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Financial help for palliative care

Hi. I really need advice asap....my mum has been diagnosed with cancer and the outlook is bleak. She is elderly living on her own. We live about half an hour away. Unfortunately I work full time....I would love to be able to look after her full-time..... however it sadly comes down to finances. Has anyone had experience of where to start....it looks horribly complicated....I have spoken to Marie curie who directed me to government helpline....they just said they would send me an attendance claim form and couldn't help further.... so I am hoping that someone may have some help here? thanks in advance

Comments

  • nannytone_2
    nannytone_2 Posts: 13,013 Forumite
    Part of the Furniture 10,000 Posts Name Dropper Combo Breaker
    phone social services and ask for an adult assessment.
    also macmillan
  • waveycat
    waveycat Posts: 16 Forumite
    Thank you for your time
  • Mojisola
    Mojisola Posts: 35,574 Forumite
    Part of the Furniture 10,000 Posts Name Dropper
    waveycat wrote: »
    I have spoken to Marie curie who directed me to government helpline....they just said they would send me an attendance claim form and couldn't help further....

    Sorry to hear your news.

    That is all the DWP can do - they don't deal with the day-to-day issues.

    I echo nannytone's suggestions about Social Services and Macmillan nurses.

    Under the 'special rules' a person who is not expected to survive six months will automatically receive the relevant benefit without having to fill in all the forms. You will need to get your mother's surgery to sign the Attendance Allowance claim form.

    Contact the Macmillan nurses in her area - they are usually very helpful and know all the people to contact.

    She should at least get an assessment done by Social Services and help put in place.

    Also look at getting Power of Attorney for your mother. If she becomes unable to manage her own finances, someone else will have to take over.
  • waveycat
    waveycat Posts: 16 Forumite
    Thank you....yes that sounds like a good idea. I will sort that out asap. The power of attorney is all sorted...she was forward thinking.

    Thanks again
  • mum2one
    mum2one Posts: 16,279 Forumite
    Xmas Saver!
    Re Attendance Allowance - if your mum has been told she has 6 mths or less you need to ask the doctor to fill in the form ds500 (something like that).

    This then go to the Attendance allowance, who rush it through on special needs and give high rate AA - apr £88 a week.

    (We had problems when I sent the form on behalf of my dad they refused to up his allowance - I had to appeal and inform them of there rules).

    Social services - ask for an adult assesment

    Local Hospice - Has your mum been referred to a local hospice ((when my dad had cancer 1st time, he went to the hospice once a week for day care).

    Pallative care - My dads care was between the GP surgery and the hospice, they sent out a nurse once a week to check up on him, he was offered additional time at the day care centre of the hospice.

    On our case it was planned that Dad would go into the hospice at the end / when pain got too much... which the pain got too much overngt, plans were made, - he passed away within 24hrs of the bad pain.

    He was told in Feb - he had weeks left, would be unlikely he would be with us at Easter, he saw past Easter, we lost him on Friday x
    xx rip dad... we had our ups and downs but we’re always be family xx
  • Alice_Holt
    Alice_Holt Posts: 6,094 Forumite
    Ninth Anniversary 1,000 Posts Name Dropper
    Your mum may be able to get help from Macmillan. They have benefit specailists who could help with the AA application. It may be possible to get a Macmillan grant.
    http://www.macmillan.org.uk/information-and-support/organising/benefits-and-financial-support
    Once your mum gets AA, you may be able to claim Carers Allowance.

    Or try your local CAB for help with the AA form etc.
    Alice Holt Forest situated some 4 miles south of Farnham forms the most northerly gateway to the South Downs National Park.
  • teddysmum
    teddysmum Posts: 9,533 Forumite
    Part of the Furniture 1,000 Posts Combo Breaker
    MacMillan also have their own non-nursing home care team, called Daffodils.
  • waveycat
    waveycat Posts: 16 Forumite
    Thank you everyone for your time and help....lots of help.much appreciated.
  • Mojisola
    Mojisola Posts: 35,574 Forumite
    Part of the Furniture 10,000 Posts Name Dropper
    waveycat wrote: »
    Thank you everyone for your time and help....lots of help.much appreciated.

    More questions will probably arise - do come back for answers or just for support if things get you down.
  • waveycat
    waveycat Posts: 16 Forumite
    How lovely of you.... thank you
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