Is my child entitled to any help?

teabody

Hi, my son has not been officially diagnosed with anything but last year i spoke to his school after concerns from family and friends about his balance and general abilities. They think it is dispraxia. This was discussed last June and the school have put him in a program called Kool Kids. At this point I thought he would be referred but not the case so I took him to the GP myself who referred him to hospital. Today we saw a Registrar who thought he had cerebral palsy, but it was then ruled out from previous neonatal scans( he was premature). After discussion with a consultant, they agreed he has a Gross Motor skills and fine motor skills problem and he is being referred to Occupational therapy. She also said he will need a special education plan in the future as it will impact on his learning. His reading is not at his intellectual level and physical activities are becoming more difficult as children around him develop. He is also more naive and I am keen to make sure he remains included. Therefore, I am wondering what help is available for his developmental needs....for him to attend extra physical activity and perhaps for the use of facillities that will enable him to keep up. Any guidance would be appreciated.

KEROUAC1957

Hi teabody

My son also has gross motor skills and fine motor skills problems. After much hassling of doctors etc we discovered my son has Dispraxia. As well as this he has Ehlers Danlos syndrome, hypermobility, POTS (Postural Tachycardia Syndrome) and sensory processing disorder. Quite often these conditions are linked together so I would look into them and see if any fit your son. I'm not saying he will have all of them but it is worth checking. Sensory Processing disorder and hypermobility are probably the most likely to be connected with dispraxia. These are disabilities so I believe you can get help. Hope this helps.

teabody

Thank you for that.....he does display a lot of the symptoms....will look out for discussion on these when we visit the Occupational therapist.

Fizzy11

Contact the Dyspraxia Association. No two people are the same. My son is 29 & was diagnosed very young. Important that your son gets the help & personally I would speak to school about SOSE or whatever it's called now. Good luck.

carolan78

If you're on facebook look for a group called dyspraxia a friendly ear. The group has been a huge help to me.

teabody

Thank you so much for pointing me in the direction of help with this.