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On a medical merry go round, any support?

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Comments

  • Confuseddot
    Confuseddot Posts: 1,755 Forumite
    Just wanted to add that I hope you can see a more supportive gp and get something in place to help you. I am very lucky to have a great gp and CPN but it took a long time and lots of false starts. Good Luck !!!
    Play nice :eek: Just because I am paranoid doesn't mean they are not out to get me.:j
  • Mupette
    Mupette Posts: 4,599 Forumite
    I feel stuck in a rut too, having more than one thing wrong, gp does't know which box to put me in, if there is something unexplained oh well it must be an MS thing, well most times it isnt, its OA then, well no its not, currently have tennis elbow (gp thinks) but then my hand swelled up so off for xray and bloods, xray clear white blood count up a little so perhaps not arthritis in my hand (although in knees and hip) but i take drugs for ms which lowers white bloods so the blood test had false reading, and that's it, dumped again no further investigation, its my dominant hand, in pain, driving to work and working is aggravating it.

    Although i have a bloody good bunch of MS friends now, this does help, as for the rest meh
    GNU
    Terry Pratchett
    ((((Ripples))))
  • Have you talked to your local health board/trust?


    They have the overall BIG picture of facilities and pathways and services in the area you live and assist in things where one specialist refers to the other and the other refers you on to someone else because it not their expertise to deal with it. The local health trust or board should be able to look into who you should be with as in specialist wise.


    I found that contacting my LHB put in the right direction with my MH and my brittle asthma.


    Like previously said the type of asthma is mis understood and often overlooked, and it happened with other conditions even with serious life changing ones, I would contact the health board under a complaint due to lack of access to treatment and facilities and see how they respond back usually they call you by phone to discuss you issues and then investigate what is going on and where you should be in the system rather than different department enter you into the oblivion of nothingness and confusions.
  • Not sure where you are, but in a lot of areas, you can self refer for IAPT services, where you might find better psych support in coping.
    I could dream to wide extremes, I could do or die: I could yawn and be withdrawn and watch the world go by.
    colinw wrote: »
    Yup you are officially Rock n Roll :D
  • GlasweJen
    GlasweJen Posts: 7,451 Forumite
    Part of the Furniture 1,000 Posts Name Dropper Combo Breaker
    I've tried googling IAPT and my local health board but nothing comes up. Is it maybe an England only thing?
  • GlasweJen wrote: »
    I've tried googling IAPT and my local health board but nothing comes up. Is it maybe an England only thing?

    Might be. It stands for improved access to psychological services. The IAPT website may give more information. However, MIND may also have advice for other ways to self refer; that also happens in my area, despite actual NHS levels of psych care being pretty abysmal and GPs not having a clue about any of these services.
    I could dream to wide extremes, I could do or die: I could yawn and be withdrawn and watch the world go by.
    colinw wrote: »
    Yup you are officially Rock n Roll :D
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