What can I claim?

Howitto

GlasweJen wrote: »

You have severe allergies and you're only on piriton? Surely if it's severe you have an epipen and take something like fexofenadine as a preventer? Really gets on my nerves when people with regular allergies call them severe, severe = anaphylaxis.

Why not ask your GP for some referrals to help with your ailments? Most of them can be well controlled like the acid reflux and post nasal drip. If your asthma is that bad you might need steroids for a while and a sinus rinse might help with your pressure headaches.

I've had fexofenadine in the past but had to stop taking it as made me vomit. Unfortunately I do not know why that's all that's given me, I've been hospitalised 4 times this year due to my allergies, most notably severe reaction to Aspirin where my a lot of my body swelled up and caused an asthma attack. Currently using Budesonide rinse for my sinuses but not really shifting much hence my 4th surgery 2 weeks ago to relieve some pressure. Post Natal Drip hasn't been controlled in years due to constant sinus infections.

I'm currently seeing a respiratory specialist and on process of trying new medication called Xolair. It's for allergic Asthma so hopefully I can get my allergies under control, which will then improve my sinuses and then allow my asthma to be controlled. Such a vicious cycle.

I'm also seeing a physiotherapist tomorrow, ongoing private counselling and regularly seeing my ENT surgeon

I'm currently on steroids, think it's around my 35th course this year at 45mg. Hate the things and turn me into a horrible person. Mood swings etc and put on nearly 3 stone in a year. Had so many that I had to have a bone density scan and determined I had Osteoporosis. Most effected was my spine.

Poppie68 wrote: »

I'm surprised the GP is giving you codeine if they cause you headaches and you all ready suffer from pressure headaches? Omeprazole is usually given with Codiene because they can cause Acid reflux so if your codeine was changed this should alleviate your headaches and rash.

Apart from Paracetamol, I'm not sure what else I can take. I'm allergic to Ibuprofen and Aspirin and Paracetamol not really strong enough to control my pain.

Howitto

teddysmum wrote: »

OP,there are alternatives to Omeprazole; Lansoprazole for instance.


I was on the latter, became intolerant, over time, and was changed to the former.


I also found that codeine was ineffective, after a while, so was put onto another drug.


Perhaps you are due for a drugs reassessment with your GP.

Hi!

I was formally on Lansoperazole but was taken off of it and had no effect. Given that I now struggle to swallow my food without having to wash it down with a drink, I may have to see someone about it as not sure that's normal. Can be quite painful at times too.

I've now stopped taking codeine and just taking regular paracetamol until I see my GP and as you've suggested, review my drugs.

Howitto

I feel so much at ease today that I'm able to talk about my problems!

It's making me so frustrated, I'm turning into a horrible person. I'm always grumpy, I verbally lash out at my partner and daughter and I just hate myself. Counselling helps but not for long and I'm back to being horrible. I've now referred myself to anger management so discuss issues and how to help me.

GlasweJen

Have you been to an allergy clinic? I'd be pushing to see a specialist in allergies rather than a general respiratory clinic.

When you do the rinse are you getting anything out? I get just water but if I gently blow my nose after I get piles of gunk (sorry!), if I hadn't been told to try this that would have just sat inside my sinus cavity.

I built up a tolerance to piriton and was put on 2 classes of antihistamines, an H1 and H2 inhibitor so they compounded each other and helped reduce the symptoms - this was through the allergy clinic. If you're sensitive then one antihistamine won't cut it and the allergy clinic can help to make sure you don't end up on a drowsy medication.

It's no wonder you're having mood swings when you're getting messed about so much. Have you tried CBT? Can be done online through a link from your health board initially and can then progress to face to face sessions if needed.

Poppie68

oliverhowitt wrote: »

I've had fexofenadine in the past but had to stop taking it as made me vomit. Unfortunately I do not know why that's all that's given me, I've been hospitalised 4 times this year due to my allergies, most notably severe reaction to Aspirin where my a lot of my body swelled up and caused an asthma attack. Currently using Budesonide rinse for my sinuses but not really shifting much hence my 4th surgery 2 weeks ago to relieve some pressure. Post Natal Drip hasn't been controlled in years due to constant sinus infections.

