M.E. or chronic fatigue syndrome info plz

Ted_Hutchinson

As this is supposed to be a MONEYSAVING health board I think this may get moved to the General Discussion forum. However before it does I'd like to post some MEDICAL Information which may help you understand the condition.

The current betting is that CFS is part of a group of autoimmune conditions see Theoretical arguments have implicated these substances in autoimmune phenomena resulting in fatigue-related conditions such as chronic fatigue syndrome (CFS), sudden infant death syndrome (SIDS), fibromyalgia (FM) and Gulf War syndrome (GWS) but remain unproven.

We know also in other atuoimmune conditions vitamin d deficiency is implicated. Vitamin D deficiency in systemic lupus erythematosus. is one example but there are others.

We know that Vitamin D3 is involved in the regulation of the immune response Immunoregulation by 1,25-dihydroxyvitamin D3: basic concepts
I appreciate the accounts below do not represent a complete sample of the CFS population but it's interesting to note the seasonal aspect in these cases.
Ensuring your Vitamin D3 levels remain at the highest possible may help you feel consistently well throughout the year. If you search the site for vitamin d3 cholecalciferol I think I may have mentioned it before.

and these posts will tell you where to get it and how much to take.

fabaroo

Thanks Ted x

fabaroo

New to this web site and hadn't read the rules (have now) i realise its not money saving and its in the wrong place, whoops sorrrryyyyyyyy xxx

Savvy_Sue

But there's a long thread here and a few more if you search this board for chronic fatigue, but the one I've linked to is the one I remember best. Ah, this is another interesting one I remember.

emmiemac

I've been ill with M.E. for about five years now, and have not worked for three. I have found that doctors are usually totally ignorant about the illness and chances are that if you have done any sort of research yourself, you will know more than they do.

Michelle, you will probably find your doctor to be extremely reluctant to give the diagnosis. Partly through lack of knowledge and also because they seem to think that it is not good for recovery to realise that you may be ill for some time. I have recently been to see a new doctor who has put me on a waiting list for cognitive behavioural therapy, this is the first thing I have been offered.

My experience of the illness is that progress is slow unfortunately. Jen, I understand your frustration, it can be really hard to stay positive but you have to think that this is an illness where sufferers can only get better if they treat themselves well. The viral symptoms are your body saying that you're doing too much. Keep up the pacing, I think it's the best form of management. I would recommend cutting your working hours if possible so you're not constantly getting ill then having to rest up to be back to 'normal' again.

Good luck, be healthy!

fabaroo

Thank you emmiemac, i think you may be right!!!
I have probably been doing too much.
I hope that you don't have to wait long for cognitive behavioural therapy.

Take care jen x

hjb123

Radio 2 today 1pm til 2pm is on CFS/ME

hjb123

An article in the daily mail today about a drug that could possibly cure ME/CFS. It is normally used to treat Herpes infections but has also produced a dramatic improvement in patients severely affected by ME/CFS.

The article is also online at:
http://www.dailymail.co.uk/pages/live/articles/health/healthmain.html?in_article_id=386443&in_page_id=1774&in_a_source=

Dora_the_Explorer_5

If an effective treatment has been discovered, that's really good news. The study covered 12 people with CFS, so if more studies using standard scientific methodology can be carried out using which produce the same results with other and much larger groups we may see the end of people's lives being severely disrupted by CFS/ME. Hopefully the drug company will fund the research.

hjb123

I hope so too, if a drug could be found that cured or at least helped people who have had and have their lives disrupted so much by ME, it would be an absolute lifesaver!