Dla form for absence epilepsy

Hi I've gt the dla  form to fill in for my daughter and  worried about the school filling in there part of the form due to the not seeing her for the past 4 month because of the corona lockdown.... Before the covid outbreak we had seen a peadrition and been referred for eeg... Bt tge corona hit so was postponed... But she got redicously worse so they did it as and emergency... Now the school hasn't seen her for 4 months so won't know much... Hw do I rectify this pls? Xx

Comments

  • poppy12345
    poppy12345 Posts: 17,934 Forumite
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    Send as much evidence as possible that proves how she's affected. Writing a diary will also help. Remember, it's not about a diagnosis. You need to prove that she needs more care and attention than another child of the same age who doesn't have a disability.
  • B88x
    B88x Posts: 5 Forumite
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    I understand that it's the schools part I'm worried about as they've nt seen her for 4 months x
  • Then don't include anything from the school, any supporting evidence is only worth sending if it supports the claim, so reports from consultants are the best, and as poppy12345 says a diary in this circumstance is an excellent idea. You should concentrate on how often she has absences, what happens, for how long, what medication she takes and if it works or not. How old is your daughter?
  • B88x
    B88x Posts: 5 Forumite
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    She is six she cn have upto 15 in the space of half an hour  xx

  • Grumpy_chap
    Grumpy_chap Posts: 14,878 Forumite
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    DLA for epilepsy is not straight forward.  Contact Epilepsy Action for advice to the best approach.
  • B88x said:
    She is six she cn have upto 15 in the space of half an hour  xx

    Thats extremely bad especially if its every half hour, is she seeing a neurologist? has she been put on any meds? I have severe epilepsy and if I had upto 15 absences in half an hour bearing in mind each one last a minute or so and takes longer to orientate afterwards I would be permanently spaced out
  • B88x
    B88x Posts: 5 Forumite
    First Post
    They don't. Last a minute with her there between 10 and 20 seconds... Yes she's had an eeg they diagnosed her and have put her on medication x
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