Fund raising advice

GlasweJen

Oh and I was medically retired when I got my transplant in my early 20s. For my work it was just a nice way of saying fired but they did give me 3 months wages as a lump sum.

Mupette

Spoken to the Union this morning.

I have a problem i just don't know what to do about.

We get rounds of colds and coughs and flu's and although these make me ill, i just have to suck it up.

But when my TL comes in with Conjunctivitis and stays working i got worried, we are a contact centre all open plan, and if you need her help she comes over and uses mouse and keyboard as norm. worried about how contagious it is i'm told if i don't lick her eyeballs i should be fine :eek:

I became ill a few weeks later and MS nurse confirmed what i suspected was a relapse, It was only last week i was able to see my MS consultant who was concerned I also had perforated both eardrums, he said this relapse he felt was brought on by a virus.

NHS Uk

Public Health England (PHE) advises that you don't need to stay away from work or school if you or your child has conjunctivitis, unless you (or they) are feeling particularly unwell.
If there are a number of conjunctivitis cases at your child's school or nursery, you may be advised to keep them away until their infection has cleared up.
Generally, adults who work in close contact with others, or share equipment such as phones and computers, shouldn't return to work until the discharge has cleared up.

her eyes were streaming all week.

complications of conjunctivitis can be Middle ear infection - aka perforated eardrums. I may well just be putting 2 + 2 together and missing the whole point.

But these last few months I've been so ill, I just wanted to work, But I'll be the one with less wages, suffering with ill health, and all associated with a relapse, I'm the one who suffers (oh god thats all me me me me) and a MAT meeting to stress over.

Personally i feel she was irresponsible and made no thought to other staff who have low immune systems, (not just me) she was selfish, But then again she want's her record to be clean and not off sick unless she really needs to, as work policy's do frown on people who go sick.

sangie595

Mupette wrote: »

I been told to look at trusts, so that someone else holds the fundraising in trust for my treatment, again i wouldn't want that to be seen hiding money. so torn about that.

I can't really help on the benefits side of things, but I can tell you that if you have been making money without a proper formal structure to this, then it isn't "fundraising" - it is income and HMRC expect you to pay taxes on it. And you can't "backdate" a trust - so if you have earned money in the past you need to sort this out now with HMRC, because you do not want them finding out on their own.

And I would have to check up on this, but I think that fundraising for an individual is still taxable - a charity has to be for a segment of the population, so it would need to be a private trust or a limited company, and neither have any tax exemptions as far as I can recall. It definitely isn't as simple as just saying you are raising money for XX and that is all you have to do.

I would strongly advise you to get some advice about all this now, whatever you decide to do about your job.

Mupette

sangie595 wrote: »

I can't really help on the benefits side of things, but I can tell you that if you have been making money without a proper formal structure to this, then it isn't "fundraising" - it is income and HMRC expect you to pay taxes on it. And you can't "backdate" a trust - so if you have earned money in the past you need to sort this out now with HMRC, because you do not want them finding out on their own.

And I would have to check up on this, but I think that fundraising for an individual is still taxable - a charity has to be for a segment of the population, so it would need to be a private trust or a limited company, and neither have any tax exemptions as far as I can recall. It definitely isn't as simple as just saying you are raising money for XX and that is all you have to do.

I would strongly advise you to get some advice about all this now, whatever you decide to do about your job.

None of the money has been earned by me, tax already has been paid by the people who have donated., have been trying to sort this out with HRMC

But if you do find something would you link it i really would be greatful.

I can't become a charity or non profit because i am not allowed to benefit from the cause. That we do know.

sangie595

Mupette wrote: »

None of the money has been earned by me, tax already has been paid by the people who have donated., have been trying to sort this out with HRMC

But if you do find something would you link it i really would be greatful.

I can't become a charity or non profit because i am not allowed to benefit from the cause. That we do know.

As far as I understand it though, it is still taxable income. A gift must comes from a relative or friend, I think - otherwise it is income from others. I'm not an expert on this, but I picked up a bit when I worked with charities. But I know that it has nothing to do with whether the people giving it to you have paid tax - it is about what the income is classed as when you receive it. Think of it like it was a company. You have paid tax on your income, but that does not mean that Asda get to pay no tax on their earnings!

sangie595

I found something finally - https://www.gov.uk/trusts-taxes/overview All this has convinced me of is the fact that you need professional advice from someone, because it's complex!

Bananas123

I still can't see properly, hearing has not returned fully, mobility is shot. I've worked part time for only 4 years its not long, But its destroyed any quality of life i ever had.

/\ that sounds like you should be on ESA, ON THE BASIS, work is deteriorating your health > if work is doing that then you should stop, no ?.

but "raising funds" is NOT a valid reason to be on the esa:

i don't know why other people can't tell the difference ???

---

please other people mind your own buisness, if you don't like it, don't comment

people get diagnosed with clinical "broad terms"

> for you to insinuate i was being "mean" on the basis they have MS (BROAD TERM) (you can look above me telling what esa is for / that they would be eligable for PIP etc > (having been through the esa process, having not had access to treatment myself)).

if you go to the dwp saying "i want to claim money for treatment i am not eligable for on the NHS" (THIS IS SAYING YOU WANT TO USE ESA AS "SPENDING MONEY" > you are going to get a massive 0 thrown in your face > OK.

"don't tell them the truth, because they have MS"

> NO

how about you !!!!!!!!s stop patronising sick people ?.

sorry OP, i wasn't having a go etc (like i said above) if work is making you sick, you should definately consider, looking for something that doesn't or apply for esa, you can volunteer on esa and earn a little, like i posted above...

but gaining access to funds, for private spending (treatment), is not a valid reason to do so, and will, logically count against you....

i will go from the thread though, unless you directly ask me to claify anything.

goodluck

GlasweJen

How would seeking private treatment go against you? It's no ones business what you spend your benefits on, especially when they're contributions based and there's a partner in the background keeping a roof over your head and food on the table.

I am in a clinical trial, pay for private therapy and drugs that aren't available on the NHS as well as time in a private hospital every 4 weeks on a normal saline drip as i have problems maintaining blood volume and the NHS don't give normal saline for that. I pay for this with wages and PIP and it's no ones business what funds go towards what.

And yes the DWP know as I sent them receipts as part of my recent PIP appeal.

densol_2

Bananas - great user name ! Totally appropriate lol

dippy3103

If it's money available to you to spend (however you do spend it) then it's income and will be viewed as such. Perhaps permitted work may be an option for you, but either you have an income or you don't.

To put it another way. I am in full time work. I also have a disability and I pay for physio as the NHS won't. So my physio is paid for by my wages- the money I spend on physio is merely money in my income "pot" and how I spend it is irrelevant.

I totally understand where you are coming from and understand why you are looking at it that way.

You are obviously an honest person seeking to do this correctly within law. I don't know, but it wouldn't surprise me if in order for money to be treated as fundraising that you need to be a registered charity.

The best advice is for you to take legal advice from someone in possession of all the facts- and that that person needs to be qualified in the field