Nhs continuing healthcare 16 December 2016 at 10:49PM edited 30 November -1 at 12:00AM in Over 50s Money Saving 41 replies 14.8K views

Browntoa

I've got the feeling in going to have to go through this for a relative.

Double incontinence

Injection for diabetes ( observed by diabetic nurse practitioner and respite home as unable to self medicate)

Vascular dementia

Very poor mobility , danger of falls

Refuses/not able to wash so hygiene poor

Open sores on legs as a side issue from diabetes , possibly cause of persistent low level infection (due to dementia they pick at wound continually if Ieft uncovered)

3 ambulance call outs and admissions to hospital in last 9 months , the last by the visiting diabetic nurse who was concerned about his health not by his family.

I may start a new thread detailing the whole process from start to finish.

Browntoa

Well with my help after reading this thread a letter delivered to the hospital (they are in an acute care ward) stating the LPA attorney says that they :-

do not have mental capacity to make own decisions

All discussions to be with the attorney not his wife ( attorney also has LPA for them).

Full CHC evaluation to take place.

Under no circumstances is he to be sent home (failed hospital discharge is very costly to the trust )

We will see what happens next

Also a separate PALS complaint after a phone call from someone in the hospital , assume the bed management team, saying to his wife that " we are sending him home and there is nothing you can do to stop it " . Totally disgusting behaviour which I assume is happening to other poor people

elsien

Sometimes it's a case of one hand not knowing what the other is doing
Just been working with the dscharge team to decide whether someone can go home or needs a palliative care bed. I was promised nothing would happen till I'd done my bit. Person discharged by ward without discharge teams knowledge.

Good luck with it all.
ETA - for those who may not know, being given CHC funding doesn't mean it's there permanently. There are 6 week then annual reviews and sometimes the person No longer qualifies. Which may seem counterintuitive as dementia progresses, but if the funding is mainly due (for example) to behavioural issues and behaviour settles than can be assessed as full nursing funded no longer being needed.

Browntoa

They can discharge but equally you can refuse to accept them at the door.

JRichFleur

Clearly everyone is being misinformed about the criteria for Continuing Healthcare Funding. The misinformation/mismanagement is national - and I am afraid intentional from the top down. I will post more info for you but the first thing that everyone facing this needs to do is sign this petition: google this (start a public enquiry into NHS continuing healthcare) and it should come up top of the list in google.

Browntoa

I've noticed ageuk recommend beacon

https://www.beaconchc.co.uk/faqs/screening-checklist/

Who have a checklist and helpline.

I noticed that they also handle appeals for you for a fee

JRichFleur

Very useful information on the issue of CHC on You Tube by Professor Luke Clements on The Care System and Continuing Healthcare. His lecture series (easy to understand) will also provide links to further educate on the legal issues of CHC and Care (usually illegally ignored by the NHS). In the meantime please go to Google and google this: 'Start a public enquiry into NHS continuing healthcare' it should come up top of the list in google.

Browntoa

Well at the moment we have no CHC done but just got fully funded local council place as they have minimal assets.

Interestingly he was assessed in hospital as being competent mentally by the panel and he was moved from hospital to an assessment unit care home.

we had a family meeting with just the hospital social worker within 5 minutes she looked at us and said "he's not got mental capacity has he" and everything happened quickly after that.

His permanent place is in the care home attached to the assessment unit so minimum upheaval

JRichFleur

Browntoa wrote: »

Well at the moment we have no CHC done but just got fully funded local council place as they have minimal assets.

Interestingly he was assessed in hospital as being competent mentally by the panel and he was moved from hospital to an assessment unit care home.

we had a family meeting with just the hospital social worker within 5 minutes she looked at us and said "he's not got mental capacity has he" and everything happened quickly after that.

His permanent place is in the care home attached to the assessment unit so minimum upheaval

No one here appears to have done the extensive amount of research that is necessary to really know what rules apply when a person is assessed for CHC. Even the 'assessors' are not trained in the Law that lies behind this funding. The system is rife with deliberate misinformation and often illegally denies funding relying on the fact that people can't access clear information easily. Unfortunately despite having been registered with this forum for more than 10 years so far I have been unable to post useful links here. Best starting point are youtube videos by Professor Luke Clements :
"Social Care Law Lecture Series - NHS Continuing Health Care & Law"

then use useful forums such as Care to Be Different. I will say you need to study everything you can including all the care acts. If I am given the opportunity I will post links at some point. In the meantime please sign and post the petition (copy and paste: Start a public enquiry into NHS Continuing Healthcare ). I will try to add the link.

Browntoa wrote: »

Well at the moment we have no CHC done but just got fully funded local council place as they have minimal assets.

Interestingly he was assessed in hospital as being competent mentally by the panel and he was moved from hospital to an assessment unit care home.

we had a family meeting with just the hospital social worker within 5 minutes she looked at us and said "he's not got mental capacity has he" and everything happened quickly after that.

Browntoa wrote: »

His permanent place is in the care home attached to the assessment unit so minimum upheaval

No one here appears to have done the extensive amount of research that is necessary to really know what rules apply when a person is assessed for CHC. Even the 'assessors' are not trained in the Law that lies behind this funding. The system is rife with deliberate misinformation and often illegally denies funding relying on the fact that people can't access clear information easily. Unfortunately despite having been registered with this forum for more than 10 years so far I have been unable to post useful links here. Best starting point are youtube videos by Professor Luke Clements :
"Social Care Law Lecture Series - NHS Continuing Health Care & Law"

then use useful forums such as Care to Be Different. I will say you need to study everything you can including all the care acts. If I am given the opportunity I will post links at some point. In the meantime please sign and post the petition (copy and paste: Start a public enquiry into NHS Continuing Healthcare ). Tried to add the link but not allowed.

JRichFleur

Apologies for the double post no idea how that happened.