Following Doctors advice results in treatment funding withdrawl

FatVonD

Another vote for going private, especially as they are only funding one cycle anyway. You are not only delaying that cycle but any others you may need after it.

I don't wish to sound unsympathetic but, as someone who conceived via IVF, I wouldn't have deferred until after I'd been to uni knowing that both partners already had problems and I certainly wouldn't wait another 18 months after that again.

How old are you both, OP? Your comment about your chances diminishing by a third make it sound like you could be around 30?

tomtontom

NHS funding has changed dramatically over recent years, a few years ago it would have been relatively simple to get funding for something previously approved, not so now. Ask PALS (the lady you spoke to at the CCG) for the funding criteria and the process that needs to be followed and start the process again now. I wouldn't waste your time pursuing what did or did not go wrong before, by the time you've done that everything could have changed again.

LilElvis

fed_up_and_stressed wrote: »

Go private .. Or adopt.

PCT would not fund my chemo being given to me in a less toxic way as the bean counters in "N.I.C.E" state it wasn't cost effective to treat in that way. As I couldn't afford to do fund it myself privately i had to accept their decision.

The nhs isn't a never ending money pit sadly hard choices have to be made.

Nice to see how heartless people can be.

We all understand that the NHS has hard decisions to make but your post is extremely mean-spirited given that the op had been given funding for treatment which has only been withdrawn due to mistakes.

You couldn't afford to privately fund your treatment so what makes you think that the op can just magic up the money to fund theirs?

And don't even go there with the 'just adopt' comment as that does nothing but illustrate your total and complete lack of understanding of infertility.

Before you post about my lack of understanding of your condition I would just say that I lost my best friend to liver cancer and my Dad is due to have his rectum surgically removed after Easter, the removal and repair of one stoma, the insertion of a new one, lymph node removal and extensive plastic surgery - probably to be followed with a further round of chemo.

I would have hoped that someone who had been let down by the systems and guidelines which rule the NHS these days might have been more sympathetic to someone who had been placed in a similar position. Clearly I was wrong.

pleasedelete

fed_up_and_stressed wrote: »

Go private .. Or adopt.

PCT would not fund my chemo being given to me in a less toxic way as the bean counters in "N.I.C.E" state it wasn't cost effective to treat in that way. As I couldn't afford to do fund it myself privately i had to accept their decision.

The nhs isn't a never ending money pit sadly hard choices have to be made.

113 babies were adopted in the UK last year. Adoption isnt easy.

whodathunkit

pleasedelete wrote: »

113 babies were adopted in the UK last year. Adoption isnt easy.

Why think of adoption only in terms of babies? There are thousands of toddlers and older children who are desperate to have parents of their own.

FrustratedRegular

FatVonD wrote: »

Another vote for going private, especially as they are only funding one cycle anyway. You are not only delaying that cycle but any others you may need after it.

<snip>

How old are you both, OP? Your comment about your chances diminishing by a third make it sound like you could be around 30?

It is "one complete cycle" that it went down to with a complete cycle being defined as 1 "fresh" and up to 3 frozen subject to there being enough embryos for this.

We are both mid 30s. With my sample now being on ice my "clock" I guess has effectively stopped ticking (just the bank balance ticking down now)

heartbreak_star

whodathunkit wrote: »

Why think of adoption only in terms of babies? There are thousands of toddlers and older children who are desperate to have parents of their own.

This. Please, OP, do consider adoption.

HBS x

an9i77

heartbreak_star wrote: »

This. Please, OP, do consider adoption.

HBS x

Adoption of a child (say age 2 plus) is not the same experience as adoption of a baby. I'm not saying it is not a worthwhile thing to do, of course it is, but it is not the same as adopting a baby, which is in turn not the same thing as having your own baby.
I considered adoption as a long standing health issue meant that I would be causing a significant risk of permanent disability to myself if I had a pregnancy. I looked into what it involved, and it looked so difficult and so different from what I originally wanted, that I decided to risk my own health to have a baby of my own. (Although I did have some problems I luckily came through ok in the end)
So it's not as easy as saying to just adopt. That's like if you go to the store to buy a new car, and someone says 'don't bother with a car just buy a bicycle.' Not the same thing at all.
OP I wish you the best of luck.

heartbreak_star

I'm not saying "just adopt" or making light of the situation. I am asking the OP to consider it.

Personally if I ever wanted children I would adopt over having a biological one.

However I understand that not everyone agrees with this so I shall wish you luck, OP, and bow out now.

HBS x

pauletruth

an9i77 wrote: »

Adoption of a child (say age 2 plus) is not the same experience as adoption of a baby. I'm not saying it is not a worthwhile thing to do, of course it is, but it is not the same as adopting a baby, which is in turn not the same thing as having your own baby.
I considered adoption as a long standing health issue meant that I would be causing a significant risk of permanent disability to myself if I had a pregnancy. I looked into what it involved, and it looked so difficult and so different from what I originally wanted, that I decided to risk my own health to have a baby of my own. (Although I did have some problems I luckily came through ok in the end)
So it's not as easy as saying to just adopt. That's like if you go to the store to buy a new car, and someone says 'don't bother with a car just buy a bicycle.' Not the same thing at all.
OP I wish you the best of luck.

Don't assume your health issues don't stop you adopting. ive 3 nieces ad nephews that were adopted by 2 lots of my wifes family. adopting a child is not a choice that you make just because you can't have your own. approach the adoption like that and you won't be approved. all 3 of my gorgeous nephews and nieces were adopted after they were 4. the reason that there are so few babies going is simply the length of time the care hearing system takes. please don't think of adoption as a second or third choice its not