opting out of NHS data sharing?

textbook

Got a text  from my GPs regarding my medical records being open to other people seeing them.  What's this all about and is it worth opting out?

Shall I just text back words- opt out

https://www.bing.com/news/search?q=site:www.independent.co.uk&FORM=NWBCLM

Manxman_in_exile

Why not read the other thread?

Are going to Dissent from secondary use of your GP patient records or not bother? - Page 3 — MoneySavingExpert Forum

oldagetraveller1

There's an opt out form to complete and give your G.P.'s. Also may be done online for N.H.S. Digital.

I have done both, my choice, if that is still allowed? They can get lost as far as I'm concerned!

Not a thing from my G.P., I'm sure they are obliged to inform patients?

The date has been put back too because of privacy concerns.

jamescl

Anonymised data, not linked to your personal details. 

It is so that the NHS can see how many people in the UK are suffering from each problem and apportion funding to the right research and right areas. 
It is so they can factor this information in when negotiating medicine contracts. 

This is a good thing, I don't see why people are so fearful of anonymised data being shared for good. 

Sandtree

jamescl said:

Anonymised data, not linked to your personal details. 

It is so that the NHS can see how many people in the UK are suffering from each problem and apportion funding to the right research and right areas. 
It is so they can factor this information in when negotiating medicine contracts. 

This is a good thing, I don't see why people are so fearful of anonymised data being shared for good. 

Its pseudonymised data not anonymised.

Plus it will also go to pharmaceutical companies and other such researchers.

Personally still don't have an issue with it but there is in theory some risk of you being personally identified if your the type to tweet to the world about all your appointments etc

[Deleted User]

 Given the tories are seeking to sell off more of the NHS plenty of data will be in the hands of private companies who contract NHS work. 

 That includes American companies once the trade deal is done. I don't trust them to hold the same standards and keep to the rules once the information is not in the U.K. 

Manxman_in_exile

jamescl said:

Anonymised data, not linked to your personal details. 

It is so that the NHS can see how many people in the UK are suffering from each problem and apportion funding to the right research and right areas. 
It is so they can factor this information in when negotiating medicine contracts. 

This is a good thing, I don't see why people are so fearful of anonymised data being shared for good. 

As Sandtree has already pointed out the data will not be anonymous (very few data items these days are truly anonymous and this stuff certainly won't be).

If the NHS simply wanted to see "... how many people in the UK are suffering from each problem and apportion funding to the right research and right areas.  It is so they can factor this information in when negotiating medicine contracts" they would not need to be doing this, would they?

As you don't seem to think that reading and understanding the T&Cs of contracts you enter to is a good use of your time, I have to question your view that the subject matter of this thread is a "good thing".

Robbo66

_shel said:

 Given the tories are seeking to sell off more of the NHS plenty of data will be in the hands of private companies who contract NHS work. 

 That includes American companies once the trade deal is done. I don't trust them to hold the same standards and keep to the rules once the information is not in the U.K. 

I think you'll find that was a Labour government and their Private Funding Initiative which has put the various Trusts under immense financial strain

PFI deals have financed £11.8 billion of hospital building across England. Over 31 years, these deals will cost the NHS £79 billion in repayments. The extent to which PFI drains money from the NHS into private companies means, in effect, the very fabric of NHS hospitals is being privatised.

Manxman_in_exile

PFI was actually a creature of the previous Conservative government but - for some inexplicable reason - Tony Bliar decided to develop and continue what was not a very good idea into a complete disaster for the NHS.  And then Brown had to slash NHS funding after he "saved the world" in 2008/9 by baling out the banks - which he thought was a good idea.

The NHS is still paying for both these idiocies.