PIP Renew/Review

thomasbd

Hi all, everyone knows that the whole PIP renew/review process is daunting. Getting it is one challenge but keeping it is another in a few months I got to do the paperwork and I’m quite worried that I’m going to get money lowered or have it all taken from me?
I get enhanced daily living and enhanced mobility for chronic pain syndrome I’ve just turned 18 and because I was under the child rheumatologist I have no diagnoses as he said he strongly thinks I got fybromyalgia and only a adult rheumatologist can diagnose this so he discharged me and my doctors have refered me to an adult one and I’m waiting for an appointment.
I’m scared that when I get to the appointment he/she will say that I’m okay and there’s not much wrong with me and that will play a big part in my next claim as I had a healthcare professional that helped me get it last time and said hope for improvement and diagnoses over the next 3 years but nothings improved I’ve got worse - after many sessions of physio and other crap, I’ve got severe bowel problems since and I just can’t move anymore I take 4 - 5 tramadol at a time and other medication but I’m worried to death of loosing my money as I have no formal diagnoses I know it’s not the diagnoses it’s how it affects you but they might think I’m lying? I’m so so worried as I’ve heard nothing but horror stories.
I’ve gone and had flexible sigmoidoscopy in hospital a few months ago I’ve got to have a urgent MRI on my stomach and got to have a urgent colonoscopy. I had to quit school at a very young age as I couldn’t cope so this has ruined my life.
Am I worrying to much? Only diagnosis I have is Mild scoliosis, Mild degeneration of spine and mild degenerative disks. Witch is all MILD!

poppy12345

You're right, it's not about a diagnosis, it's how those conditions affect you against the PIP descriptors.



When you receive those forms you should treat it as a new claim rather than a review. Answer those questions with as much information as possible about how your conditions affect you, don't just put "no change" send any relevant evidence you have with the form because they very rarely contact anyone for this, the onus is on you to make sure it's sent.



Expect another face to face assessment because most have them, it's rare to have a paper based assessment.

thomasbd

poppy12345 wrote: »

You're right, it's not about a diagnosis, it's how those conditions affect you against the PIP descriptors.



When you receive those forms you should treat it as a new claim rather than a review. Answer those questions with as much information as possible about how your conditions affect you, don't just put "no change" send any relevant evidence you have with the form because they very rarely contact anyone for this, the onus is on you to make sure it's sent.



Expect another face to face assessment because most have them, it's rare to have a paper based assessment.

Yes I have every single letter from the doctors and hospital and consultants that I’ve been involved in witch I’ll be sending I’m currently on the wait for an Autism assessment witch is a big delay as well nothings going to be done it time witch is so stressful
I’ll be getting my mum to fill my form out I can’t bare to look at it to be honest
Last time I never had a Face2Face it was paper based so fingers crossed the same again?