person's needs are respected in the first place by the organisation assigning the carers. 
(*MCAS reactions run the whole range of severity, including anaphylaxis requiring hospitalisation.)

My apologies - too used to people claiming food allergies when really they have an intolerance or just dislike whatever it is.

My point still stands about looking at health funding though. And if the local authority have assessed for 9 hours a week, they may be excluding health needs as not being part of their remit as otherwise this seems very low. She can also make a formal complaint to the local authority if she disagrees with their assessment. 

Hi, how would she get health funding?

Kind regards mark 

elsien

She would need a professional to do the initial checklist to see if she qualifies for the full assessment.
GP or social worker would be able to start the process of if they thought it was relevant for her. 

https://www.nhs.uk/conditions/social-care-and-support-guide/money-work-and-benefits/nhs-continuing-healthcare/