Pip for long covid

peteuk

Spoonie_Turtle said:

peteuk said:

Long Covid was questioned when I need my PIP training.  Like everything PIP there’s no straight answer.  I was advised think of it as ME or FM (similar symptoms so similar questions) but it does come down to the effect it has.

A majority of people with Long Covid do meet the diagnostic criteria for ME, so that's good advice as long as people view ME properly - as the legitimate, debilitating neurological condition it actually is. 
The major, major difference between LC/ME and FM is PEM/PENE - Post-Exertional Malaise / Neuroimmune Exhaustion.  Not 'just' fatigue (as if fatigue isn't bad enough) but a real worsening of symptoms, which if pushed through results in permanent deterioration.  Which is exactly why so many people now have Long Covid, because they didn't know to and/or couldn't rest properly like their body needed.

There's also a lot of dysautonomia in both patient groups, which is often overlooked.  (Less so with Fibromyalgia.)

It was in the early days of Covid, so it wasn’t official guidance.  Managed to skip the job after 6 months.