hemochromatosis 20 June 2020 at 4:55PM edited 20 June 2020 at 4:56PM in Health & beauty MoneySaving 6 replies 693 views

Kim_kim

I’ve just recently been diagnosed with  hemochromatosis, I’ve got to have a liver scan to check for damage (fingers crossed I’m ok) & await the blood letting.
The doctor told me to avoid cereals with added iron, that’s nearly all of them! 

Also read I need to avoid oysters & clams - not a problem & extra vitamin c with meals as it aids iron absorption.  So no orange juice with breakfast.
I’m not asking for medical advice, I just wondered if anyone has any tips for living with as it’s a life long condition.

brook2jack2

You are better asking here https://www.haemochromatosis.org.uk/

theoretica

Not specific to your condition, but to living with dietary restrictions.  Try to avoid putting the main metal focus on what you can't have and put it instead on what you do eat, once you have worked out nice breakfast foods etc. 

A.Penny.Saved

Add some Turmeric to your diet because it can be helpful along with some fat to help it's absorption. Maybe some additional curcumin which is the part of Turmeric which has the effect. The problem with curcumin is it is poorly absorbed so it needs some help. Some use black pepper to help it stay in the blood longer by delaying it's breakdown. Fat helps it's absorption and so can liposomes such as Curcumin liposomes. These can be made to keep costs down using lecithin with some ethanol. There is a lot online about this. https://www.nature.com/articles/s41420-019-0234-y https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4521784/ The following is a guide on making liposomal C (vitamin C) but it can be adapted to make Liposomal Curcumin. The ethanol is important BTW because it helps the creation of liposomes. https://qualityliposomalc.com/ I have some slight genetic susceptibility to haemochromatosis which is why I looked into this. I do not currently have haemochromatosis.

Murphybear

you can make your own muesli or granola.  It is much nicer than shop bought and you can put exactly what you like in it.  Dozens of recipes online 

Kim_kim

Murphybear said:

you can make your own muesli or granola.  It is much nicer than shop bought and you can put exactly what you like in it.  Dozens of recipes online 

I find muesli and granola really heavy, I’d much prefer shredded wheat! 

MrsStepford

https://www.nhs.uk/conditions/haemochromatosis/treatment/