Aspergers/ASD support thread

Snaggles

((((hugs)))) strapped, I'm sorry for what happened to you xxx

quietheart

Strapped, you've made me go all goose-pimply - hope you're managing to deal with what you went through.
The 'to check what's in there before it's viewed' line really worries me. They are my notes about my son's birth and i have a right to see them - warts and all and i'm pretty sure they'll be plenty of warts (starting with the obstetrician who said "i can't tell you if you're in labour because i can't find your cervix" - how many places could it've been?! )
Snaggles, I feel the same. Just want to understand what was going on when people were running around and panicing at the birth. I think we deserve that. It is part of their job after all. Thanks for the good wishes. I might actually enjoy it, I have been promised coffee so it sounds nice and relaxed.

Snaggles

Rovers, I'm sorry, I know I shouldn't be laughing but.......he couldn't find your cervix?? Where was he looking??? :rotfl:

(I have visions of him checking under the bed, in the cupboard, behind the bedside table.....:))

Strapped

LMAO, was he on YTS? :rotfl:

(I don't have a penis, but I'm pretty sure I could find one on a man. Given seven years at med school and a few years' examination experience of course).

Strapped

Snaggles wrote: »

((((hugs)))) strapped, I'm sorry for what happened to you xxx

Thank you.

rovers wrote: »

Strapped, you've made me go all goose-pimply - hope you're managing to deal with what you went through.

Sorry, didn't mean to turn this into an all-about-me

Hope it goes well tomorrow and you get the "closure" you need (if that's too American a phrase).

LondonDiva

Strapped wrote: »

Snaggles is not the only one who resented the implications of your post.

What were the implications in my post? I actually went through what the process involved in terms of staff time and explained why there is the facility to charge up to £50 for records.

Strapped wrote: »

Why should a clinician have to "go through them first to check what's in there" (!!!!-covering?!)

A clinician must go through all notes to ensure there is no third party info contained in the records and to ensure that there is nothing which could (I can't quite remember the exact phrase) cause undue mental harm or distress. It's part of the good prctice guidance that came with the law ~ no records should ever be copied or gone through with a patient if this has not been done. Apart from those caveats, the recordsd would be available in their entirity

Strapped wrote: »

As someone who suffered the most dreadful post-traumatic stress following the "birth" (I use the term loosely) of my eldest child, I'm sooooo f***ing sorry if a clinician (who after all is God or might as well be) has to dein to spend 3 or 4 precious appointments on trying to fix what s/he f***ed up in the first place :rolleyes:

Please can you not swear or be sarcastic, it's not helpful to the OP. If a typical appt is about 10 minutes, and going through records takes about half an hour upwards, that is 3-4 appointments and sometimes means that a service gets a locum in or reduces the number of appointments available to other patients.

What part of pointing that out as part of the reason a service may charge for the records got your goat?

Strapped wrote: »

That's what's wrong with the NHS - we managed to not actually kill you, so you should be GRATEFUL! GRRRRRRRRRR! :mad:

Do you think that this is in anyway relevant to the OP or my reply?

quietheart

Snaggles wrote: »

Rovers, I'm sorry, I know I shouldn't be laughing but.......he couldn't find your cervix?? Where was he looking??? :rotfl:

(I have visions of him checking under the bed, in the cupboard, behind the bedside table.....:))

Snaggles and snapped

Well i'd had ivf to get pregnant and never really believed i'd get a baby out of it so bizarrely I just accepted his inability to establish labour as further proof that this really wasn't happening.... dh and i discussed the under the bed suggestion when he left the room, the midwife who was silent throughout put her head in her hands. he also look at the trace and said "WHAT ARE THESE PEAKS FOR???" i think he may have been slightly stressed!

LondonDiva

Snaggles wrote: »

LondonDiva - thanks for the explanation of the costs - I don't want to take up 3-4 appointments when a clinician could be seeing someone else (did it really sound as though I would? Sort of resented the implication a bit) - I don't think mine will be particularly lengthy, because I don't think there was anything very out of the ordinary about the birth, I just want to put my mind at rest about a few little memories that have resurfaced, and to be able to answer the questions that the CAMHS team are asking. But as I say, it doesn't seem to be urgent or critical that I find out.

The time it takes is the time it takes to ask the questions and put your mind at rest. It does take up the clinicians time and if it's not appt times, it tends to be during their breaks, I was stating the fact rather than passing a judgement on the issue:).

However, knowing that they have to fit it round clinic times is useful to be aware of when they offer you an appt first thing, lunchtime or at the end of the day rather than (like a friend of mine ) thinking they are trying to purposely choose difficult times to arrange the meeting.

Snaggles

As long as I can read the handwriting, I'm not particularly wanting questions answered. If there are any medical terms I don't understand, well, there's always Google.....:rotfl:

Perhaps I misunderstood the tone of your post - it felt like a judgement and I got a bit defensive - but let's not argue about it, this thread has become a source of quite a lot of comfort to me while I'm waiting for a diagnosis, and I don't want to lose that.

I don't mind if people want to have a rant though.....if it gets things off your chest, it's probably quite a healthy thing to do. I may well be ranting a bit myself over the coming few weeks...lol!

Savvy_Sue

I do think people misunderstood the tone of LondonDiva's post, I know I'm not in the middle of this any more so that's perhaps why it just read to me as a factual explanation, and from elsewhere I know she does her very best to be helpful and informative about the processes which have to be followed.

And I did already know that before records could be released they would have to be checked through - I remember having to do something similar when I worked at a University and some applicant who wasn't happy that he hadn't been offered a place put in a formal complaint - so it didn't seem sinister.

And to be fair, surely this would happen whenever a personal file was requested in ANY organisation - a school, a nursing home, your own personnel file at work: if you're asking to look at it, someone in the organisation will surely want to see if there is an obvious load of !!!!!! about to hit the nearest fan ... I know I would!

My biggest worry when that file was requested at university was whether the carbon copies would be legible, because it was in the days of automatic correcting tape on typewriters, and I wasn't as assiduous at correcting the carbons as I went along as I might have been.

Plus - and I don't know here - presumably when you're looking at the file you're in an office or a consulting room or somewhere like that, and for confidentiality reasons you probably can't be just left there on your own, in case you start hacking into the computers or reading other people's files? Not sure why any of you might want to do this, maybe I've been watching too much Spooks!