PIP confusion, review or renew form, am I entitled?

Dravah81

I would love some help on my situation if anyone could help please.

I have had and been diagnosed with chronic daily migraines (different types) since 1995 and a few years ago they had found lesions on my brain due to them. They make my body numb, my sight where I can hardly open my eyes, extreme dizziness and near falling due to these and also bedbound most of the time so my husband is my carer. I also had a horrific mental breakdown in 2001 which has left me with PTSD, severe depression, anxiety, panic disorder and crippling agoraphobia. I was currently on ESA which they stopped as I was according to them able to work! But because I didnt claim JSA out of principle in the time I applied for DLA im no longer entitled to the contribution based ESA as I dont have any N.I due to the time i didnt claim for the JSA. In 2016 I applied for Personal Independance payment, which I had to have a home face to face assessment and was awarded 22 points and had the enhanced daily living, but not enough for mobility. I got 2 award letters, one stating I had a 3 year award and a few days later one saying I had an ongoing award, so called them up and was told the ongoing was correct. Just this last week I recieved a review form asking if anything has changed, so confused again I called and the advisor was also confused so put me through to a case manager who told me that the ongoing award had been sent in error as the option of the drop down box was selected wrongly! I said that nothing in my condition had changed so she said just keep it simple and write no change in all the boxes. Now im beginning to think that ive made a big booboo as I had sent the form with just "no change" but didnt think I needed to send any evidence as Im not sure what more evidence they need apart from my blood!!. I put in the extra info that my husband still helps helps me with all of my daily needs and that he is aware of my suicidal thoughts. I also read recently that the law has changed to stop discrimination against mental illness and the mobility part and many cases are getting reviewed and having money back dated. I am unsure of the date that I had called PIP for the forms but I was awarded the enhanced daily living on the 10th of December 2016. Sorry for the long post but Im exteremly worried how they work out if they will continue my award or stop it altogether. so my questions are really:
Can they request another face to face assessment based on me scoring 22 points last time even though no change in circumstances?
If they decided to extend my award, would I be entitled to the enhanced mobility like the many others have recieved back payments due to the new law change for agoraphobia and mental health issues due to not being able to plan a route and going out without anyone. (which I only scored 4 points for at my assessment)
Do they look back at the previous assessment report that I had done in 2016 which as accurate, or can they decide to score me no points from 22 points that I had previous?

I would appreciate very much any replies on this matter, as I feel so discriminated against right now
Thankyou.

poppy12345

It's very difficult to read your post because of the lack of paragraphs but i'll do my best to answer.


All PIP reviews should be treated as a new claim. Putting no change on all of the questions doesn't tell them anything. You need to tell them exactly how your conditions affect you and support that claim with evidence because they very rarely contact anyone for this. The onus is on you to make sure it's sent to support your claim.


Most people have face 2 face assessments even for a review. It's rare to have a paper based assessment and as you sent no evidence and putting no change then i'd expect this assessment again. No award is safe.



No one here can tell you whether you'll be entitled to Enhanced mobility, that will totally depend on how your conditions affect you.



As for the change in rules with the PIP descriptors for following and planning a journey then DWP are in the process of going through all claims after a certain date. Once they've looked at your claim they will contact you with a decision and there's no need to contact them. This is totally different to your current review.



Good luck.

Dravah81

Thankyou for your reply.

Sorry about the lack of paragraphs as I am using all my energy at the moment to even get some answers. When I spoke to the case manager she was either fobbing me off or not really interested. It also said on the form that if no change then I need not send anymore evidence in only if they ask for it.

Is it too late to send in evidence from my husband? as my gp will only tell me they have had enough evidence 2 years ago.
I wish this wasnt so complicated as we have enough stress to deal with let alone them not explaining that we need to treat this like a renew form.

poppy12345

Dravah81 wrote: »

Thankyou for your reply.

Sorry about the lack of paragraphs as I am using all my energy at the moment to even get some answers. When I spoke to the case manager she was either fobbing me off or not really interested. It also said on the form that if no change then I need not send anymore evidence in only if they ask for it.

Is it too late to send in evidence from my husband? as my gp will only tell me they have had enough evidence 2 years ago.
I wish this wasnt so complicated as we have enough stress to deal with let alone them not explaining that we need to treat this like a renew form.

You can certainly try to send evidence, whether it will be used or not i have no idea. Make sure you put your NI number and name on the top of everything you send. It may also be better to send it straight to the assessment providers rather than the DWP because the DWP will send your form to them.


Are you sure it said on the form not to send evidence if there's no change? I'm currently going through my daughter's PIP review (i'm her appointee) and on the front of the form it had 2 lists, one with what to send and another list of what not to send. There was nothing on there saying if there's no change not to send evidence in. They very rarely ask anyone for this.

Dravah81

Yes, I was also told this by the case manager that they will contact me if more evidence needed.

poppy12345

Dravah81 wrote: »

Yes, I was also told this by the case manager that they will contact me if more evidence needed.

No, this is not correct. If they contact anyone for evidence it will be who ever you put down on the form and it's rare they do this.