Need advice. Crisis.

JadedAngel88

I just wanted to let you know about click sargent. This is more for your son really. My daughter had a support worker from there, who she would spend time with during her treatment. They also help with getting grants, special treats and lots of other things.



Is there a Teenage Cancer Trust Unit/Ward at your local hospital? There wasn't one in our local hospital but myself and my daughter would travel to Leicester Royal infirmary for her chemo. As others have said about Macmillan, they are fabulous too. My daughter is in her 4th year of remission and is doing ok, her life was on hold for a while but is slowly getting into the swing of things.


I hope for the best for you, your son and family.

Rubyroobs

Man_From_Bath wrote: »

Ruby, Thanks for this. We have brought a ear thermometer from boots and check his temperature 3 times per day. we go into Bristol for blood test's every week before his chemo starts and he also has his dressing and Pic Line checked every week.

He is unable to wake before midday although he has been up for several hours last night with obvious emotional issues.

His nausea is managed with Anti Sickness and your right his mouth is full of ulcers. Clearly you've been through this yourself.

Thanks for you advice.

Just make sure you document everything on the form and get help with it from Clic sargent or macmillan. Fortunately I have not been through this myself but help people everyday to do the PIP forms and when going through this type of intensive chemo, most of my clients will get an award. The risk of neutropenia and needing to keep a close eye on your son at all times cannot be underestimated. Wishing your son a full recovery. As pp have mentioned Macmillan can help with all sorts of information and even if you just need to speak to someone on their advice line, there are people who will listen and give support.

Man_From_Bath

Yes my son stays on the Teenage cancer ward, to be fair so did I for the two weeks and they found us beautiful accommodation for my wife and elder son.

So job centre have more or less agreed Universal Credit and Macmillan will help with Pip.

My wife will be assessed for the New Style support on Friday and job centre seem understanding of our position.

The advice and support on here is priceless.

Thanks to you all

Man_From_Bath

So my wife and son both had interviews at the job centre today. Son has had UC approved and macmillan nurse is coming to our house Monday to complete the PIP form.


Wife has been told her ESA should be approved but they have to check her National Insurance record.


thanks again.

Man_From_Bath

So quick update, thanks to help from McMillan my son was awarded the full pip which is i believe £148.85. He is also getting UC and been told today that he's also been awarded additional as he cannot search for work.

Wife has now applied for carers as she has had to give up work as she takes him everywhere.

He's had 4 chemo sessions, he is constantly tired but other than that he's coping. We can only pray his tumours shrinks so they can operate.

Thanks you all.

[Deleted User]

Just a thought when my DD was 17 she was part way into doing AS levels at college and was knocked down by a hit and run driver, the college allowed her to stop attending and then start again the following year, my point is you should talk to the school.
Goes without saying that our thoughts are with your son and his family.

Man_From_Bath

We are in regular contact with the school and they have been supportive. Thanks.

Man_From_Bath

Son my son has finished his chemo and we are off to London tomorrow to see specialist surgeon. My nieces, nephew and eldest son have raised over £7,000 for charity so far. Life is rubbish sometimes.

Thanks for all your advice.

xylophone

Life is rubbish sometimes.

Yes, it is and it is so very, very hard to see a child so unwell.