I'm currently seeing a respiratory specialist and on process of trying new medication called Xolair. It's for allergic Asthma so hopefully I can get my allergies under control, which will then improve my sinuses and then allow my asthma to be controlled. Such a vicious cycle.

I'm also seeing a physiotherapist tomorrow, ongoing private counselling and regularly seeing my ENT surgeon

I'm currently on steroids, think it's around my 35th course this year at 45mg. Hate the things and turn me into a horrible person. Mood swings etc and put on nearly 3 stone in a year. Had so many that I had to have a bone density scan and determined I had Osteoporosis. Most effected was my spine.



Apart from Paracetamol, I'm not sure what else I can take. I'm allergic to Ibuprofen and Aspirin and Paracetamol not really strong enough to control my pain.

I'm surprised you were prescribed Aspirin as people with asthma and nasal polyps are move sensitive to it.

If diazepam is making you sleepy you need to spk to your GP as this isn't a common side effect, there are other alternatives to Codeine which are stronger than paracetamol.... When was the last time you had a medication review?it maybe a good idea to book one with your GP.

Poppie68

oliverhowitt wrote: »

I feel so much at ease today that I'm able to talk about my problems!

It's making me so frustrated, I'm turning into a horrible person. I'm always grumpy, I verbally lash out at my partner and daughter and I just hate myself. Counselling helps but not for long and I'm back to being horrible. I've now referred myself to anger management so discuss issues and how to help me.

I found citalopram turned me into a very angry person and actually compounded my depression.... I was put onto an alternative anti depressant which has worked well.

Howitto

GlasweJen wrote: »

Have you been to an allergy clinic? I'd be pushing to see a specialist in allergies rather than a general respiratory clinic.

When you do the rinse are you getting anything out? I get just water but if I gently blow my nose after I get piles of gunk (sorry!), if I hadn't been told to try this that would have just sat inside my sinus cavity.

I built up a tolerance to piriton and was put on 2 classes of antihistamines, an H1 and H2 inhibitor so they compounded each other and helped reduce the symptoms - this was through the allergy clinic. If you're sensitive then one antihistamine won't cut it and the allergy clinic can help to make sure you don't end up on a drowsy medication.

It's no wonder you're having mood swings when you're getting messed about so much. Have you tried CBT? Can be done online through a link from your health board initially and can then progress to face to face sessions if needed.

I've been to an allergy clinic in the past but it was like the most basic one you can think of. Think they performed several !!!!! tests and confirmed what I already knew (Grass, mold and cats etc) I really need a more thorough test but GP doesn't seem to take seriously! I'm toying with idea of now going private...

I've looked at CBT and looks like something that may be able to help. It says on NHS could be waiting a while until get an appointment so may look at going private again. And yes when I do sinus rinses, I do get a lot of gunk. It's always green/yellow/orange and I cannot remember a time when it was just clear!

Howitto

Poppie68 wrote: »

I'm surprised you were prescribed Aspirin as people with asthma and nasal polyps are move sensitive to it.

If diazepam is making you sleepy you need to spk to your GP as this isn't a common side effect, there are other alternatives to Codeine which are stronger than paracetamol.... When was the last time you had a medication review?it maybe a good idea to book one with your GP.

Sorry, my grammar wasn't great then. I'm allergic to both Aspirin and Ibuprofen. Never been prescribed either. Only took the former by accident this year; that's what you get when you take medication when you're half asleep. Lesson learn't.

Howitto

Poppie68 wrote: »

I found citalopram turned me into a very angry person and actually compounded my depression.... I was put onto an alternative anti depressant which has worked well.

Interesting. I will book a review in and mention all side effects. What alternate is there for Citalopram?

Howitto

Have now decided to claim just PIP. Thankfully the place I work have agreed to keep a position open for me when I get some issues under control. I have told myself to slowly go out and get used to being around people again. When I have done that, I have agreed to slowly do few days a week and reevaluate after couple of months. That way I don't go mad staying at home 24/7 and give me some confidence back.