Child dla to adult pip

earwig

Hi I am wondering if you can help please .
My daughter is nearly 16 and has been claiming dla since the age of 8 . My daughter suffers from autism ,urine incontance ( caused by a side effect of a medication ) ,mental health issues including acute anxiety.


In the letter it states that my daughter could have an appointee . Im not sure if she needs one as she can communicate quite well with people she know well . However if she does not know you she would not seek any help from you or let you know if she was having problems . An example of this would be if she was beaning hurt by someone she would not tell you if she didn't know you well, or if there was a problem with her benefits she would not phone up and speak to a stranger to find out what the problem is .


To be honest I don't know how she would cope at an medical interview . I think she would just say she is fine to avoid going or to get it over with quick . Has anyone else had any experience of going from child dla to adult pip it seem very daunting for a 16 year old to deal with .


If you was to look at my daughter you would think there is nothing wrong with her . yet she has a statement of education needs( just granted this year ) she can not do normal lessons at school as she cant cope with the large class numbers so has to have medical needs come and teach her, and can only do 5 exams instead of the 11 her peers are doing as she cant cope with the work load despite being a very clever girl . I do worry that a medical officer will think there nothing wrong with her and its just a stage she going through .
Any advice would be great


Thank you xx

kingfisherblue

I can only tell you my experience, but I hope it will help.


My son is 16, and five months before his birthday, I received a letter about appointeeship. My son is unable to deal with money, so I signed the form saying that I will be his appointee. This triggered a visit from the DWP, who made an appointment to see us both at home. She was able to see that my son, who has Down's Syndrome and numerous other conditions, is not capable of looking after his own money.


Regarding PIP, my son is in receipt of an indefinite award for HTC and HRM. As his award is indefinite, his transition to PIP will only begin after October 2015 (because of the backlog). I was told that those with a finish date will be assessed approximately six months after the finish date. In the meantime, all teens going from DLA to PIP, will continue to receive their current rate of DLA until a decision has been made about PIP.


I understand that the parent can attend the PIP medical with the young person. In addition, although everyone was originally going to have a medical before transferring to PIP, I have read that some people don't have a medical - I assume that this is based on their illness or condition, and on any evidence from consultants or other specialists.


If a medical is required, sometimes it can be held at home. I don't know enough about this, but other posters will have more information.


Presumably you have evidence that your daughter has autism - an assessor cannot then say it is just a stage that she is going through. However, she might become more adept at dealing with problems as she matures - I'm not saying that she will, just that she might.


Have a read through the other threads on here about transferring from DLA to PIP. I'm sure that there will be more information to help you. You could also contact the NAS for help.

Indie_Kid

kingfisherblue wrote: »

I understand that the parent can attend the PIP medical with the young person.

Yes

In addition, although everyone was originally going to have a medical before transferring to PIP, I have read that some people don't have a medical - I assume that this is based on their illness or condition, and on any evidence from consultants or other specialists.

From what I've read on the forum, this appears to be the case. I know under ESA, some of us haven't had the medical because we've sent in enough evidence and a decision can be made just from the evidence and form. It doesn't, with the exception of terminal illness, appear to be based on the condition you have. The idea of the medical is to gather more information if this is needed.

One thing you may need to consider is whether she can budget adequately. For example, would she know that she has x amount of money and needs to save up to buy something that she needs? Or would she just spend the money and go without for the rest of the month?

If she won't pone up if there was a problem with her benefits, it may be worth you being her appointee, which means you deal with everything in relation to her benefits. It may also mean that she avoids the problem that some of us with Autism experience - some DWP letters can be rather hard to understand at times. Her understanding might be different to how it's intended due to the way it's worded.

rogerblack

earwig wrote: »

Hi I am wondering if you can help please .
My daughter is nearly 16 and has been claiming dla since the age of 8 . My daughter suffers from autism ,urine incontance ( caused by a side effect of a medication ) ,mental health issues including acute anxiety.

http://www.adviceguide.org.uk/england/benefits_e/benefits_sick_or_disabled_people_and_carers_ew/benefits_personal_independence_payment_e/benefits_the_pip_assessment_e/pip_activities_descriptors_and_points.htm

It's probably worthwhile spending the time reading this, and the linked descriptors in this - to get an idea of what points she may in principle be entitled to.
Note in particular that to be able to do a thing for PIP, you need to be able to do it reliably, repeatedly, safely, and in no more than twice the time that a normal person would.

earwig

Thank you for your replies . I will have a look at the links you have given me . My daughter is on mid rate care and low rate mobility I understand that pip does not pay the same rates so im not sure how we will fair there .


I have spoken to my daughter and she says that she would like me to be a trustee for her . Would that have to be for life or if she got more confidence could we change this back to her own claim .


What is the dwp like when they visit you? they sound so scary and im worried my daughter will go to peace's if we get some one unkind and unhelpful


thank you again you are all fab xx

kingfisherblue

The lady who came to see us was fab. She was friendly, non-judgemental, and explained the forms clearly. We chatted for most of the visit, and she was only there about twenty minutes. Really, you have nothing to fear - I have read on other threads that the DWP appointeeship visit is something that they succeed at.

SingleSue

My appointee 'interview' was one of the most informal interviews I have ever had, the person who did it was very friendly, not at all judgemental, very kind and very sensitive to youngest and his dislike of strangers.

Mine lasted all of about 10 minutes and most of that was us talking about the difference in the PIP forms to the old DLA forms, he and I had actually signed the official forms within the first few minutes!

Indie_Kid

earwig wrote: »

Thank you for your replies . I will have a look at the links you have given me . My daughter is on mid rate care and low rate mobility I understand that pip does not pay the same rates so im not sure how we will fair there .

There is a low mobility on PIP. Well, it's standard and enhance mobility and standard and enhanced care. The criteria is completely different.

I have spoken to my daughter and she says that she would like me to be a trustee for her . Would that have to be for life or if she got more confidence could we change this back to her own claim .

Check with DWP about this. But I can't see any reason why it would have to be for life.

pmlindyloo

earwig wrote: »

Thank you for your replies . I will have a look at the links you have given me . My daughter is on mid rate care and low rate mobility I understand that pip does not pay the same rates so im not sure how we will fair there .


I have spoken to my daughter and she says that she would like me to be a trustee for her . Would that have to be for life or if she got more confidence could we change this back to her own claim .


What is the dwp like when they visit you? they sound so scary and im worried my daughter will go to peace's if we get some one unkind and unhelpful


thank you again you are all fab xx

Yes, it can be revoked if your daughter later becomes capable of managing her own affairs.

http://deputyship.org.uk/appointeeship-faqs/can-the-dwp-revoke-an-appointeeship

earwig

Thanks everybody you are all so helpful , this is reassuring to know . I will keep reminding my daughter that they are coming to see her but there is nothing to worry about . one more question how long was it once sending back the letter to receiving your dwp home visit ?
Thank you :T xx