Terminal illness benefits

Smileyiley
Smileyiley Posts: 3 Newbie
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edited 26 February at 11:28AM in Benefits & tax credits
I have secondary breast cancer it's in my bones so as much as I want to I am unable to work. I'm getting minimum payment from university credit and can't get PIP or disability allowance as apparently I am not "ill" enough! I'm struggling and it's adding more stress! Any advice would be appreciated 

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  • marcia_
    marcia_ Posts: 1,768 Forumite
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    I have secondary breast cancer it's in my bones so as much as I want to I am unable to work. I'm getting minimum payment from university credit and can't get PIP or disability allowance as apparently I am not "ill" enough! I'm struggling and it's adding more stress! Any advice would be appreciated 
    Did you claim PIP under special rules? MacMillan can help https://www.macmillan.org.uk/cancer-information-and-support/impacts-of-cancer/benefits-and-financial-support/personal-independence-payment
  • DullGreyGuy
    DullGreyGuy Posts: 10,264 Forumite
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    You'd be better posting in the Benefits section rather than Insurance
  • MSE_ForumTeam5
    MSE_ForumTeam5 Posts: 959 Community Admin
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    We've moved this to the Benefits board
    Official MSE Forum Team member. Please use the 'report' button to alert us to problem posts, or email forumteam@moneysavingexpert.com
  • poppy12345
    poppy12345 Posts: 17,921 Forumite
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    marcia_ said:
    I have secondary breast cancer it's in my bones so as much as I want to I am unable to work. I'm getting minimum payment from university credit and can't get PIP or disability allowance as apparently I am not "ill" enough! I'm struggling and it's adding more stress! Any advice would be appreciated 
    Did you claim PIP under special rules? MacMillan can help https://www.macmillan.org.uk/cancer-information-and-support/impacts-of-cancer/benefits-and-financial-support/personal-independence-payment
    This is only possible if the diagnosis is 12 months or less left to live. 

    I have secondary breast cancer it's in my bones so as much as I want to I am unable to work. I'm getting minimum payment from university credit and can't get PIP or disability allowance as apparently I am not "ill" enough! I'm struggling and it's adding more stress! Any advice would be appreciated 
    For your UC have you reported your health condition, supported by a fit note? This will start the work capability assessment process off. 

  • Spoonie_Turtle
    Spoonie_Turtle Posts: 8,399 Forumite
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    I have secondary breast cancer it's in my bones so as much as I want to I am unable to work. I'm getting minimum payment from university credit and can't get PIP or disability allowance as apparently I am not "ill" enough! I'm struggling and it's adding more stress! Any advice would be appreciated 
    Some questions about your PIP application:

    Were you scored any points from the assessment?

    Did you get any help with the application?
    Do you understand how it's assessed?
    If yes to either of those two, did you challenge the decision and how far did that go?

    Lots of people get the wrong decisions to start with, however PIP is a high bar so there are people who are ill who genuinely don't reach the threshold.  But for secondary bone cancer I'd have thought potentially the fatigue and pain along with any treatment side effects would likely score enough points across the activities for at least a standard daily award.
  • kkkklinky
    kkkklinky Posts: 55 Forumite
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    Unfortunately I have had to claim PIP under the terminal illness rules as I have recently been diagnosed with Advanced Acute Myeloid Leukaemia and been told I'm not likely to survive more than 12 months(it was missed because I was too busy caring for my partner with mental health issues to see a GP until my spleen nearly ruptured). If you have severe side effects of chemo like fatigue and not being able to look after yourself you may get an award under normal PIP rules.
  • peteuk
    peteuk Posts: 1,320 Forumite
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    edited 28 February at 12:44PM
    Go to your GP or consultant and ask for a DS1500 or SR1.  If terminal and less then 12 months PIP should be  automatically paid, with no assessment.
    Proud to have dealt with our debts
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  • NedS
    NedS Posts: 3,605 Forumite
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    Have you been awarded the LCWRA element on UC? If not, get a DS1500 from your consultant/GP and give it to UC.

  • sammyjammy
    sammyjammy Posts: 7,366 Forumite
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    peteuk said:
    Go to your GP or consultant and ask for a DS1500 or SR1.  As terminal and less then 12 months PIP should be  automatically paid, with no assessment.
    We don't yet know the OPs circumstances.
    "You've been reading SOS when it's just your clock reading 5:05 "
  • peteuk
    peteuk Posts: 1,320 Forumite
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    peteuk said:
    Go to your GP or consultant and ask for a DS1500 or SR1.  As terminal and less then 12 months PIP should be  automatically paid, with no assessment.
    We don't yet know the OPs circumstances.
    Sorry I edited it but didn’t change the as to if… should read as I wanted now
    Proud to have dealt with our debts
    Starting debt 2005 £65.7K.
    Current debt ZERO.
    DEBT FREE
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